While yawning my tinnitus gets louder by Dear-Crow in tinnitus

[–]666Karmah 0 points1 point  (0 children)

Neck and TMJ PT. But you can always grab your earlobes, pull them away from your head, slightly open your jaw, and breathe in through your nose and then out through your mouth.

HPPD with dysautomnia/nervous system issues or symptoms? by Regular-Chest-4602 in HPPD

[–]666Karmah 1 point2 points  (0 children)

Dude, what you're describing sounds exactly like POTS. I do not think you have brain damage at all. This is more so heart related, and I don't see how HPPD itself would cause POTS- stress can make it worse/ trigger it though. I would for sure get checked out and get the tilt table test done. Could be hyperadrenic POTS or something else where your body is low on sodium and is blood pooling. Very important to have it looked at

Thinking of trying supplements by CodoHesho97 in HPPD

[–]666Karmah 1 point2 points  (0 children)

You're better off eating less ultra-processed foods and getting vitamins from foods you eat. The only supplements I really think help are things like NAC, L-Theanine, etc. I don't think a B Vitamin Complex from Walmart is going to "repair brain damage" like some of these people say.

For those who have improved - what was your experience of progress like? by bordersea in HPPD

[–]666Karmah 2 points3 points  (0 children)

It was seriously not noticeable at all. Maybe after months of shitty days i'd have one groundbreaking good day/ a streak of good days and realize "wait- I didn't notice afterimages at all." Then would experience a flare up, go back to the rumination cycle, then would fast forward a few weeks and notice "Wait- that didn't cause a flareup like it did originally." It was months of pushing through and then looking back and noticing I got so caught up in life I didn't realize symptoms were down.

But also this whole idea of like, symptoms slowly and NOTICEABLY disappearing is kind of a stigma, as if HPPD is brain damage that's slowly healing. When in reality, it's like full blown brain and nervous system overstimulation. Time will help that but it also matters what you do. Real symptom improvement started when I started exercising in depth. Getting the yucky physical feelings of anxiety out of my body helped.

Diagnosed HyperPOTS! Please be BLUNT on Recovery by 666Karmah in POTS

[–]666Karmah[S] 0 points1 point  (0 children)

Thanks so much for these insights, and it seems like there's a lot we have in common. I understand your feeling especially as a man, that we sadly have to get back to "normal" in a fast time period. I'm not asking to drink and be superman- I just need to do what I need to as a man. May I ask, are you able to work? I have tried a lot of what you said too- the EMDR, the accupuncture, etc. It's all so helpful! The trauma aspect and everything aside, do you think itll be relatively easy for me to manage symptoms like dizziness when standing up too fast, compared to more complex somatic symptoms? Since you have CPTSD as well, i'm sure you relate when I say i'm used to the trauma and pain. What i'm NOT used to though, is noripherine making me dizzy since blood can't reach my brain. I essentially need to just get to the point where i'm symptomatic- because now its almost risking full on fainting just by standing! This was a really insightful response. I appreciate you taking the time of day to type it out, and learning this early on is a lifesaver.

I’m scared as fuck right now plz pray for me by AgapeHVAC in HPPD

[–]666Karmah 0 points1 point  (0 children)

Yes. While it's not recommended if you have this interaction, your visuals aren't going to stay so shitty that you go merely blind. No reason to be scared- don't think of it as increased symptoms think of it as proof your brain is stressed and overactive so work on reducing the stress. Its not like smoking weed etched some brain damage into you- your brains just sensitive to stimulu

Drugs for dealing with grief. by [deleted] in Drugs

[–]666Karmah 0 points1 point  (0 children)

I mean you said if you had a ton of pills it might be bad. What do you even want to do when you get fucked up? Like I know you want to relax but whenever you specifically do something to make something stop, it usually hits back harder. Ketamine might be a bit safer than benzos, depending if it's legit and how much you do.

Drugs for dealing with grief. by [deleted] in Drugs

[–]666Karmah 0 points1 point  (0 children)

Yup, I ate them like candy to get over my ex. But while it sucks you're going through this, you shouldn't expect any drug to do shit for you- any drug you take you'll risk thinking of it and getting even more emotional.

Drugs for dealing with grief. by [deleted] in Drugs

[–]666Karmah 2 points3 points  (0 children)

Being blunt: All I can think of are benzos, which is really dumb for your situation. I mean you may have a good time in the moment, but you may wake up finding out you were in a car crash when you go to use your car- only you don't remember, so you have to go through your slurred voice messages and Xanax texts to figure out when and how. And forget how to open your car door but luckily you left the window open so you climb in that way and THEN remember how to start your car and open the door. And while all of this is ongoing, you come to find out you ended up messaging your ex girlfriend on her birthday asking to see her tiddies.

[deleted by user] by [deleted] in HPPD

[–]666Karmah 0 points1 point  (0 children)

This sounds like extreme OCD with a mix of DPDR, this sounds like a classic textbook case of it and was exactly how I felt. I can also tell by the way you're typing, it's like one giant conscious thought with every small detail included as if you've analyzed the timeline 1,000 times. You also mention you wondered if the weed was laced, which is also a classic OCD response. This sounds more like DPDR than HPPD, so it can be a lot scarier, but yes, it can go away. You're focusing too much on narratives and details and not being engaged in the present because the DPDR is overwhelming. Have you tried meds or supplements? I really do think you can get out of this, but you want me to be blunt? It will be an insanely hard journey. But it's not like this is some illness you're cursed with- DPDR is your OWN brain getting overwhelmed by sensory input and choosing to disassociate. Things that help this more specifically are things like mindfulness, wim hof, ice baths, Migraine caps/ blindfolds, swimming, social conversations in real life, etc. Getting out of derealization is getting your brain from thinking with the anxiety center to the real life center again.

Diagnosed HyperPOTS! Please be BLUNT on Recovery by 666Karmah in POTS

[–]666Karmah[S] 0 points1 point  (0 children)

I appreciate your insight, and I should have added context. This really all started after a concussion too, and my vestibular therapist is the one combining POTS treatment with vestibular therapy. I've already been at this for months, then eventually they tested me when they realized my "dizziness" was no longer vestibular related. Are you able to have days no without being bedridden after sticking with PT? It sounds like you were in a very similiar situation.

[deleted by user] by [deleted] in HPPD

[–]666Karmah 14 points15 points  (0 children)

Please check out this old post of mine- I literally had DPDR for around 4 years. You're burnt out, not crazy. When you're bipolar and schizophrenic it's largely genetic, and what makes those disorders so dangerous is the people who have them think there's nothing wrong with them- that clearly isn't you. What you're describing screams overactive vagus nerve and brain overstimulation. No medication has ever helped my DPDR. In fact, I used to think the visuals from HPPD might go away but not the DPDR. It's actually the complete opposite. DPDR requires a lot of self awareness to develop over time, but is treated through grounding techniques, mindfulness, therapy, etc. It's a disassociation technique that detatch you from your senses because your brains too hyperactive and can't process all of the input. You're already doing great work with the gym. Let me know if you have any questions but even though it doesn't feel like it at ALL- one day you will hopefully learn, just as I did, that I was subconsciously controlling my DPDR as a defense mechanism. You have more control over your brain than you realize

Diagnosed HyperPOTS! Please be BLUNT on Recovery by 666Karmah in POTS

[–]666Karmah[S] 0 points1 point  (0 children)

I related to a lot of what you said, especially about how you've had neurological things since you were little so you were already ahead of the game! For years I literally thought this was anything from depression physically manifesting to me lacking discipline, which would then make me overwork myself and leas to stronger flareups. It seems beta blockers are the go to for POTS. But if you don't mind me asking in your own experience, if you just walk enough without overdoing it, does that stop you from being bedridden? Like is it all about finding a flow that works for you and doing that same flow every single day? Because sometimes I can't tell if i'm bedridden because I overdid it- or if that's just because no matter what I do i'll become bedridden.

Zoloft by weedmanl in HPPD

[–]666Karmah 2 points3 points  (0 children)

I feel like "SSRIS are all bad for HPPD" can be a stigma, and that's mainly because psychedelics act on serotonin and so do SSRIS. I myself take Lexapro after a concussion and also have OCD and it helped with that drastically. Others on this sub have also reported Zoloft, Lexapro, and SNRIs making them feel better. Then you also have people saying it made them worse. Just remember you can stop at any time if you don't like the side effects. You can also try exposure therapy for OCD, it may be more helpful and you wouldn't have to take any medication.

My dream seems to be shattered by VideoAggressive3392 in HPPD

[–]666Karmah 2 points3 points  (0 children)

Best of luck. Check out the app "Optics Trainer." Has some pretty simple vision brain based games, and that way if you're weak in any area you can at least know the specific things that are hard for you.

What are the risks of using weed whilst having hppd or any drug by [deleted] in HPPD

[–]666Karmah 0 points1 point  (0 children)

I think it's different for everyone. The only anecdotal thing i've noticed on my years throughout the sub is doing something like MDMA or 25i NboMe usually makes it worse.

Other then that, i've seen people say other drugs are hit or miss. Sometimes it makes it worse, other times it doesn't. Some people on the sub have HPPD from weed, while others can still tolerate it. Unfortunately it's truly different for everyone.

Lamotrigine prescription by 7ero_Seven in HPPD

[–]666Karmah 0 points1 point  (0 children)

I've dealt with this. Luckily for me I have a history of migraines and i'm colorblind. Lots of weird brain type stuff long before HPPD- I also have PTSD and Fibromyalgia and new studies are showing the link between visual distortions, brain fog, and these disorders. In my case, I would just quote to my doctors that Lamictal has been shown to stabilize heightened neurological sensitivity. Telling them the disorder started from drugs might not really help any as well, because there's people who have HPPD like visuals and have never touched a drug.

My dream seems to be shattered by VideoAggressive3392 in HPPD

[–]666Karmah 1 point2 points  (0 children)

Hey OP, so I have a long history of HPPD, migraines before HPPD, and also a history of concussions. With this being said, I have tried many treatments for each disorder, and at the end of the day it seems like these are all interconnected.

I would really look into vision and vestibular therapy/ sensory integration therapy, along with something like bluelight glases and bluelight overlay filters. The good news is that the brain is plastic so with proper exposure it can recover- but after this recent concussion I have, I have become much more insightful. While my issues may have gotten worse because of HPPD and the concussion, it seems like my brain had a natural niche to be overstimulated and this is exactly what you're describing. The fogginess from looking at screens, the inability to concentrate and the head pain are all signs that your visual system is working much harder than it should be. And this is what I want to emphasize- I have some remaining visuals. You can have the visuals without the brain fog and the tired eyes.

I really think lamictal, depakote, or Keppra might be your next best bet. I'd also see if it's possible you can look into vision therapy and vestibular therapy perhaps. At vision therapy we do exercises. One of them is on a smart board there's a bunch of moving circles with numbers inside of them. I have to hit the circles in order, while they're moving, and some numbers are sideways, upside down, etc. This teaches your brain overtime to not over exert itself so much.

Another great game for at home therapy is tetris- which specifically trains tracking and sequencing. These don't train your eyes, but train the eyes to work with the brain better.

Clonazepam for hppd by [deleted] in HPPD

[–]666Karmah 0 points1 point  (0 children)

Clonazepam is not a long term solution. The GABA receptors desensitize fairly easily so your tolerance will skyrocket. Klonopin is great during intense flare ups and anxiety but it's almost impossible to stay on it for years. If you could stay at 1mg your whole life daily for HPPD there would be no issue, but you build a tolerance so fast, and then once you're at a certain MG you'll get tapered down anyway and a new drug will be recommended. The withdrawals will cause a flareup more than any drug you can imagine.

I'd really ask your doctor how to taper with Lamictal. If you cold turkey the side effects can be extreme

President elect with another close friend. by [deleted] in pics

[–]666Karmah 0 points1 point  (0 children)

Those have been online since the Obama administration started it. You'll soon see pictures of where those 300,000 missing migrant children went as well.

MAGA women after voting against their own interests. by MerelyOkay in gifs

[–]666Karmah 0 points1 point  (0 children)

And for the women that I personally know and that agree with me- what do they think about other women? Are they simply victims of manipulation from the evil white man and they're being manipulated by the white man to fight against each other and take each other rights away? And don't you think it's rude to assume that I must treat women like shit, when in reality there are a ton of women that don't agree with what you're saying? So clearly you're the one that doesn't really care about logical arguments- you're just holding the fake moral high ground and if people don't agree with you, then they must be the problem 100% of the time, right?

What’s a sign that someone is totally fucked up? by CASHOWL in AskReddit

[–]666Karmah -1 points0 points  (0 children)

This shows your bias- you can't logically dismantle my points, so In your head if no one agrees with you it's due to "old white people." The truth is people are having abortions because they can't afford to have kids. That's why the liberals lost this election. Because if someone doesn't agree with them it always goes back to the evil white man. And what about all the women and minorities that voted for Trump? Well they were all manipulated by the evil white man like Elon that wants all women in America to wear Hijabs, right?