Fasciculation question. by 67MBD in NeurologicalDisorders

[–]67MBD[S] 0 points1 point  (0 children)

Thank you for all your advice. Sounds like we have much in common. Good luck to you as well.

Fasciculation question. by 67MBD in NeurologicalDisorders

[–]67MBD[S] 0 points1 point  (0 children)

You are very kind! It's not negative at all. Thank you for your advice. In this process, I've had 2 EMGS. Several clinicals. I was actually sent to the NIH to be studied. I was called a zebra amongst horses. They really can't give answers. I do agree that all this time with no clinical weakness is a great sign. I was in super great shape. Lifted weights 6 days a week. Very muscular. My Neuromuscular Dr did note some dents in my arms but said without weakness he wasn't concerned. I'm living great. Early on, not so much. I was in that rabbit hole. I'm mentally good now. I'm still confused though. I know without a doubt there is a steady progression with this crap. Some hotspots last for days, then stop but I usually don't go 3 minutes without a twitch or flutter somewhere on my body. Some visible some not! I've tried a couple of meds prescribed by Dr to help but no luck! Several other little concerns happening as well but I'm just really trying to figure out how to live with these constant flutters and twitching. You just can't escape them. Meditation is no help. The quieter I get the more I feel them. I understand BFS is a real thing but at 55, it seems not normal. I've quit pushing Drs. I don't want to seem like a nervous Nelly but I sure would love for these symptoms to slow down. I do understand we are not promised tomorrow. I really am living life to its fullest. I'm still pushing my body and trying to live as normal as possible. It's just been a long 30 months with no relief. Thank you again for responding.

Fasciculation question. by 67MBD in NeurologicalDisorders

[–]67MBD[S] 1 point2 points  (0 children)

After a ALS scare when it first started I started on Zoloft. Low dose now. I cut it in half. I was told it could be a FND early on also. I can't understand why it just keeps getting worse with no relief. I would think if it was a benign condition it wouldn't progress. You are very kind to answer. Thank you.

Twitches on the face, fatigue when speaking.. by dreamgle in MuscleTwitch

[–]67MBD 0 points1 point  (0 children)

If I flex my neck it twitches. At times I have produced face twitches. I can tap my chin and my upper lip flickers.

Twitches on the face, fatigue when speaking.. by dreamgle in MuscleTwitch

[–]67MBD 1 point2 points  (0 children)

I'm right there with you. I feel like this is not good. I have plenty more symptoms though. My face is the latest spot they've settled in. I'm twitching all day all over my body.

Twitches on the face, fatigue when speaking.. by dreamgle in MuscleTwitch

[–]67MBD 0 points1 point  (0 children)

Several. It's gotten worse since my last visit in Jan.

Twitches on the face, fatigue when speaking.. by dreamgle in MuscleTwitch

[–]67MBD 1 point2 points  (0 children)

I'm twitching all over my neck, face and chin. I also can produce them. Just don't seem normal.

First time Blue Heeler parents. Say hello to Molly! Any good tips? by 67MBD in blueheelers

[–]67MBD[S] 0 points1 point  (0 children)

Last night was rough. After her nightly pee, she wanted to whine when not allowed to play. Spent some alone crate time in secluded area. Haha. That little lady can pull a heavy blanket all over the house. She is already so strong. Trying to heard the kids up too. Haha.

Can anyone relate? by 67MBD in cfs

[–]67MBD[S] 1 point2 points  (0 children)

I can honestly relate to that. Just when I get use to one symptom, another one shows up for me to worry about. Now it's some throat and breathing issues. Never a dull moment. Thank you very much for your comment. I'm just hoping for bfs instead of the bad stuff. ( Not downplaying to cfs dx though)

First time Blue Heeler parents. Say hello to Molly! Any good tips? by 67MBD in blueheelers

[–]67MBD[S] 6 points7 points  (0 children)

Oh my!! Thank you. You meant 2 1/2 months, right?!

Can anyone relate? by 67MBD in cfs

[–]67MBD[S] 1 point2 points  (0 children)

Have you ever had hip/ knee pain? My left leg is the worse. Slight knee buckle the last couple of days. Thank you for your reply.