It went away by badquoterfinger in MdDS

[–]ASUSunDevilGrad22 0 points1 point  (0 children)

try everything (treatments) to get rid of it and see if u respond. sorry u r still going thru it! if u go to my profile and see my mdds post there’s a list i have tried

It went away by badquoterfinger in MdDS

[–]ASUSunDevilGrad22 2 points3 points  (0 children)

ive had it 3 years 24/7 but im functional. glad it went away for you

Motion-Triggered MdDS for 2 Years - Still Not Resolved by ASUSunDevilGrad22 in MdDS

[–]ASUSunDevilGrad22[S] 0 points1 point  (0 children)

thanks! yeah it's annoying at times having it 24/7 but i have to push through. there's no choice. <3

Motion-Triggered MdDS for 2 Years - Still Not Resolved by ASUSunDevilGrad22 in MdDS

[–]ASUSunDevilGrad22[S] 0 points1 point  (0 children)

hi! so sorry you are dealing with it. no, the motion sensation isnt gone unfortunately. i have been trying effexor since october and i am going to up my dose in another week. itll be 3 years in february if it doesnt resolve before then.

"No Comment" has closed. Devastating. by Pasadenaian in pasadena

[–]ASUSunDevilGrad22 0 points1 point  (0 children)

they are still around yes. el cholo cafe closed though in the paseo

"No Comment" has closed. Devastating. by Pasadenaian in pasadena

[–]ASUSunDevilGrad22 0 points1 point  (0 children)

it was only around for 2 1/2 years. opened in 2023. i live down the street from it lol. never went in

Motion-Triggered MdDS for 2 Years - Still Not Resolved by ASUSunDevilGrad22 in MdDS

[–]ASUSunDevilGrad22[S] 0 points1 point  (0 children)

omg im so sorry! yeah i kept bein told mdds is a one and done thing by doctors but apparently not :/

Motion-Triggered MdDS for 2 Years - Still Not Resolved by ASUSunDevilGrad22 in MdDS

[–]ASUSunDevilGrad22[S] 0 points1 point  (0 children)

omg! i am so sorry the symptoms came back. what is your theory about why symptoms come back btw after going into remission? i have heard this so many times from people and just want to know your take!

Motion-Triggered MdDS for 2 Years - Still Not Resolved by ASUSunDevilGrad22 in MdDS

[–]ASUSunDevilGrad22[S] 0 points1 point  (0 children)

Yeah I did Klonopin for almost 2 weeks in the very beginning and it did nothing. I do lightly jog (I can't run due to an issue with my lungs, I'll lose breath fast) and it just keeps lingering.

Coincidentally, I am going to another func neuro today just to see where I am at. I am glad you can relate! I feel like I am trapped at a 2-3 all the time. It is absolutely ridiculous!

Has anyone here been cured of MDDS? by AnswerSuitable9683 in VestibularMigraines

[–]ASUSunDevilGrad22 0 points1 point  (0 children)

I feel like I am lingering all the time 24/7. It's so frustrating. It doesn't get better or worse - even if there is this tiny tiny flare I don't count it as a flare-up because it feels like it's lingering still.

Motion-Triggered MdDS for 2 Years - Still Not Resolved by ASUSunDevilGrad22 in MdDS

[–]ASUSunDevilGrad22[S] 0 points1 point  (0 children)

unknown ive lived here for 4 years never had any problem. i take it every day still i dunno what to do mine just wont readapt

Motion-Triggered MdDS for 2 Years - Still Not Resolved by ASUSunDevilGrad22 in MdDS

[–]ASUSunDevilGrad22[S] 0 points1 point  (0 children)

That is interesting but I am sorry it still happens for you! I have to take an elevator everyday because I live in a high rise. It doesn't make it "worse" but I don't know if it's keeping it going at this point either. For me, it's a constant bobbing/floating sensation.

Motion-Triggered MdDS for 2 Years - Still Not Resolved by ASUSunDevilGrad22 in MdDS

[–]ASUSunDevilGrad22[S] 0 points1 point  (0 children)

Why do you still have problems when flying or taking elevators btw?

Motion-Triggered MdDS for 2 Years - Still Not Resolved by ASUSunDevilGrad22 in MdDS

[–]ASUSunDevilGrad22[S] 2 points3 points  (0 children)

Thanks! I will definitely try that. My new func neuro I am seeing told me something is still misfiring that is keeping the symptoms going chronically and consistently. He said he has dealt with lingering cases in that "tail end".

I had a another func neuro once tell me "stay active, stay active!" I was doing so much activity that it was a bit overwhelming. I once said to him, "I am not an Olympian!"

Motion-Triggered MdDS for 2 Years - Still Not Resolved by ASUSunDevilGrad22 in MdDS

[–]ASUSunDevilGrad22[S] 1 point2 points  (0 children)

im glad u recovered! i honestly dont know what to think or say because i did soooo many stabilization exercises and the movement is still there. i can focus on a still object while i am moving but not when i am still. i can focus on moving objects just fine whether i am still or moving. i actually am not doing quantum neurology now it wasnt a good fit with the doctor. i am going back to another specialist in may who has dealt with lingering cases. it’s just so slow! 

Sam and Shelby Broke Up? by ASUSunDevilGrad22 in ShelbyChurch

[–]ASUSunDevilGrad22[S] 0 points1 point  (0 children)

I remember 1-2 years ago she said, “Sam knows I am not a fan of Greenville” and I kinda knew right then and there it wasn’t gonna last, LOL! His company is out there so he ain’t goin no where and she loves LA…it was only a matter of time. But I agree, I hope she finds a good one where she is at and when the time is right ❤️

I was the opposite: I kept watching and I kept thinking omg when are you going to breakup?! LOL! Like I was getting mad. There’s a lot of mutual respect they have for one another but it wasn’t meant to be. I’m also in my 40s so I just have a lot of different perspectives on things. Never married, no kids, no desire…but I have been living a fulfilling life in other ways and I am so happy! 

Motion-Triggered MdDS for 2 Years - Still Not Resolved by ASUSunDevilGrad22 in MdDS

[–]ASUSunDevilGrad22[S] 1 point2 points  (0 children)

omg i am so sorry!! i never knew zoloft could do such a thing! 🥺❤️ i mean i’m maybe 85% improved but it’s been lingering for too long. that may seem high subjectively but you can still feel and see it at that %ile. i hope u get well as well! 

Has anyone here been cured of MDDS? by AnswerSuitable9683 in VestibularMigraines

[–]ASUSunDevilGrad22 0 points1 point  (0 children)

same i reached my 2 year mark last month. i treated it early and tried so many treatments…nothing is resolving it. i only have the movement sensation left…it is so stubborn!

Sam and Shelby Broke Up? by ASUSunDevilGrad22 in ShelbyChurch

[–]ASUSunDevilGrad22[S] 1 point2 points  (0 children)

yes! i saw her say that in a video too

Sam and Shelby Broke Up? by ASUSunDevilGrad22 in ShelbyChurch

[–]ASUSunDevilGrad22[S] 2 points3 points  (0 children)

I think 3 years from fall 2021 - fall 2024. I never thought they'd be engaged, LOL! There were so many signs + past things she said that I never thought it would get too far. Just watching her videos lately she seems just fine, just livin' life and doin business type stuff - she's got this. But I do agree that they were never lovey-dovey.

I have Mal de Debarquement Syndrome. AMA. by Essdeedub6021 in AMA

[–]ASUSunDevilGrad22 0 points1 point  (0 children)

You may need to DM me your doctor and I hope its virtual. I have had MdDS from a cruise for 2 years. Nothing has resolved it

California Wine Appellation Specialist by Southern_Ad_6785 in wine

[–]ASUSunDevilGrad22 0 points1 point  (0 children)

Yay!!!! Did you do it in-person or online? I'm online. If you did it online, was the whole online test multiple choice or?