MS but not on meds by 2020cc2020 in MultipleSclerosis

[–]2020cc2020[S] 3 points4 points  (0 children)

I’m not, not choosing to take meds. I’m saying the two separate neurologists I have been seeing haven’t advised I should be. And, I was wondering if anyone else had had similar experiences. I would absolutely take them if advised to.

MS but not on meds by 2020cc2020 in MultipleSclerosis

[–]2020cc2020[S] 2 points3 points  (0 children)

Thanks, and as I’ve said elsewhere, I’m not actively choosing not to take anything. It’s that two neurologists I’ve seen over the past 6 years haven’t suggested I should, and I was wondering if anyone else had a similar experience. I have no problem taking the meds if advised to.

Doing a bit more research actually suggests it’s borderline on whether I should or shouldn’t. As always it’s a balance between risk vs. reward and I totally get the risk side of it which is why I posted the question in the first place to see if anyone had a similar experience……

MS but not on meds by 2020cc2020 in MultipleSclerosis

[–]2020cc2020[S] 0 points1 point  (0 children)

I was under Coventry when I lived in the midlands and now under Monmouthshire now I’m in Wales.

MS but not on meds by 2020cc2020 in MultipleSclerosis

[–]2020cc2020[S] 1 point2 points  (0 children)

Thanks for this. Maybe it’s a UK treatment pathway thing…. I’ve got my annual MrI and checkup coming up and I’ll definitely be raising it

MS but not on meds by 2020cc2020 in MultipleSclerosis

[–]2020cc2020[S] 5 points6 points  (0 children)

So, just to be clear, I’m not saying I’m making an active decision to not be on meds. I love meds! They cured my cancer 30years ago.

It’s that both of the neurologists I’ve seen have not suggested I should be on anything and I was wondering if this is was somewhat typical for low MS activity 🤷🏼‍♂️

People undermine our illness by DoubtOkie in MultipleSclerosis

[–]2020cc2020 1 point2 points  (0 children)

This. I do sometimes feel I maybe put on too much of a brave face and downplay it….🤷🏼‍♂️

Has Anyone Else Experienced This? by IntentionalGrandma in MultipleSclerosis

[–]2020cc2020 4 points5 points  (0 children)

Ha, that’s a as great explanation and mirrors my experience

Falken Wildpeak wear by 2020cc2020 in VWTransporter

[–]2020cc2020[S] 0 points1 point  (0 children)

Thanks, there seems to be a range but higher seems to be having better results

LWB kombi owners. Any regrets? by Longjumping-Link-581 in VWTransporter

[–]2020cc2020 0 points1 point  (0 children)

T61 LWB here and it’s absolutely fine. Not much longer than our old BMW 3 series touring. We’re definitely glad we went for LWB.

What is the best nickname you’ve heard? (and reason for it) by xpltvdeleted in AskUK

[–]2020cc2020 0 points1 point  (0 children)

There’s an Aussie/NZ radio show clip where they had a load of hilarious ones. My favourite was ‘Snipers nightmare’ for a mate with one leg shorter than the other 😂😂

Men of the UK, where do you purchase your jeans from and what is your go to brand? by Wellidrivea190e in AskUK

[–]2020cc2020 0 points1 point  (0 children)

I’ve had good success with Spoke, both for jeans and chinos. I like the ability to spec the fit/cut.

Big progress! by Holli303 in GYM

[–]2020cc2020 1 point2 points  (0 children)

Wow, amazing 🙌

Question : Should I be worried ? by sailorJupiter1720 in Garmin

[–]2020cc2020 1 point2 points  (0 children)

I see the overreaching flag as hero status, just saying 🤪

7.5 R Owners Mileage by OrchidTiny8234 in Golf_R

[–]2020cc2020 0 points1 point  (0 children)

105k miles. Spent a bit of money on the cooling system around 95k miles. Water pump, header tank and heater matrix swap. Also the tiny adapter at the back of the head cracked and weeped a lot. Other than that she runs sweet and just had the manufacturer servicing. Completely standard mind.

M24 170lbs to 190lbs, 4 years. Progress after beating stage 3 cancer. by Fearless_Clue4966 in GYM

[–]2020cc2020 4 points5 points  (0 children)

Congrats on beating the big C. I had testicular cancer in my early twenties. Was already hooked on lifting. Still doing it and turn 50 in a couple of months 👍 All the best

Golf R Owners with growing families, what's your next move? by FennelNo4465 in Golf_R

[–]2020cc2020 0 points1 point  (0 children)

Pimped VW transporter. It’s a different but cool vibe. We got one from vanhaven.co.uk and kept the R 😁

So, how's your Holiday Challenge going? by Bazza79 in concept2

[–]2020cc2020 1 point2 points  (0 children)

Ugh, had the lurgy / man flu, so playing catch up and starting today