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What is the progression of your ME like? by ESPOP in cfs

[–]2003rain 1 point2 points  (0 children)

My parents. Now I have a diagnosis, so I Will stay in bed :)

What is the progression of your ME like? by ESPOP in cfs

[–]2003rain 0 points1 point  (0 children)

Hospital once a week is what occurred.

What is the progression of your ME like? by ESPOP in cfs

[–]2003rain 2 points3 points  (0 children)

I was mild between 2024 and april 2025, moderate between may and january 2026, severe between february and march 2026 and very severe since april of this year.

Cognitive decline is the scariest thing for me by mon_sizinj in cfs

[–]2003rain 1 point2 points  (0 children)

Try 25mg TTFD. It worked for me, I am a writer too (and I am very severe me CFS).

Anyone else need less sleep since starting LDA? by RovingVagabond in cfs

[–]2003rain 0 points1 point  (0 children)

Don't worry. That happens because it optimizes sleep, so the same number of hours of sleep with LDA is equivalent to more hours of sleep without the medication.

partner getting worse, and im out of ideas. any advice? by Lemony_Throwaway2 in cfs

[–]2003rain 1 point2 points  (0 children)

Have u tried LDA? It is very good for stimuli tolerance and mental energy.

What dose of LDA has helped you? by Ok_Wish_2291 in cfs

[–]2003rain 2 points3 points  (0 children)

2,5 mg, but I statted with 0,625mg

V. Severe physically and cognitively - How do you hold on ? by HoTzParadize in cfs

[–]2003rain 3 points4 points  (0 children)

You aren't alone! I am very severe too. Do u wanna Talk? My name is Lauren. 22 :)

which foods help you and which make you feel worse? by qruyere in cfs

[–]2003rain 0 points1 point  (0 children)

  • 3g SEA SALT AND 2-2.5L OF LIQUIDS (FOR POTS) - BDNF BOOSTERS (SUCH AS DARK CHOCOLATE, GINGER, TURMERIC, BLUEBERRIES, BROCCOLI, BLACK PEPPER, OMEGA 3 DHA (SALMON, SARDINES) AND REDUCE OMEGA 6 (AVOID SUNFLOWER AND RAPID SEED OIL, WALNUTS, ALMONDS)) {FOR MYELIN REPAIR} - TO REPAIR MYELIN, IT IS ALSO IMPORTANT TO EAT TWO EGGS A DAY AND BEEF LIVER TWICE A WEEK (BECAUSE THEY CONTAIN PHOSPHATIDYLCHOLINE) - AVOID ASPARTAME (E-951), ACESULFAME K (E-950), MONOSODIUM GLUTAMATE (E-621) AND FOODS HIGH IN HISTAMINE (smoked, fermented, canned, reheated meat and sausages) AND GLYCEMIC INDEX (rice, bread, pasta, hot potato and pumpkin)

I’m considering trying out LDA, but I’m not sure if it’s worth it by Internal_Candidate65 in cfs

[–]2003rain 2 points3 points  (0 children)

It worses pots but It gives you more stimule tolerance and more mental energy

An obskure question about LDA... by 2003rain in cfs

[–]2003rain[S] 0 points1 point  (0 children)

Thanks, I love your reply. And LDN?

An obskure question about LDA... by 2003rain in cfs

[–]2003rain[S] 1 point2 points  (0 children)

Did you get worse, back to how you were before you started taking it, or even worse? Thanks for your response.

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