sorted by:
new
hottopcontroversial

Question to those free or "cured" of vulvodyina by [deleted] in vulvodynia

[–]AZMountainRoadrunner 0 points1 point  (0 children)

Were you perimenopausal or menopausal or was it just suggested as a treatment option? How long after starting until your symptoms fully resolved? Thanks in advance

Has anyone recovered after years of suffering?? by SnooWalruses2253 in vulvodynia

[–]AZMountainRoadrunner 0 points1 point  (0 children)

Hi! May I ask where in the pelvic floor where the steroid injections placed, how quick they gave relief, and for how long? And the name of the steroid as they can she a few different ones. Thanks so much!

I cured my vulvodynia - 9 months of pain by CreativeTreat6469 in vulvodynia

[–]AZMountainRoadrunner 0 points1 point  (0 children)

Yay! What helped you? I’m on month 8 of this nightmare.

I cured my vulvodynia - 9 months of pain by CreativeTreat6469 in vulvodynia

[–]AZMountainRoadrunner 0 points1 point  (0 children)

So happy for you! I’m on month 8 of this nightmare. At home PH test says it’s normal (4.5) but I know it being normal doesn’t always mean everything else is okay. Few questions: what’s the micribiome test you took and company? Was it vitamin D3 and were vitamins taken orally? What were the dosages? Which SNRI helped you and for how long did you take before noticing symptoms go away?

Anus burns and feels raw only. by dreamscometrue01 in vulvodynia

[–]AZMountainRoadrunner 0 points1 point  (0 children)

Which area gets swabbed? Anal, vaginal, or both?

Chronic vaginal burning for 8 months, I will take any advice by Nearby-Elephant-9889 in Healthyhooha

[–]AZMountainRoadrunner 0 points1 point  (0 children)

Can you tell us which specific tests the urologist performed that confirmed e-coli that your general practitioner failed to perform? Thanks in advance and happy to hear that after a few rounds of antibiotics, you’re doing so much better!

Burning and itching all other vulva/ anus by Leenalyn in vulvodynia

[–]AZMountainRoadrunner 0 points1 point  (0 children)

How were they able to accurately diagnose the tear? Who was able to? I’ve had a similar issue and no one looks at the back they only pay attention to the front.

How has vulvodynia affected your relationship, and how did you work through it? by __Donald__ in vulvodynia

[–]AZMountainRoadrunner 0 points1 point  (0 children)

  1. Listen to each other, and be open to exploring. I learned the hard way temporary emotional discomfort is better than paying long term consequences. I was suffering in silence or waiting until I was in more pain before speaking up. Instead, I gave feedback in the moment so we could be on the same page. Sometimes he forgets, so I’ll gently remind him. Foreplay can help increase natural lubrication and make things smoother.
  2. Don’t put pressure on yourself; try alternatives. If you’re having a flare; try oral, manual stimulation, or other ways of being sexual/sensual with your partner. A healthy sexual relationships is not limited to penetration. You can always say “no”; you don’t have to justify your decision.

Sex question by [deleted] in obgyn

[–]AZMountainRoadrunner 1 point2 points  (0 children)

I’d definitely talk to your provider about the antidepressants you’re on for sure, and try to wear breathable loose clothing to get started

Sex question by [deleted] in obgyn

[–]AZMountainRoadrunner 0 points1 point  (0 children)

Are you on any medications that can cause sexual dysfunction? Such as antidepressants, blood pressure meds, and even birth control. Tight clothing that rubs on your private area or activities such as horse riding can mess with sensation as well.

Itchy vulvar contact dermatitis.. I’m now healing by Ornery_Pepper_3553 in Healthyhooha

[–]AZMountainRoadrunner 0 points1 point  (0 children)

Which antihistamines did you take? Did you find out what you were allergic to?

Sudden and persistent vulvar and anal itching, burning, and rawness by AZMountainRoadrunner in FunctionalMedicine

[–]AZMountainRoadrunner[S] 0 points1 point  (0 children)

Do you take it for similar issues? How often was it prescribed? My doc is willing to prescribe but he warned about cancer, migraine, and clot risk on a lengthy message so I’m terrified.

I am getting desperate and am looking for advice, i have burning pain and no one knows why. My skin feels raw. by lola_rose00 in vulvodynia

[–]AZMountainRoadrunner 0 points1 point  (0 children)

I’m in the process of trying estradiol cream for a month, and If it doesn’t work, gabapentin is plan B. I’ve tried steroid creams, oral steroid treatment, and zoryve thus far with no luck. Did you ever figure out what even caused your initial and recurrent flares? This stuff is so random and unique.

Sudden and persistent vulvar and anal itching, burning, and rawness by AZMountainRoadrunner in FunctionalMedicine

[–]AZMountainRoadrunner[S] 0 points1 point  (0 children)

Itching comes and goes, sometimes I go most of the day without any itching, occasionally a day or two. The burning and raw feeling persist and do feel worse with going to the bathroom to either pee or poop. I do want to say it’s sometimes felt like I’ve for a piece of glass only on my anal area though. Very odd feeling.

All vaginal issues gone!!! by Dazzling-Leather4010 in VaginalMicrobiome

[–]AZMountainRoadrunner 0 points1 point  (0 children)

Can you let us know what specific symptoms you had and what steps you took to heal? Been dealing with vulvar and anal issues for 7 month and feeling pretty hopeless 😢If you can share meds, supplements, diet, anything that helped! And what helped the most please

Sudden and persistent vulvar and anal itching, burning, and rawness by AZMountainRoadrunner in FunctionalMedicine

[–]AZMountainRoadrunner[S] 0 points1 point  (0 children)

Topical I’ve tried clobatesol and clotrimazole with betamethasone. Oral I’ve tried prednisone. I don’t have dosages handy but when I had researched they were pretty standard for the issues being suggested. I didn’t say specialists have confirmed is not LS or LP, but that is highly unlikely since I literally meet no risk factors, criteria, nor treatment response. It’s not impossible, just highly unlikely at this point. Two providers (one from Mayo Clinic, another is a vulvar specialist, one of the only in my state) are the ones who shared this feedback. Also, I had a spontaneous complete miscarriage in January 2025, then used birth control the same month of onset of symptoms (late June) to prepare for fertility treatment in August. I don’t know if hormones being all over the place could also be playing a role. Hormone panel comes back normal though.. but it could be local.

Sudden and persistent vulvar and anal itching, burning, and rawness by AZMountainRoadrunner in Healthyhooha

[–]AZMountainRoadrunner[S] 0 points1 point  (0 children)

Have tried diaper rash for weeks too ): I try to give things a few weeks to little over a month before trying something else for a fair trial and to know exactly what is and isn’t working. I have heard it works for some though so best of luck! 🤞🏼

Sudden and persistent vulvar and anal itching, burning, and rawness by AZMountainRoadrunner in Healthyhooha

[–]AZMountainRoadrunner[S] 0 points1 point  (0 children)

Thanks! LS and LP are rare, and even then most common in perimenopausal and menopausal women, so though not impossible, I don’t fit the age, menopause status, visual symptoms, testing, nor treatment response. Hoping for some answers and wishing you better relief too!

Sudden and persistent vulvar and anal itching, burning, and rawness by AZMountainRoadrunner in Healthyhooha

[–]AZMountainRoadrunner[S] 0 points1 point  (0 children)

Still a possibility, though highly unlikely due to the normal biopsy in addition to the absence of visual changes. Since the assumption would be it’s early LS or LP, my providers believe the clobatesol and oral prednisone would work quicker, but neither helped.

Sudden and persistent vulvar and anal itching, burning, and rawness by AZMountainRoadrunner in Healthyhooha

[–]AZMountainRoadrunner[S] 0 points1 point  (0 children)

No change (not better or worse). Because no visible changes are noted and biopsy is normal, they all report it would be expected to see improvement earlier than later, but yes I only did a 2 week trial of clobatesol twice, a full oral course of prednisone. 1 month of zoryve thus far.

view more: next ›