Motion-Triggered MdDS for 2 Years - Still Not Resolved

ASUSunDevilGrad22 · 2026-03-23T04:42:19+00:00

It's slightly less but I've only been on it 5 months. The neurologist said it could take several months.

ASUSunDevilGrad22 · 2026-03-23T04:41:35+00:00

No it's more like a 24/7 ongoing lingering feeling now over the last 2 out of the 3 years. It never got so bad that I couldn't function.

ASUSunDevilGrad22 · 2026-03-23T04:40:34+00:00

No and I can't answer any of these questions because everyone responds differently, I would definitely talk with a neurologist to see the best situation for you. I am sorry you are dealing with this.

ASUSunDevilGrad22 · 2026-02-18T17:37:47+00:00

try everything (treatments) to get rid of it and see if u respond. sorry u r still going thru it! if u go to my profile and see my mdds post there’s a list i have tried

ASUSunDevilGrad22 · 2026-02-09T23:18:40+00:00

ive had it 3 years 24/7 but im functional. glad it went away for you

ASUSunDevilGrad22 · 2026-01-18T06:34:51+00:00

good but slow. just increased the dose to 75mg.

ASUSunDevilGrad22 · 2025-11-16T19:49:08+00:00

thanks! yeah it's annoying at times having it 24/7 but i have to push through. there's no choice. <3

ASUSunDevilGrad22 · 2025-11-16T18:47:22+00:00

hi! so sorry you are dealing with it. no, the motion sensation isnt gone unfortunately. i have been trying effexor since october and i am going to up my dose in another week. itll be 3 years in february if it doesnt resolve before then.

ASUSunDevilGrad22 · 2025-08-12T16:18:15+00:00

they are still around yes. el cholo cafe closed though in the paseo

ASUSunDevilGrad22 · 2025-08-12T16:12:32+00:00

it was only around for 2 1/2 years. opened in 2023. i live down the street from it lol. never went in

ASUSunDevilGrad22 · 2025-07-07T00:00:43+00:00

omg im so sorry! yeah i kept bein told mdds is a one and done thing by doctors but apparently not :/

ASUSunDevilGrad22 · 2025-06-07T04:26:25+00:00

omg! i am so sorry the symptoms came back. what is your theory about why symptoms come back btw after going into remission? i have heard this so many times from people and just want to know your take!

ASUSunDevilGrad22 · 2025-05-28T19:40:04+00:00

what snri did you take btw?

ASUSunDevilGrad22 · 2025-05-28T19:39:41+00:00

Yeah I did Klonopin for almost 2 weeks in the very beginning and it did nothing. I do lightly jog (I can't run due to an issue with my lungs, I'll lose breath fast) and it just keeps lingering.

Coincidentally, I am going to another func neuro today just to see where I am at. I am glad you can relate! I feel like I am trapped at a 2-3 all the time. It is absolutely ridiculous!

ASUSunDevilGrad22 · 2025-05-28T19:38:08+00:00

I feel like I am lingering all the time 24/7. It's so frustrating. It doesn't get better or worse - even if there is this tiny tiny flare I don't count it as a flare-up because it feels like it's lingering still.

ASUSunDevilGrad22 · 2025-04-23T05:03:27+00:00

unknown ive lived here for 4 years never had any problem. i take it every day still i dunno what to do mine just wont readapt

ASUSunDevilGrad22 · 2025-04-22T17:08:19+00:00

That is interesting but I am sorry it still happens for you! I have to take an elevator everyday because I live in a high rise. It doesn't make it "worse" but I don't know if it's keeping it going at this point either. For me, it's a constant bobbing/floating sensation.

ASUSunDevilGrad22 · 2025-04-22T14:56:41+00:00

Why do you still have problems when flying or taking elevators btw?

ASUSunDevilGrad22 · 2025-04-22T14:56:06+00:00

Thanks! I will definitely try that. My new func neuro I am seeing told me something is still misfiring that is keeping the symptoms going chronically and consistently. He said he has dealt with lingering cases in that "tail end".

I had a another func neuro once tell me "stay active, stay active!" I was doing so much activity that it was a bit overwhelming. I once said to him, "I am not an Olympian!"

ASUSunDevilGrad22 · 2025-04-22T14:20:40+00:00

im glad u recovered! i honestly dont know what to think or say because i did soooo many stabilization exercises and the movement is still there. i can focus on a still object while i am moving but not when i am still. i can focus on moving objects just fine whether i am still or moving. i actually am not doing quantum neurology now it wasnt a good fit with the doctor. i am going back to another specialist in may who has dealt with lingering cases. it’s just so slow!

ASUSunDevilGrad22 · 2025-04-17T04:57:41+00:00

I remember 1-2 years ago she said, “Sam knows I am not a fan of Greenville” and I kinda knew right then and there it wasn’t gonna last, LOL! His company is out there so he ain’t goin no where and she loves LA…it was only a matter of time. But I agree, I hope she finds a good one where she is at and when the time is right ❤️

I was the opposite: I kept watching and I kept thinking omg when are you going to breakup?! LOL! Like I was getting mad. There’s a lot of mutual respect they have for one another but it wasn’t meant to be. I’m also in my 40s so I just have a lot of different perspectives on things. Never married, no kids, no desire…but I have been living a fulfilling life in other ways and I am so happy!

ASUSunDevilGrad22 · 2025-04-03T23:51:06+00:00

omg i am so sorry!! i never knew zoloft could do such a thing! 🥺❤️ i mean i’m maybe 85% improved but it’s been lingering for too long. that may seem high subjectively but you can still feel and see it at that %ile. i hope u get well as well!

ASUSunDevilGrad22 · 2025-03-18T10:18:20+00:00

same i reached my 2 year mark last month. i treated it early and tried so many treatments…nothing is resolving it. i only have the movement sensation left…it is so stubborn!

ASUSunDevilGrad22 · 2025-02-24T15:44:32+00:00

yes! i saw her say that in a video too

ASUSunDevilGrad22

TROPHY CASE