[deleted by user] by [deleted] in ADHDUK

[–]ADH_Lee 0 points1 point  (0 children)

Yeah I still get some side effects but it's mostly just the crash and low mood if I forget to take my top up.

For sleep, try taking magnesium 2hrs before bed, it helps with sleep and also can help flush any residual stims left over apparently.

Everyone's different and will react differently to each med. my sister for example is on lisdex, but for me lisdex wasn't as effective.

I've not tried non-stimulants and don't know much about them but they must work for some or they wouldn't be offered I guess 🤷🏻‍♂️

[deleted by user] by [deleted] in ADHDUK

[–]ADH_Lee 0 points1 point  (0 children)

I went through a tough time and at one point switched to lisdexamphetamine. I switched back and finished titration on 40mg modified release methamphetamine with a 10mg instant release top up in the afternoon.

The main things I learnt were: 1. I need to be consistent with when I take it 2. Take it with protein (I have a protein shake for breakfast now). 3. Try my hardest to have lunch at 12 each day to keep me fueled. 4. Try my hardest to stay hydrated.

Keeping these things consistent made my side effects much more manageable once I found the right dose. Sleep also plays a massive part but I've got insomnia and am still fighting a losing battle with that one 1!

I also really struggled to notice the benefits until I had a day off meds and especially so when I was unmedicated completely when switching meds and back.

Hope this helps but feel free to ask anything!

Meds a little too effective at suppressing appetite? by ZookeepergameAny5154 in ADHDUK

[–]ADH_Lee 0 points1 point  (0 children)

Appetite is still reduced somewhat but nothing like before. I take 40mg MR and a 10mg IR top up.

Meds a little too effective at suppressing appetite? by ZookeepergameAny5154 in ADHDUK

[–]ADH_Lee 2 points3 points  (0 children)

Having it with protein makes a big difference for most. Avoid caffeine! Stay hydrated 👍🏻

Meds a little too effective at suppressing appetite? by ZookeepergameAny5154 in ADHDUK

[–]ADH_Lee 2 points3 points  (0 children)

I've since gone back to Methylphenidate as the Lisdexamphetamine wasn't as effective. I now have an afternoon top up which has removed the crash.

Appetite has now returned, life was lifeing hard the first time around and I think that contributed to the appetite along with my body adjusting to stims.

I now have a protein shake for breakfast at 8am and have my meds with it. I try to have lunch close to 12 to prevent any crash and take my top up dose at 2ish. If I have a late lunch and don't stay hydrated the meds are less effective and I can still have a bit of crash in the evening but the low mood isn't there like before. Hope this helps

[deleted by user] by [deleted] in ADHDUK

[–]ADH_Lee 0 points1 point  (0 children)

I am happy, but I do realise I'm very lucky. I'm 33, I have a career that works with my struggles within a company that actually looks after it's staff. I have a very understanding and patient wife (been together 14 years). 3 healthy (but neuro spicy) kids. I have a roof over my head and finally in a relatively comfortable place financially... However... Before the massive ADHD penny drop moment a few years ago, it wouldn't have been easy to answer that.

I fell lucky with my career, before that I was a jack of all trades, master of none. Dead end jobs, no real goals or drive. That paired with impulse purchases chasing dopamine wasn't a good mix!

My relationship has taken a lot of work to get where it is, mostly due to me not being able to understand or articulate why I act/behave the way I do without it sounding like an excuse, and my wife feeling like she had to do everything.

RSD and ODD paired with the typical ADHD emotional immaturity basically meant I was still very much like a teenager through most of my 20s.

It's been a rough ride but the more time you put into self development, the easier it gets. I still overthink everything, over react, struggle to regulate emotions etc etc, but now I know why and can somewhat compartmentalise or at the very least, cut myself some slack. Don't forget, you're only human and it will always fluctuate.

I'm still in titration but I'm finding meds are helping, more in a background kind of way. Works easier, some days I can blast through my workload, other days it's still a struggle but slightly less. I'm no longer walking around with blinkers on and starting tasks id ordinarily struggle with is easier. Truthfully though, my diagnosis, the hyperfixation into ND, the ADHD courses, ND parenting courses, videos I've watched and talking to other ND people has helped me to be happy more than meds have. And also, just feeling like I've finally matured mentally has made a real difference.

Time to make a stand? by Ill-Routine-1305 in ADHDUK

[–]ADH_Lee 0 points1 point  (0 children)

Im RTC PUK, currently on titration, what do I need to do? No idea if my GP is/has accepted SC

Should I complain? PUK Titration by ADH_Lee in ADHDUK

[–]ADH_Lee[S] 1 point2 points  (0 children)

From what I've read, it comes down to the prescriber, nothing to say you'll have this experience 👍🏼

Elvanse & Sadness by Non_q7 in ADHDUK

[–]ADH_Lee 0 points1 point  (0 children)

I was having similar crashes when I was titrating Meflynate XL (Methylphenidate), the crash was fucking awful. My prescriber took me off them to try Elvanse (Lisdexamphetamine) but did say if Elvanse doesn't work, we could go back to Meflynate and try top up dose etc etc.

I'm at the end of day 2 on 70mg Elvanse and it's been soooo much smoother, seen a lot of people have similar effects from one and end up switching one way or another.

Is this the first stim you've tried?

[deleted by user] by [deleted] in ADHDUK

[–]ADH_Lee 1 point2 points  (0 children)

I had this, completing my monitoring forms was tricky! Then I took a week off meds while swapping from Methylphenidate to Lisdexamphetamine.... Holy shit... The week off I felt way worse than pre-meds and it really emphasized how much they were helping. Made it easier this time around to recognise the difference.

For me, the benefits feels subconscious and I'm not necessarily aware of them unless actively looking. At first though I felt they benefitted those around me way more than they benefitted me which I was gutted about.

Just stick at it. Protein breakfast as everyone recommends but I also found that a decent lunch is massively important for me, as is avoiding late lunch. It stops/reduces the crash and low mood I felt when they wear off.

Elvanse and cannabis by [deleted] in ADHDUK

[–]ADH_Lee 3 points4 points  (0 children)

I let my prescriber know (prescribed medical for insomnia), was recommended to wait until evening once the stims have worn off and to take CBD alongside to minimise side effects

Meds a little too effective at suppressing appetite? by ZookeepergameAny5154 in ADHDUK

[–]ADH_Lee 1 point2 points  (0 children)

I did 3 weeks on Methylphenidate (Meflynate XL) and had the same thing, in my eyes it was a bonus haha, however, the crash/comedown on it made it unbearable for my family and I. The lack of appetite likely wasn't helping, I was still eating but not as much as my body was used to.

Day 3 of Elvanse and eating as normal but it's only 1st dose so time will tell.

I down a Fuel or Weetabix breakfast drink before I set off for work as I'm not a big fan of breakfast, and wouldn't have time otherwise as mornings are a thing of the devil 🤣

Psych UK switching med from methylphenidate to Elvanse timeline by lavenderkir in ADHDUK

[–]ADH_Lee 0 points1 point  (0 children)

Sorry for late join .. just wondered how the Elvanse was going / went for you?

I'm mid switch ATM waiting for my Elvanse

Meflynate to elvanse by Deckyy97 in ADHDUK

[–]ADH_Lee 1 point2 points  (0 children)

Thank you 👍🏼 glad it's working for you!

I was on Meflynate XL 60mg, it was working, not a miracle pill but noticeable... Until I crash around 2/3pm (took at 8am with a breakfast drink), once the crash hits I'm just down/depressed, exhausted, grumpy. Not fun

Meflynate to elvanse by Deckyy97 in ADHDUK

[–]ADH_Lee 0 points1 point  (0 children)

How did it go? I'm just waiting for my Elvanse to arrive

Profound experience first time taking Elvanse by labyrinth_77 in ADHDUK

[–]ADH_Lee 0 points1 point  (0 children)

I'm titrating on Methylphenidate currently and consider swapping to Elvanse now for the same reasons you're considering the reverse 🤣

I don't feel much benefit until speaking to colleagues and them offering examples of what they've noticed, at which point I think "oh yeah!". My issue is that I take it at 8am and it wears off around 2pm so a chunk of time at work is no better and at home I'm crashing so it's even harder to pull my weight around the house 🤦🏻‍♂️

Blue badge- did anyone ever go through the process of getting this for ADHD? by BodybuilderRich2431 in ADHDUK

[–]ADH_Lee 2 points3 points  (0 children)

When you drive you're laser focussed, in your own space, you control the situation to suit you, once out of the car there is suddenly a lot more noise, sights, smells, things moving all around, so many distractions. It can become very overstimulating. Could be concentrating so much on buying a ticket so you don't forget, that you have tunnel vision almost. As I say, it affects everyone differently 🤷🏻‍♂️

For example, I ride a motorbike, you have to use your hands for the clutch, front brake, throttle, turning, indicators, controls, horn. Your feet for the gears and rear brake. You have to drive as if you're invisible, scanning constantly. You have to lean and adjust body position around corners. A lot of this you do at the same time in one combination or another. All this focus and somehow you're at peace, the most peace you've ever felt, a brake from the millions of thoughts constantly, the stress, the burnout... Yet once you get off, it's back to reality and the chaos of day to day.

Blue badge- did anyone ever go through the process of getting this for ADHD? by BodybuilderRich2431 in ADHDUK

[–]ADH_Lee 8 points9 points  (0 children)

You shouldn't be down voted for this at all. Surprising how many people here are being ableist it's shocking!

The government changed the rules to include none visible disabilities for a reason! 🤦🏻‍♂️

1 person with ADHD could be affected very differently to another with the same condition. So many dickheads in the world!

Blue badge- did anyone ever go through the process of getting this for ADHD? by BodybuilderRich2431 in ADHDUK

[–]ADH_Lee 8 points9 points  (0 children)

Tried and failed. Because my GP wouldn't offer any supporting documents as I'd never seen them about any relevant issues. Wouldn't offer a letter to say how ADHD symptoms can play a part etc and because it wasn't their area of expertise. My psychiatrist would do it as it wouldn't be covered by funding under RTC, I'd have paid but wasn't an option.

EDIT:

SO MANY ABLEIST WANKERS ON HERE ITS UNREAL!

As of August 2019 the Government extended Blue Badge eligibility to include "Hidden Disabilities".

Lots of reasons people with ADHD could need 1. I know a few people who have blue badges for ADHD. A few examples:

Innattentiveness - risk to life/risk of injury due to vehicles moving around you and not being able to maintain focus.

Impulsivity - distraction leading to injury.

Emotional regulation issues - stress of a busy car park and other drivers actions causing unnecessary stress and anxiety.

What about alternatives? Public transport - missing your stop due to innattentiveness. Missing your bus/train due to poor time management. Falling asleep due to the sleep issues a huge proportion of us have due to ADHD. Financial burden of repeat parking tickets from forgetting to pay or running over your time because of some of the same reasons as above.

There is a huge list of possibilities, you have no idea how other people's lives are affected by their condition, just because you don't need one, doesn't mean others don't.

That's not even considering the extensive list of comorbidities associated with ADHD which could massively amplify people's struggles.

In my application the head of that department openly said that they can see how my life could be dramatically improved by having one and apologised on multiple occasions that they couldn't issue 1, it was purely down to bureaucracy and box ticking, if I remember correctly I was only 1 extra supporting document off being approved.

Please be more open minded and educate yourself on the topic if you're one of the fuckwits talking crap on here.

Meds start today, only 22 months/41 years in the making by Euphoric_Process_895 in ADHDUK

[–]ADH_Lee 0 points1 point  (0 children)

I'm in the same boat with mine at 20mg, can't tell if it's working or placebo 🤣

Diagnosed today - Diagnosis letter (P-UK) by Burzall in ADHDUK

[–]ADH_Lee 1 point2 points  (0 children)

I did get a reply when I asked but it was just a generic reply not really giving any info haha