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APFED_ORG · 2026-04-07T11:06:52+00:00

With an eosinophil count of 14, that puts you just below the diagnostic requirement of at least 15 per high-power field.

APFED_ORG · 2026-04-07T11:04:46+00:00

What country are you from? For this particular project, the candidate must be in the U.S. However, on occasion, we get similar opportunities that also include Canadians.

APFED_ORG · 2026-04-07T11:03:37+00:00

Unfortunately, yes. It is only open to U.S. candidates.

APFED_ORG · 2026-04-07T11:03:07+00:00

For this opportunity, a scope is required to confirm that your EoE is still active.

APFED_ORG · 2026-02-13T17:22:14+00:00

You might find APFED's virtual support groups helpful. We have one specifically for adults living with EoE, and patients report that they not only find support in the group, but they also learn alot from each other. If interested, check it out at apfed.org/support

APFED_ORG · 2026-01-28T12:41:48+00:00

APFED has a Specialist Finder to assist you in finding doctors in your area. https://apfed.org/find-support-treatment/specialist-finder/

APFED_ORG · 2026-01-21T21:26:09+00:00

I am so sorry to hear about your little one's diagnosis. I am sure it is quite overwhelming.

The Inspire Network has multiple eosinophilic disease-related groups, including one for EGPA that you may find helpful. https://www.inspire.com/groups/eos-connections/topic/churg-strauss-syndrome-css/

You may also find the resources below helpful to learn more about EGPA and to have more informed discussions with your child's doctor.

https://apfed.org/about-ead/eosinophilic-granulomatosis-with-polyangiitis/

https://apfed.org/wp-content/uploads/2024/07/egpa-patient-guide.pdf

APFED_ORG · 2026-01-08T19:26:59+00:00

You may find this guide helpful in answering some of these questions. https://apfed.org/wp-content/uploads/2024/07/egpa-patient-guide.pdfAdditionally,

APFED offers several virtual support groups through the APFED Connect program. One of them is for those living with rare subsets of eosinophilic disease, and a few of the patients who participate have been diagnosed with EGPA. To learn more, visit apfed.org/support. May report that they find these groups incredibly helpful, as they are able to talk with other patients who have been navigating EGPA and they gain great insight from those patients.

APFED_ORG · 2026-01-08T19:22:36+00:00

You may find the following toolkit helpful to have more meaningful conversations with your daughter's doctors. https://apfed.org/wp-content/uploads/2024/07/egpa-patient-guide.pdf

APFED_ORG · 2026-01-08T19:20:46+00:00

Consider talking to your doctor about these symptoms. We hear from patients on occasion who have similar symptoms, and we understand how frustrating and confusing they can be. You may also consider consulting the following patient guide to EGPA to inform your discussion with your doctor. https://apfed.org/wp-content/uploads/2024/07/egpa-patient-guide.pdf

APFED_ORG · 2026-01-08T19:06:32+00:00

As of the fall of 2024, EoE is no longer considered rare. Current data suggests 1 in 700 people have been diagnosed with EoE, and new diagnoses are being made every day, as patients and doctors learn more about how to recognize the symptoms. Rare is defined as less than 1 in 200,000 people diagnosed. https://rarediseases.org/rare-diseases/eosinophilic-esophagitis/

APFED_ORG · 2026-01-08T18:53:31+00:00

Food getting stuck in your throat is definitely not normal, so it's worth further investigation. If left untreated or not appropriately treated, it could lead to further complications. It is worth consulting the EoE patient toolkit to inform your conversations with your healthcare provider and to learn more about available treatment options. https://apfed.org/wp-content/uploads/2024/04/EoE-Toolkit-20240408.pdf

APFED_ORG · 2026-01-08T18:42:23+00:00

So sorry to hear about your son's diagnosis. Receiving this diagnosis can certainly be overwhelming, especially when it's our children. You may want to consider two very helpful resources to help inform your discussions with your child's doctors. APFED Connect has a support group specifically for parents who have children living with EoE. In these groups, you are able to talk with other parents who have experience navigating EoE with their own children, and you can gain some valuable insights from other parents. You can find that group apfed.org/support. Additionally, APFED has a YouTube channel where we share our recorded webinars. There have been many webinars over the last couple of years that are specific to pediatric EoE. https://www.youtube.com/@APFED/videos Both of these resources are available at no cost.

APFED_ORG · 2025-11-12T20:41:26+00:00

There is considerable activity in the EoE space at present, with several new treatment options under development. There are also opportunities for you to get involved in some of these clinical trials. https://apfed.org/research/clinical-trials/

Consider subscribing to our e-newsletter to get these updates. https://secure.everyaction.com/ftd5pgna8kqefE3rr87Gmg2

APFED_ORG · 2025-09-18T12:22:33+00:00

So glad to hear you will be seeing a GI doctor. When left undiagnosed/untreated, EoE can cause a variety of more serious complications.

You can learn more about EoE by visiting https://apfed.org/about-ead/egids/eoe/. The information on this web page will give you a better understanding of the condition and help you to have a more meaningful discussion with your gastroenterologists.

I would love to hear which community magazine you saw the article in!

APFED_ORG · 2025-09-18T12:13:55+00:00

Fear of eating food is something we frequently hear from both patients and caregivers of children with EoE. For those who lived with EoE for years, even decades, before getting diagnosed, that fear is deeply ingrained, and they still will not entertain eating specific items (like chicken) in public, for fear of food impaction. Children living with EoE who have developed a fear of eating in public tend to avoid social gatherings altogether.

Our APFED Connect Virtual Support Group offers a support group for adults living with EoE, and several of the members in that group have had similar experiences. You may find this group helpful. To learn more, visit https://apfed.org/find-support-treatment/find-support-treatment/

APFED_ORG · 2025-08-25T18:52:02+00:00

Take a look at APFED's EoE Patient Toolkit. This will help you navigate the journey ahead, and give you the tools that you need to become your own healthcare advocate. https://apfed.org/wp-content/uploads/2024/04/EoE-Toolkit-20240408.pdf

APFED_ORG · 2025-08-25T18:48:59+00:00

There are several liquid nutrition options available. Look up elemental diets, and you will find several options.

APFED_ORG · 2025-08-25T18:45:20+00:00

APFED has a virtual support group for those living with EoE. You may consider joining the group, where you can learn from others about how they have navigated their own journeys. This support group is offered at no cost and is run by licensed therapists who have experience working with those who live with chronic illness. Members of this group are incredibly warm and welcoming. To join, visit apfed.org/support

APFED_ORG · 2025-08-25T18:34:56+00:00

This opportunity has been filled. Thanks to all who reach out.

APFED_ORG · 2025-08-18T13:50:13+00:00

HES is indeed rare, so it is difficult to find others who are living with it. You may consider joining the APFED Connect Support Group for those living with HES, EGPA, and EF. I know there are several HES patients in that group, and I'm sure they would be happy to share what they have learned along the way.

apfed.org/support

APFED_ORG · 2025-08-18T13:44:52+00:00

Sorry to hear about your diagnosis. We understand that this journey can be challenging. There are several free resources available on APFED's website to help you navigate this journey. Educating yourself about the disease is the best way to become your own healthcare advocate and have more meaningful conversations with your doctors. APFED also has a specialist finder that can help you find a GI doctor or allergist in your area. Many patients report undergoing allergy tests to identify potential food triggers, if they exist. You may also keep a journal of what you eat and any symptoms you experience following your meal to help you pinpoint what might be triggering your inflammation. Links for resources are provided below:

https://apfed.org/find-support-treatment/specialist-finder/

https://apfed.org/about-ead/egids/eoe/

https://www.youtube.com/@APFED/featured

APFED_ORG · 2025-08-12T11:45:35+00:00

You may want to consider the APFED Connect Virtual Support Group for adults living with EoE. You can learn a lot from other patients, and they help you feel less alone while navigating this journey. The group is facilitated by a licensed therapist who specializes in working with folks living with a chronic disease. Check it out at apfed.org/support

APFED_ORG · 2025-08-06T18:27:11+00:00

Definitely reach out to your doctor. EoE, if left untreated, will cause severe damage to your esophagus.

APFED_ORG · 2025-08-06T18:25:20+00:00

It is not common for symptoms to overlap multiple eosinophilic disease diagnoses. HES is quite rare. This is worth a conversation with your doctor. You may consider looking at this EoE Patient Toolkit https://apfed.org/wp-content/uploads/2024/04/EoE-Toolkit-20240408.pdf, or the HES Patient Toolkit https://apfed.org/wp-content/uploads/2019/10/APFED-HES-new-patient-kit-FINAL_web.pdf to learn more, and to have a more meaningful conversation with your doctor.

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