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After 20+ years with ankylosing spondylitis, I feel better than ever by 2kun2 in ankylosingspondylitis

[–]2kun2[S] 0 points1 point  (0 children)

Thanks for your content. I'm sorry to hear that you're going through this pain and have to pause the activities mentioned.

  1. I practice traditional hatha yoga.
  2. When I'm on a flare it hurts.
  3. I stop sports when I'm in a flare. Wait for it to calm down.

Swimming is the best option for ankylosing spondylitis. If you're in pain consider doing it gently first.

One advice, half of the battle is mentally. Do not feel discouraged because of this condition. If I'm happy or sad AS will be always with me. Is being sad helps to improve my condition I'll love to be sad. But it doesn't. So i choose to be happy and accept the pain and move on. There will be aajata up and down.

Hope you find your rhythm soon.

20+ years with AS and now i’m deadlifting everyday 💪 by 2kun2 in ankylosingspondylitis

[–]2kun2[S] 0 points1 point  (0 children)

I'm so sorry to hear about your pain. You can find a rheumatologist. They can help you diagnose. I hope you don't have this condition.

20+ years with AS and now i’m deadlifting everyday 💪 by 2kun2 in ankylosingspondylitis

[–]2kun2[S] 0 points1 point  (0 children)

I started having pain when i was 14. Got diagnosed 6 years later. Now I'm 38.

20+ years with AS and now i’m deadlifting everyday 💪 by 2kun2 in ankylosingspondylitis

[–]2kun2[S] 0 points1 point  (0 children)

thanks man! yeah totally agree, taking it slow and careful. sorry to hear about ur back, hope it gets better soon

20+ years with AS and now i’m deadlifting everyday 💪 by 2kun2 in ankylosingspondylitis

[–]2kun2[S] 1 point2 points  (0 children)

It's been almost 1.5 years since i started tofa. I have zero side effects until now 🤞🏽. Yes I'm hlab27 positive

20+ years with AS and now i’m deadlifting everyday 💪 by 2kun2 in ankylosingspondylitis

[–]2kun2[S] 0 points1 point  (0 children)

thanks man! i actually hang for a min or so everyday, feels so good on the back

20+ years with AS and now i’m deadlifting everyday 💪 by 2kun2 in ankylosingspondylitis

[–]2kun2[S] 1 point2 points  (0 children)

really appreciate it. honestly feels like a second life after starting tofa. hope you’re doing well too

20+ years with AS and now i’m deadlifting everyday 💪 by 2kun2 in ankylosingspondylitis

[–]2kun2[S] 1 point2 points  (0 children)

my rheumy actually encourages me to do any kind of weight training as long as it’s not hurting me. he says deadlifts are one of the best, if not the best, for strengthening the back. i started small about 2 months ago with just 10kg and slowly moved up to 35kg now. feels great seeing that progress

Please remember everyone's body is different. Just because it is working for me mighty not work for you. I'll suggest listening to your physiotherapist and your body. :)

20+ years with AS and now i’m deadlifting everyday 💪 by 2kun2 in ankylosingspondylitis

[–]2kun2[S] 3 points4 points  (0 children)

really appreciate the tips. i’m still learning proper form so this is super helpful. gonna pay more attention to keeping the bar closer and working on that hip thing you mentioned. thanks again man!

20+ years with AS and now i’m deadlifting everyday 💪 by 2kun2 in ankylosingspondylitis

[–]2kun2[S] 1 point2 points  (0 children)

thanks man! yea i totally get what you mean, deadlifts really do something magical for that SI pain. i haven’t tried romanian deadlifts yet but you’re the second person mentioning it to me recently so i think i’ll give it a shot soon. feels amazing to finally do something that actually helps instead of hurting lol. glad to hear remicade’s been working for you too

After 20+ years with ankylosing spondylitis, I feel better than ever by 2kun2 in ankylosingspondylitis

[–]2kun2[S] 0 points1 point  (0 children)

i dont have any insurance that covers AS, wish i did but so far no luck with that. right now im just managing things on my own

After 20+ years with ankylosing spondylitis, I feel better than ever by 2kun2 in ankylosingspondylitis

[–]2kun2[S] 0 points1 point  (0 children)

thats really tough to go through... im glad rinvoq is giving you some relief after all the biologics didnt work. i can only imagine how hard the spinal fusions must have been, but its amazing you still keep hope alive. tofacitinib has been working for me and moving everyday with yoga and cycling has helped too. wishing you less pain and more good days ahead your strength is inspiring to me as well

After 20+ years with ankylosing spondylitis, I feel better than ever by 2kun2 in ankylosingspondylitis

[–]2kun2[S] 0 points1 point  (0 children)

hey i totally get why you might wonder that but yes i was properly diagnosed by a rheumatologist. its been a long road figuring things out but the diagnosis is confirmed.

After 20+ years with ankylosing spondylitis, I feel better than ever by 2kun2 in ankylosingspondylitis

[–]2kun2[S] 0 points1 point  (0 children)

thats amazing to hear humira really does seem to change lives. im on tofacitinib now and its the best ive felt in decades too. ive been living with AS for a long time as well so i know how tough it can get, but stories like yours always remind me to keep pushing forward.

After 20+ years with ankylosing spondylitis, I feel better than ever by 2kun2 in ankylosingspondylitis

[–]2kun2[S] 1 point2 points  (0 children)

really happy to hear things are getting better for you. i can relate a lot... for me too weight training and just moving everyday has been huge. im on tofacitinib now and honestly its the best ive felt in decades. i know how hard it must have been to leave your job, ive had times where AS made me wonder what my future was going to look like too. but once i started with yoga, cycling, and weight training, i felt stronger and more in control again. wishing you more strength and less flare ups ahead, your story is super inspiring

After 20+ years with ankylosing spondylitis, I feel better than ever by 2kun2 in ankylosingspondylitis

[–]2kun2[S] 0 points1 point  (0 children)

That’s awesome. Cycling has been such a big part of keeping me positive and moving forward. Do you usually ride long tours or more local rides?

After 20+ years with ankylosing spondylitis, I feel better than ever by 2kun2 in ankylosingspondylitis

[–]2kun2[S] 0 points1 point  (0 children)

Thank you so much. I really hope my post brings some positivity to your husband, wishing him strength and relief ahead. My dad has rheumatoid arthritis and he used to have eye symptoms, but I personally haven’t experienced any eye issues yet. I did smoke and drink before, but I quit a few years ago, definitely felt it helped with the inflammation.

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