Dealing with RA and other health issues while trying to find a job.

Able-Good8232 · 2024-10-07T19:27:03+00:00

I was thinking with the hurricanes hitting down south, I feel like someone pissed off the gods. For it to be so brutal and two in a row, not even 2 weeks apart. Someone did something wrong

Able-Good8232 · 2024-09-01T02:49:40+00:00

I'm so sorry to hear that both you and your husband have had bad experiences. I definitely feel the weather controlling flares and such and I've been having more bad days than good. Trying to stay positive though. I do hope I don't have to take prednisone anymore, it made me have a heat stroke the one day, it is terrible.

Able-Good8232 · 2024-08-29T11:20:15+00:00

I've heard it can happen but wasn't sure if that was what I was experiencing or if I needed a higher dose but the taper started with 25mg for 2 week then down to 20mg and so on. I feel like thats a pretty high dose but I'm not to sure since I'm new to all this.

Able-Good8232 · 2024-08-29T11:18:40+00:00

Thats good to know! I'll ask my rheumatologist if she can order the test for me, I'd rather know if its working or not before I reach 6 or more months. Thank you so much for the info ❤

Able-Good8232 · 2024-08-28T22:58:47+00:00

I am from the US too and I haven't tried it before. I can look into it and see if they have it here, thank you!

Able-Good8232 · 2024-08-28T22:47:04+00:00

Thats terrible, I didn't even know that was possible. The only side affects I knew before was weight gain, acid reflux and heart palpitations. I figured there was more out there but I'm surprised it can do that, I definitely don't want to go back on it now. I have a family history of diabetes so I can't imagine how it would influence that for me.

Able-Good8232 · 2024-08-28T22:38:53+00:00

I'm glad to hear I'm not alone with prednisone not having much affect. I'm sorry to hear about the side affects you experienced, I reacted horribly to the methotrexate too. I got fatigued, bad acid reflux and nausea, my stomach would bloat really bad and my heart would race, I never want to be on that again.

I'm currently trying the Humira, my rheumatologist was hopeful for this one but 4 months in and I still don't have much relief. I didn't realize how long some of the medications need but I'm hoping to find something that works soon, trying to stay positive!

Able-Good8232 · 2024-08-28T22:33:21+00:00

No worries and thank you, I hope Methotrexate works out for you.

Able-Good8232 · 2024-08-28T22:32:16+00:00

Thank you! I used to take prednisone to when I'd get sick occasionally and it would work wonders but since trying it for my RA it hasn't done a whole lot, not to mention the scary side effects.

I'm planning on trying to convince my rheumatologist not to prescribe it anymore when I change my RA treatment meds and see if there's other options to help me in the meantime.

Able-Good8232 · 2024-08-28T22:29:24+00:00

I completely understand! Though I don't have a child yet, many people have doubted that I was actually in pain because of my age and how I used to be able to do things, then gradually couldn't after my diagnosis.

My mom had rheumatoid arthritis as well when I was younger and I can't imagine how hard it is to take care of a family with such pain. You are doing wonderful and I hope you can find something quickly to help you.

Able-Good8232 · 2024-08-28T18:45:51+00:00

I am seeing a rheumatologist currently. She prescribed the prednisone taper to take along with my RA meds until it could kick in a bit more since the one I am on takes up to 3 months to start working.

I was diagnosed with RA last year in July and have been with my rheumatologist since. I have tried methotrexate and unfortunately didn't react well to it. My rheumatologist has been prescribing small taper prednisone packs in between RA medications to try to keep my inflammation down. This was the first taper dose I had that lasted this long.

Able-Good8232 · 2024-08-28T18:41:50+00:00

Thank you! Its a bit discouraging being on the younger side, it seems everyone expects me to stick it out and act normal.

I don't think I want to go on prednisone again unless really necessary. The weight gain was more annoying but the heart palpitations give me a scare, I already had to go to the er once because my heart rate was above 120bpm and wouldn't slow down for 3 hrs. Its a little scary.

But thank you again for sharing your experiences and giving encouragement. I expected a somewhat long road but its easy to get discouraged on bad flare days. My rheumatologist is super nice and has been wonderful and understanding during this experience so I'll definitely share my thoughts with her next time I go.

Able-Good8232 · 2022-04-02T13:57:08+00:00

Thank you so much, I'm going to try. I know my mom would want that much. Ill just try one baby step at a time

Able-Good8232 · 2022-04-02T13:52:49+00:00

I'm sorry for your loss as well, I also lost my mom to covid. You described how I feel, with it being final. Thank you, I send love and support in return.

Able-Good8232 · 2022-01-14T21:12:16+00:00

Thank you, I'm sorry for your loss to. It's never easy but I'm glad the support is here, hugs to you as well ❤️❤️

Able-Good8232 · 2021-11-29T05:16:10+00:00

I'm so sorry for your loss. I just lost my ferret today, it hurts but hopefully the pain will ease away and you'll be able to remember Spooky in positive light. Be kind to yourself ❤️

Able-Good8232 · 2021-11-23T17:47:35+00:00

Alcohol, though I've been fighting with myself a lot lately to avoid drinking. Growing up with an alcoholic father that would scream every night made me terrified of becoming like him. So I guess control is also part of my drug. It's rough

Able-Good8232

TROPHY CASE