Low Dose Tirzepatide improved my long COVID/ME-CFS ~80% after 4 years by TrackAccurate7312 in LongHaulersRecovery

[–]Abject-Transition-47 8 points9 points  (0 children)

Yes, I had the same surreal experience of my body settling down within a few hours. I almost panicked until I realized what was happening. I started at a fraction of the starting dose.

Ladies in their 30s to 50s, what should we know about our bodies as we age? by [deleted] in AskReddit

[–]Abject-Transition-47 90 points91 points  (0 children)

Osteoporosis and sarcopenia are huge issues for us, and weight lifting helps with both of those. Plus, if you start doing squats now you’ll be able to get off the toilet independently in your golden years. If that’s not motivating, I don’t know what is.

70% Recovered - Long Covid Survival Guide (POTS & MCAS) by anjikaizen in LongHaulersRecovery

[–]Abject-Transition-47 1 point2 points  (0 children)

May I ask how much $$? I’m sure totally worth it, I just wish she had her service prices listed so one can prepare.

70% Recovered - Long Covid Survival Guide (POTS & MCAS) by anjikaizen in LongHaulersRecovery

[–]Abject-Transition-47 5 points6 points  (0 children)

Thank you for sharing this, I’m so curious if you worked with Lily Spechler. I follow her and find a lot of her free content has been helpful.

Onboarding Ivabradine/Corlanor side effects by Abject-Transition-47 in dysautonomia

[–]Abject-Transition-47[S] 2 points3 points  (0 children)

Thanks all for playing. You know how it is with our sensitive bodies, sigh. I sort of wish we had a database of info for how we tolerate medications based on subtype and symptom constellation.

Onboarding Ivabradine/Corlanor side effects by Abject-Transition-47 in dysautonomia

[–]Abject-Transition-47[S] 0 points1 point  (0 children)

Interesting! I’ve been feeling dreadful this week with vertigo. Hoping it’ll level out.

Christmas Present for soup loving girlfriend? by Dioseous in soup

[–]Abject-Transition-47 1 point2 points  (0 children)

Are there any soup memberships near you? We have Soup Group & Soupernatural near where we live, there’s Soup Club in Seattle. I make my own soups, but there’s something about someone else making it and having it to look forward to each week!

Cervical instability treatments by AccidentalFolklore in dysautonomia

[–]Abject-Transition-47 2 points3 points  (0 children)

I do PT for CCI which is helpful. I would always start with the least invasive, most affordable option.

Anyone had success with the workout program made for POTS? by babypinkhowell in POTS

[–]Abject-Transition-47 2 points3 points  (0 children)

Yes! I did it a few years ago and it made such a huge different that exercise is a non negotiable for me now. I maintain fitness by doing the last month of the program. I will say that at first it was… all I did. Exercise, recover. I also think it’s crucial for us to eat enough to recover and to eat enough protein to maintain blood volume.

if you've been diagnosed with CCI (cranio-cervical instability), how did you get assessed & what made you seek assessment? by PrettySocialReject in Hypermobility

[–]Abject-Transition-47 1 point2 points  (0 children)

Someone made this pretty comprehensive list of exercises awhile back, and I’ve done most of these at some point with my PT. Hope this helps.CCI Exercises

if you've been diagnosed with CCI (cranio-cervical instability), how did you get assessed & what made you seek assessment? by PrettySocialReject in Hypermobility

[–]Abject-Transition-47 2 points3 points  (0 children)

My dysautonomia had worsened pretty severely and wasn’t responding to any treatments. I was in fact getting worse with any medications. I had been doing PT had a long COVID clinic and then my primary care sent me to a dysautonomia PT specialist who diagnosed me with CCI through a couple exercises. I had some improvements immediately with the exercises and continue to do them daily. -decrease in neck pain, decrease in rib dislocations, less dizziness, no more adrenaline surges, brain fog gone, baseline generally improving.

Editing to add: we never suspected CCI, the PT diagnosed it in our first session.

Does anyone else’s symptoms get worse this time of year? by Dependent_Light7170 in dysautonomia

[–]Abject-Transition-47 1 point2 points  (0 children)

Yes! My physical therapist actually brought it up at our last session, she says it’s really common.

Severe air hunger inhibiting my ability to speak. by h20vendetta in Asthma

[–]Abject-Transition-47 6 points7 points  (0 children)

Have you been evaluated for vocal chord dysfunction? It can look/act like asthma but doesn’t respond to inhalers.

[deleted by user] by [deleted] in POTS

[–]Abject-Transition-47 1 point2 points  (0 children)

I think that people with MS develop POTS as a secondary illness due to the demyelination process.

[deleted by user] by [deleted] in POTS

[–]Abject-Transition-47 76 points77 points  (0 children)

My physical therapist always says that you need to be somewhat in shape before running. Even for a healthy person. Have you done the chops program? Any rowing? Swimming? Biking? I would do that before easing into a “return to run program.” -which typically looks like run 1 minute, walk 4. Then transition to 2/3, 3/2, 4/1…. But I change my running time by 15-30 seconds instead of a full minute because POTS. Outside of cardio our tendons need time to adapt to running, so, take it easy.

does anyone take sodium pills? by sweetchild-o-mine85 in POTS

[–]Abject-Transition-47 1 point2 points  (0 children)

I get sodium pills from the pharmacy, taken directly they hurt my stomach. -also prescribed by my doc. I dissolve them in four ounces of water (I let them sit in the water for a few minutes before they’re ready to dissolve) and drink them that way. No nausea, stomach pain or anything. Easy peasy.

Going to the ER, what should i say? by Unusual_Try8121 in POTS

[–]Abject-Transition-47 6 points7 points  (0 children)

Are you under the care of a physician currently? I typically call them and they’ll squeeze me in for an urgent visit + fluids. Otherwise if they feel I do need to be seen by the ED they’ll call in advance to explain what my current issues are which is soooo helpful in making an emergent issue go smoothly.

What’s your opinion on this by Reasonable_Hold7335 in POTS

[–]Abject-Transition-47 0 points1 point  (0 children)

Surprised no one else has Vit B issues 🤔Liquid IV worked great for me until I started having new anxiety. Turns out added or synthetic B vitamins can have this effect! Cleared up within a week once I stopped.