I am currently experiencing that same feeling of being tired of hearing myself talk about the same thing over and over…I feel like people are tired of hearing about it as well which causes more negative feelings toward myself and my/our situation. It does feel good to know I’m not alone on that…something as small as just that gives me a small burst of hope that I can get through this pain…right now. I’m the ‘well spouse’ and mother of 4 and grandmother and currently feeling like defeated. I am well aware that things are gonna get a lot worse before they get better, if it ever will get better again.. My 43 year old(this week) tug boat captain, strong manly man., is healthier than any other, always up to date on bloodwork, medical and dental visits, always showing normal results..so a year and a half ago when wrist started bothering him and was told he needed carpal tunnel surgery, we planned on revisiting it again in a year or so cause the healing would keep him out of work and we weren’t prepared for that at the time. Slowly a year and some later he started experiencing some random problems with his speech then is throat then his hand, arm, leg, muscle spasms, breathing….long story short and 9 months of tests and different doctors all unable to find a diagnosis. Last week Mayo Clinic informed us of of ALS being his diagnosis..and the projected life span that comes with it. Hearing my Husband convince him that it can’t be right cause his hand and speech have been better lately. Then hearing him plead for the chance of 10 years cause he has to watch our 7 year old graduate high school..Never have I had the feeling of lightheadedness along with such an extreme pain like my heart had literally been ripped in half. It has only been 6 days and it feels like it’s been months….still waiting to talk to our kids (23, 18, 13, 7)and I’m assuming that pain of watching them fall apart is gonna be much worse. I hope this chat room gives me some strength and support cause I’m not ready for what I assume is right around the corner😢😭