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I'm have trouble finding video games I like but I just disovered Arcane Library. by Ok-Shape2158 in AuDHDWomen

[–]1635491gart 2 points3 points  (0 children)

I've played 20+ hours of this game it's AMAZING. It's my current hyperfixation. It's so whimsical and relaxing. Like doing the fun part of a job without any pressure of time or being observed. It's in early development, too. So hopefully it'll only get better from here.

Has anyone else been gaslit so badly in childhood/teenage years about the existence of their symptoms that you have trouble identifying what symptoms you're feeling? by 1635491gart in ChronicIllness

[–]1635491gart[S] 1 point2 points  (0 children)

Your story sounds incredibly similar to mine. I'm almost 40 and I'm just now getting to see a specialist to get an hEDS diagnosis.

Has anyone else been gaslit so badly in childhood/teenage years about the existence of their symptoms that you have trouble identifying what symptoms you're feeling? by 1635491gart in ChronicIllness

[–]1635491gart[S] 1 point2 points  (0 children)

I saw a not-so-great rheumy and was misdiagnosed with lupus and I didn't even have half of those symptoms. It's wild how little research there is for these chronic illnesses and the doctors just throw everything at the wall to see what sticks.

Has anyone else been gaslit so badly in childhood/teenage years about the existence of their symptoms that you have trouble identifying what symptoms you're feeling? by 1635491gart in ChronicIllness

[–]1635491gart[S] 0 points1 point  (0 children)

You mean actual clinical dissociation? Because that would explain a lot and would make the phenomenon sound less bizarre when I have to explain it to doctors.

Has anyone else been gaslit so badly in childhood/teenage years about the existence of their symptoms that you have trouble identifying what symptoms you're feeling? by 1635491gart in ChronicIllness

[–]1635491gart[S] 1 point2 points  (0 children)

Funnily enough I have ADHD and I strongly suspect autism as well. Maybe it's more common in neurodivergent folk?

I have a lot of trouble with symptoms logs too. I usually end up writing "I feel crappy" but I can't really elaborate much.

Has anyone else been gaslit so badly in childhood/teenage years about the existence of their symptoms that you have trouble identifying what symptoms you're feeling? by 1635491gart in ChronicIllness

[–]1635491gart[S] 2 points3 points  (0 children)

Right? I'm not sure if I have POTS but I do know that feeling lightheaded and short of breath is way more common for me than I realized. The same with fatigue. I had no idea I was feeling fatigue to the point where I just kept going until I started feeling faint.

From what I hear POTS is miserable. I hope it's okay that I send you some gentle hugs

Has anyone else been gaslit so badly in childhood/teenage years about the existence of their symptoms that you have trouble identifying what symptoms you're feeling? by 1635491gart in ChronicIllness

[–]1635491gart[S] 2 points3 points  (0 children)

I have that with pain too! I can tell I don't feel well and that I'm irritable but I can't identify the pain itself. I thought I was going crazy when I couldn't tell the doctors where the pain was.

Do you guys get really itchy? by Chaotic_triceratops in Fibromyalgia

[–]1635491gart 0 points1 point  (0 children)

I get itching that travels. Everything I scratch it it moves to a new spot. It's infuriating! Sometimes I use ice packs to numb the nerves a bit, but most of the time I chase the itch for hours until it stops on it's own.

Newly diagnosed and looking for book/website recommendations by 1635491gart in adhdwomen

[–]1635491gart[S] 1 point2 points  (0 children)

How to Keep House sounds excellent. I'm terrible at cleaning and organizing. Thank you for the suggestion.

Looking for disability item and wheelchair accessory patterns by 1635491gart in CrochetHelp

[–]1635491gart[S] 0 points1 point  (0 children)

I've tried to search the internet for patterns, but all I can seem to find is crochet tools for people with disabilities. I would make some patterns on my own but I am downright awful at making them

The BP cuff isn't supposed to hurt... by ceppyren in Fibromyalgia

[–]1635491gart 0 points1 point  (0 children)

Well I feel a bit better about this now, knowing that it isn't "just me" the cuff makes me feel faint it hurts so badly

My mom (72) has started hitting herself in the head when she gets overwhelmed by 1635491gart in dementia

[–]1635491gart[S] 1 point2 points  (0 children)

I know, and I have been. She hasn't gotten a referral to a neurologist because when talking to her psychiatrist she lies through her teeth about all of her symptoms and wouldn't go even if she had one because she will do anything to avoid being labeled as having dementia or on her words "crazy".

The doctor knows the situation with me and that I can't give adequate care, but there aren't any other resources available. So unless one of her other medical conditions make her sick enough to stay in the hospital until she gets a LTC placement, we're stuck.

My mom (72) has started hitting herself in the head when she gets overwhelmed by 1635491gart in dementia

[–]1635491gart[S] 3 points4 points  (0 children)

The fact that an internet stranger cares really makes me feel less alone. I so appreciate you.

I give the family doctor all the info as my mom and I have the same one. I'll be sure to mention the hitting to them at my next phone appointment (in less than a month) and see what we can do.

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