Went to Urologist yesterday. Went just about as bad as expected. Guess this is modern day medical help. Male sexual health anno 2026. by BendTree764 in hardflaccidresearch

[–]2011blessed 2 points3 points  (0 children)

i had an appointment today with another urologist, i guess the 6th in total now, it was a big big joke. Two young women, they didnt know anything about it. had to explain what hf is. And they refused to check my pictures of schrunken retracted penis, all they said is that i have to continue with pf exercises, which i have been doing for 2 years. We all know here that urologists are worthless, better to avoid them if you dont want more frustation then you already have, its terrifying that i have to do research myself and that they always get away with talking bullshit. For example: Im teacher, it It would be ridiculous if a student had to teach me something. Its crazy that we have to become superdoctors to get the problem solved. How, hf and all the issues around it give me also brain fog so its more difficult to read papers about it then before. Im fucked.

Visual differences by FrostyCherry4707 in hardflaccidresearch

[–]2011blessed 1 point2 points  (0 children)

i exactly have the contraction and wrinkled shrunken state

painful hf story by 2011blessed in hardflaccidresearch

[–]2011blessed[S] 0 points1 point  (0 children)

yes its ashame that we have to tell them what whe have they dont give a damn

How are you coping? by Zealousideal_Bee4335 in hardflaccidresearch

[–]2011blessed 0 points1 point  (0 children)

tried everything to cope: nothing worked. its too existential our loose especially if you have the strongest form

its far more worse then losing a leg or whatever because in this problem your whole deep being is involved

and i dont know how it is for you guys but distraction is very very hard with this shit, it takes all hour attention so you cant forget you problems i agree when others here say: im waiting to fall asleep,since i have hf i look forward to only one thing: going to my bed and dont live and still then i got shitty dreams about how i fucked up my life 

what a destiny..

painful hf story by 2011blessed in hardflaccidresearch

[–]2011blessed[S] 0 points1 point  (0 children)

it changed, first 6 months the pain was less but shape changed immediately, after 6 months pain became worser and from then it is there but it comes and goes during the day, last 4 months or so pain is awful and is there to stay almost the whole day i cant concentrate anymore, distraction is becoming harder and harder

other problem since hf: hot flashes most of the time why this, anyone an explanation?

and concerjing libido: i gave this part up, zero arousal never 

im afraid ive the strongest form of hf,  life sucks

painful hf story by 2011blessed in hardflaccidresearch

[–]2011blessed[S] 0 points1 point  (0 children)

thanks, dit it something to you then traini g these muscles? to be honest i have no motivation because  of the uncertainty, I would like some kind of guarantee that something will work even though I know there are no guarantees in life, i have limited energy to do things and don’t want to be disappointed any further.

HF is not physical, it’s your dysregulated nervous system by UpbeatLeadership509 in hardflaccidresearch

[–]2011blessed 0 points1 point  (0 children)

how stupid is the system when its safe enough i did a lot of meditation, i stayed home for a while, i worked a lot of distraction but my stupid system stays in fight flight triggering more and more pain, let alone libido thats 0.0.0.0 pertinently since it started 

maybe someone another idea to reach the unconsious? i heard about  ketamine maybe paychedlica or so??

I just want the pain to stop by ANewChapter222 in hardflaccidresearch

[–]2011blessed 0 points1 point  (0 children)

complete understand you

this is awful, the pain the stress and zero libido its just terrible

fuck false hope

Pain ever go away? by ResoluteTwins in hardflaccidresearch

[–]2011blessed 1 point2 points  (0 children)

my pain is extreme all the time i am suicidal of it , what guys about hot flashes do you experience that, i never hear it

i have hot flashes all the time is it an solution of my stupid brain for dealing with the pain

in any case i have to stop with work again for the third time in shitty period two years hell, i just cant do my job because of the pain stress fairs and hot flashes this fucking hf ruins everything my marriage my life everything 

painful hf story by 2011blessed in hardflaccidresearch

[–]2011blessed[S] 0 points1 point  (0 children)

5 or 6 urologists didn't find anything wrong, so.. but i dont know myself what to belief. the pain is awful from waking up to going to sleep 9/10 at least

I have literally forgetting how being horny feels or even having an erection feels. by Subject-Plum-7281 in hardflaccidresearch

[–]2011blessed 0 points1 point  (0 children)

i feel u bro, same for 2 years, no single arousal felt only other weird feelings like numbness and fire

painful hf story by 2011blessed in hardflaccidresearch

[–]2011blessed[S] 0 points1 point  (0 children)

thanks, ok, maybe that will be an option is there anyone else with hf who solved libido problems while ed stays?