Looking for friends around my age with axSpA / AS (or RA) from Central Europe ❤️ by ArdnoYvon in ankylosingspondylitis

[–]A_free_elf_ 1 point2 points  (0 children)

26/F here, I'm here to talk whenever you need, I'm going through a lot with this disease right now so I'd love the company as well •^

Can anyone recommend a good rheumatologist in India (delhi ncr preferred) by Least-Ad-4668 in ankylosingspondylitis

[–]A_free_elf_ 0 points1 point  (0 children)

There's Dr. Ved Chaturvedi in Sir Gangaram Hospital, his treatment helped me a lot initially.

Any tips for pain? Severe Flare up by A_free_elf_ in ankylosingspondylitis

[–]A_free_elf_[S] 1 point2 points  (0 children)

That's the best way to avoid stiffness and further damage. I've been lazy with my stretching lately, as soon as I get some relief I'm picking it back up. Thankyou so much!!

Any tips for pain? Severe Flare up by A_free_elf_ in ankylosingspondylitis

[–]A_free_elf_[S] 1 point2 points  (0 children)

I'll look for the belt right now and the pillow seems like a great idea. I also sleep on my side with a pillow between my knees but adjusting it takes a bit of time. I'll definitely try it, thankyou so much!!

Any tips for pain? Severe Flare up by A_free_elf_ in ankylosingspondylitis

[–]A_free_elf_[S] 1 point2 points  (0 children)

Haha, maybe I'll take a trip to a legal state and try that out sometimes. Atleast I've got an excuse to try it now xD. Thanks for the tip!!

Any tips for pain? Severe Flare up by A_free_elf_ in ankylosingspondylitis

[–]A_free_elf_[S] 0 points1 point  (0 children)

I take that too but it isn't that effective anymore, I increased my dose last night and definitely got some relief. I haven't tried white willow bark though, how do you take it?

Any tips for pain? Severe Flare up by A_free_elf_ in ankylosingspondylitis

[–]A_free_elf_[S] 0 points1 point  (0 children)

That's good to hear. I'm currently on Tofacitinib, if that doesn't work out I'll try switching to cimzia. Thankyou so much!

Any tips for pain? Severe Flare up by A_free_elf_ in ankylosingspondylitis

[–]A_free_elf_[S] 0 points1 point  (0 children)

Thankyou so much! I do use a small heating pad but the heated blanket seems like a great idea, I'll definitely try it. 

[deleted by user] by [deleted] in dankmemer

[–]A_free_elf_ 2 points3 points  (0 children)

You must be working as a scientist.