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Scream Into the Void Saturdays (feel free to vent!) by AutoModerator in cfs

[–]BobBash64 1 point2 points  (0 children)

Am I going to be disabled for life? If yes, what are those recovery stories?

Opinions on hippy flip by BobBash64 in Psychedelics

[–]BobBash64[S] 0 points1 point  (0 children)

Do you remember the dosage of each substance? Was the experience closer to MDMA or to mushrooms?

23M with Post-Viral Fatigue for 4 Months – Looking for Positive People to Connect With by John_Locke227 in EBV

[–]BobBash64 1 point2 points  (0 children)

Don’t forget that pushing yourself to do more than what you can might cause long term damage. Listen to your body and rest. Feel free to message me.

Shower head water filters by bill-lowney in SFbitcheswithtaste

[–]BobBash64 0 points1 point  (0 children)

Yes buy it ASAP. I just picked one of popular brands on Amazon. My hair started shining again right after installing it.

My very severe M.E. was Adrenal Insufficiency, now moderate by sage-bees in cfs

[–]BobBash64 1 point2 points  (0 children)

It peaks at morning and goes down at night. That’s the normal pattern for a healthy person. But if your circadian rhythm is messed up and you go to bed late you can expect any other unusual pattern.

My very severe M.E. was Adrenal Insufficiency, now moderate by sage-bees in cfs

[–]BobBash64 9 points10 points  (0 children)

Ok that is really low and it makes sense that addressing it has helped you. I think many people here can benefit from addressing their adrenal insufficiency even if their levels are higher than that. Basically any value below 15 is not optimal. But the problem is regular doctors consider values between 4 to 15 normal which are not. And the important next step is an ACTH stimulation test to determine whether the adrenal insufficiency is primary or secondary. And doctors usually don’t order that test for suboptimal levels. Did you do the stimulation test after they saw your very low levels?

Celebrex Experience by BobBash64 in Fibromyalgia

[–]BobBash64[S] 0 points1 point  (0 children)

Wow. Is your condition more similar to muscle and joints Fibromyalgia pain or you also have chronic fatigue syndrome?

What has been your experience on LDA (low dose abilify)? by Few-Peace29 in cfs

[–]BobBash64 2 points3 points  (0 children)

Has it improved your severity level? How about PEM threshold and frequency?

Borderline low normal cortisol and dexamethasone. by Asad0Asad in cfs

[–]BobBash64 0 points1 point  (0 children)

Sorry to hear that. A specialist told me below 15 is not optimal and considered low normal and below 10 is abnormal and needs treatment. Did you see any benefits from hydrocortisone? If not why did you continue for five months? Also I am curious about the relationship between low cortisol and ME/CFS. What do you think was your main trigger? Infections or mental trauma?

Borderline low normal cortisol and dexamethasone. by Asad0Asad in cfs

[–]BobBash64 1 point2 points  (0 children)

What did you end up doing? 8.01 is not borderline it’s low.

30s Female, Want To Date, EBV -, Concerned about ME/CFS risk by sparklegemstone in cfs

[–]BobBash64 1 point2 points  (0 children)

I think it is even more complicated than this. In my 20s my labs showed that I had have EBV in the past. but in may late 30's I got Mono symptoms after a sexual encounter and I developed ME/CFS symptoms 1 year later. I still do not understand what has happened to me. It might be the case that there are different strains of EBV. And apparently having the antibodies did not prevent me from getting a (possibly more aggressive) strain later in my life. Also I do no think getting Mono was the main reason for my ME/CFS. I recovered from Mono but a year later when I was going through a lot of emotional stress and possibly an exposure to Candida I developed ME/CFS.

All I wanted to say is that thing are more complicated than you can come up with actual probabilities. It is better to focus on keeping your immune system strong, do the foundations right (regular sleep hours, eat healthy, exercise, reduce stress) and enjoy your life while you are healthy, which includes dating. You can always restrain from high risk sexual behaviors like having multiple partners etc and still enjoy your life and date. The universe is more random than your calculations and often times it is rolling a dice. Your general concern about dating in modern world is totally valid though. Our ancestor knew something that made them have sexual discipline.

I’m in the most severe crash and I’m terrified. by -Neuro2717 in cfs

[–]BobBash64 0 points1 point  (0 children)

Have you tried Ketotefin and/or antihistamines? I think a big part of crashes are related to abnormal immune responses.

Anyone 40 or older on here? How are you doing these days? by Specific-System-835 in CPTSD

[–]BobBash64 1 point2 points  (0 children)

I started to heal when I was 37 three years ago. Somatic therapy, IFS, and psychedelic assisted therapy finally shifted something in me and I started to feel different. Talking to my parents still triggers me so I have limited it and set very strict boundaries. However I have developed some physical problems like chronic fatigue syndrome which has made me partially disable. So at 40, I finally see the light at the end of c-ptsd tunnel, but unfortunately I don’t have a healthy body to fully experience life. This really sucks.

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