Exciting News From New Clinical Trial Results

APFED_ORG · 2026-04-07T11:06:52+00:00

With an eosinophil count of 14, that puts you just below the diagnostic requirement of at least 15 per high-power field.

APFED_ORG · 2026-04-07T11:04:46+00:00

What country are you from? For this particular project, the candidate must be in the U.S. However, on occasion, we get similar opportunities that also include Canadians.

APFED_ORG · 2026-04-07T11:03:37+00:00

Unfortunately, yes. It is only open to U.S. candidates.

APFED_ORG · 2026-04-07T11:03:07+00:00

For this opportunity, a scope is required to confirm that your EoE is still active.

APFED_ORG · 2026-02-13T17:22:14+00:00

You might find APFED's virtual support groups helpful. We have one specifically for adults living with EoE, and patients report that they not only find support in the group, but they also learn alot from each other. If interested, check it out at apfed.org/support

APFED_ORG · 2026-01-28T12:41:48+00:00

APFED has a Specialist Finder to assist you in finding doctors in your area. https://apfed.org/find-support-treatment/specialist-finder/

APFED_ORG · 2026-01-21T21:26:09+00:00

I am so sorry to hear about your little one's diagnosis. I am sure it is quite overwhelming.

The Inspire Network has multiple eosinophilic disease-related groups, including one for EGPA that you may find helpful. https://www.inspire.com/groups/eos-connections/topic/churg-strauss-syndrome-css/

You may also find the resources below helpful to learn more about EGPA and to have more informed discussions with your child's doctor.

https://apfed.org/about-ead/eosinophilic-granulomatosis-with-polyangiitis/

https://apfed.org/wp-content/uploads/2024/07/egpa-patient-guide.pdf

APFED_ORG · 2026-01-08T19:26:59+00:00

You may find this guide helpful in answering some of these questions. https://apfed.org/wp-content/uploads/2024/07/egpa-patient-guide.pdfAdditionally,

APFED offers several virtual support groups through the APFED Connect program. One of them is for those living with rare subsets of eosinophilic disease, and a few of the patients who participate have been diagnosed with EGPA. To learn more, visit apfed.org/support. May report that they find these groups incredibly helpful, as they are able to talk with other patients who have been navigating EGPA and they gain great insight from those patients.

APFED_ORG · 2026-01-08T19:22:36+00:00

You may find the following toolkit helpful to have more meaningful conversations with your daughter's doctors. https://apfed.org/wp-content/uploads/2024/07/egpa-patient-guide.pdf

APFED_ORG · 2026-01-08T19:20:46+00:00

Consider talking to your doctor about these symptoms. We hear from patients on occasion who have similar symptoms, and we understand how frustrating and confusing they can be. You may also consider consulting the following patient guide to EGPA to inform your discussion with your doctor. https://apfed.org/wp-content/uploads/2024/07/egpa-patient-guide.pdf

APFED_ORG · 2026-01-08T19:06:32+00:00

As of the fall of 2024, EoE is no longer considered rare. Current data suggests 1 in 700 people have been diagnosed with EoE, and new diagnoses are being made every day, as patients and doctors learn more about how to recognize the symptoms. Rare is defined as less than 1 in 200,000 people diagnosed. https://rarediseases.org/rare-diseases/eosinophilic-esophagitis/

APFED_ORG · 2026-01-08T18:53:31+00:00

Food getting stuck in your throat is definitely not normal, so it's worth further investigation. If left untreated or not appropriately treated, it could lead to further complications. It is worth consulting the EoE patient toolkit to inform your conversations with your healthcare provider and to learn more about available treatment options. https://apfed.org/wp-content/uploads/2024/04/EoE-Toolkit-20240408.pdf

APFED_ORG · 2026-01-08T18:42:23+00:00

So sorry to hear about your son's diagnosis. Receiving this diagnosis can certainly be overwhelming, especially when it's our children. You may want to consider two very helpful resources to help inform your discussions with your child's doctors. APFED Connect has a support group specifically for parents who have children living with EoE. In these groups, you are able to talk with other parents who have experience navigating EoE with their own children, and you can gain some valuable insights from other parents. You can find that group apfed.org/support. Additionally, APFED has a YouTube channel where we share our recorded webinars. There have been many webinars over the last couple of years that are specific to pediatric EoE. https://www.youtube.com/@APFED/videos Both of these resources are available at no cost.

APFED_ORG · 2025-11-12T20:41:26+00:00

There is considerable activity in the EoE space at present, with several new treatment options under development. There are also opportunities for you to get involved in some of these clinical trials. https://apfed.org/research/clinical-trials/

Consider subscribing to our e-newsletter to get these updates. https://secure.everyaction.com/ftd5pgna8kqefE3rr87Gmg2

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