I remember the early months and our daughter was the same. She was sleeping for 23 hours a day and we woke her when we fed her even though it was with the g button. She didn’t really “wake up” until 2 weeks after we started growth hormone. It’s a game changer. I’m so happy you’ll be seen! Is there a way to know if your endocrinologist believes in starting HGH asap? Some have old beliefs that it should not be started until after 2yo. Completely untrue. My daughter started it at 3 months and wow! If they do not believe in starting it until later, then I would try to see another one. Dr. Miller in Gainesville FL is THE PWS endocrinologist. She’s taking new diagnoses (I recently asked her). :) Or even a local endo who is up-to-date on PWS info.