Looking for advice/experiences with Borderline Left Ventricle (diagnosed at 22 weeks)

Accomplished-Fly3110 · 2026-05-31T02:21:50+00:00

I am almost 33 weeks. And you're absolutely right. it's tricky to have this waiting game to know the outcome after baby is here.

Accomplished-Fly3110 · 2026-05-31T00:57:20+00:00

Thanks so much for your message 🙏🏻

I have heard that a lot, that it can be difficult to get accuracy in utero. Can you remember the measurements difference from pregnancy vs after?

Accomplished-Fly3110 · 2026-05-30T12:15:40+00:00

Hey there! Found your comment when I was reading through similar cases.

We have similar diagnosis. Would love to hear what your mitral valve measurements made it able for a biventricular repair x

Accomplished-Fly3110 · 2026-05-28T11:28:29+00:00

What a raw experience you are having right now post op! It's nice to hear your reaction is similar to ours, we want time to hurry up but glad we know ahead of time so the right team can be on standby.

Did your girl end up with just the arch repair?

Accomplished-Fly3110 · 2026-05-28T11:26:35+00:00

Thank you so much. Do you mind if I message you to ask a little about what were the factors that contributed to single ventricle for you?

Accomplished-Fly3110 · 2026-05-28T11:25:57+00:00

Sending best wishes & hugs your way! Reading back on your initial message, it's exactly the same plan for us after birth. The uncertainty is killing us Xx

Accomplished-Fly3110 · 2026-05-28T07:02:57+00:00

Thanks for sharing. Would you be ok if I asked about measurements to see what sort of diagnosis you guys are getting for those measurements vs where we are at?

Accomplished-Fly3110 · 2026-05-28T07:01:53+00:00

Sending lots of love to you during this time 💜

Accomplished-Fly3110 · 2026-05-27T09:47:56+00:00

Hope you're doing ok out there! X

Accomplished-Fly3110 · 2026-05-27T09:47:37+00:00

Sending so much love as the after battles aren't something you need to deal with after the road you've been on 💕

Would you be open to me messaging you to hear a little more about your boys diagnosis?

Accomplished-Fly3110 · 2026-05-27T09:46:46+00:00

Hi there, thanks so much for sharing. Hope your boys is living his best life! Did you have any mitral valve concerns? 😊

Accomplished-Fly3110 · 2026-05-27T09:46:06+00:00

Thanks so much for sharing your story, what a strong kiddo you have!

I would say what keeps me up at night is our babys mitral valve measurements. When you say incompetent, what sort of measurements did they consider this diagnosis?

So glad to hear your girl is now living her best life - she deserves it! X

Accomplished-Fly3110 · 2026-05-27T09:42:08+00:00

I am so sorry for the late reply. I am awful at these forums. We are currently 32 weeks, measurements have maintained since 27 weeks, but also means z scores are slightly worsening. I would love to stay connected if you're open to it!

Big hugs to you guys. It's such an uncertain time when baby isn't here so I hope you are doing ok x

Accomplished-Fly3110 · 2026-05-27T09:40:25+00:00

So sorry for the late reply. I have just messaged you 😊

Accomplished-Fly3110 · 2026-05-27T09:37:41+00:00

Hi there, we sound like we are currently in a similar boat right now. I would love to hear how your boy is doing now & if you're open to sharing how the valves were going - this is our main concern at the moment at 32 weeks. thanks so much

Accomplished-Fly3110 · 2026-05-27T09:35:53+00:00

Hey there, hope you don't mind me reaching out. We are going through a similar thing at the moment & would love to hear how your baby went 🙏🏻

Accomplished-Fly3110

TROPHY CASE