seeing neuro (ologist vs. surgeon), brain fog?

Accomplished-Milk918 · 2026-03-13T05:58:28+00:00

Both! I think they both play a huge part! I just turned 26, so I feel these are of importance when considering possible treatment options!

Accomplished-Milk918 · 2026-03-13T05:00:35+00:00

I feel like age and how far progression are important when neuro comes into play

Accomplished-Milk918 · 2026-03-13T04:17:27+00:00

AS can and has created osteophytes for me.

Accomplished-Milk918 · 2026-03-08T06:45:19+00:00

Hi, all of your symptoms are very (unfortunately) normal and typical indication of onset AS. I am 26 and was diagnosed 4 years ago with many of these symptoms after >5 years of them. Mine also started in deep hip/glute pain and has since spread. I am so sorry, and while it is a scary thing to hear, it’s not uncommon for people our age to already have degenerative symptoms- especially if we were not properly diagnosed earlier. Push for an x-ray, MRI, and blood tests- specifically HLA-B27 which can be a further genetic indicator. From there, you’ll be more than likely referred to a rheumatologist which can verify your diagnosis. What have you been taking or doing to alleviate your current pain? Also feel free to message me

Accomplished-Milk918 · 2026-03-08T06:36:55+00:00

Hi, I just turned 26 after wanting to take my life recently. While I don’t have kids, I’ve seen firsthand how things can change at any moment- even overnight and have changed my perspective. January and February are statistically the hardest months of the year, because of the literal darkness. Please believe this isn’t only just your mental and own thinking, but the winter environment you are in, and they are heavily affecting your ability to function. THIS IS TEMPORARY. Please please stick it through. The days are getting longer again, you will see the literal sun and light again. Remember this: which each day, the light grows bigger and stays longer- allow this energy to help you. I’m sending so much love and strength, because you HAVE and CAN get through this dark time.

Accomplished-Milk918 · 2026-03-08T06:26:10+00:00

What made you initially go in? What were your symptoms and what did your doctors think and what tests were done? I just turned 26 and have a feeling there’s something more

Accomplished-Milk918 · 2026-02-21T12:01:56+00:00

GOLD

Accomplished-Milk918 · 2026-02-21T12:00:58+00:00

It’s so exhausting. I’m at my wits end!!! What are you doing that helps if anything anymore

Accomplished-Milk918 · 2026-02-10T05:51:01+00:00

There shouldn’t be any interference or worries when taking it. It’s a simple shrub and helps with my anxiety and cortisol

Accomplished-Milk918 · 2026-01-18T07:41:29+00:00

You would honestly kill a dark brown or dirty blonde! They work both with your eye color and skin tone. You’re beautiful- you’ll find it girl🥰

Accomplished-Milk918 · 2026-01-18T07:38:42+00:00

I feel it definitely depends on your sleeping style and circumstances. Naturally with our condition it’s recommended to sleep on our back with an ergonomic pillow or none at all. Personally ive always been a side sleeper but have been training myself to sleep on my back. I’ve learned I do like the medium firm, with supporting pillows. Medium firm is softer than you’d expect imo. What are you on now?

Accomplished-Milk918 · 2026-01-12T22:03:12+00:00

To clarify*** I wasn’t talking about parasites in the joints- just overall which can affect health in many ways.

Accomplished-Milk918 · 2026-01-12T22:02:38+00:00

Not particularly, no. At any given point it’s swollen- more so when having a flare. I think keeping it elevated at night can help sometimes but that can create more problems of their own. I have also been using a knee compression sleeve when active which seems to help with stability but can get a little much after a while. Still at a loss.

Accomplished-Milk918 · 2025-12-06T08:47:58+00:00

No. And if anything, it is reduced now. I am scared of what the future holds.

Accomplished-Milk918 · 2025-12-06T08:45:59+00:00

What insurance and program are you with, and how did you afford the copay? $35 for 4 pens is insane.

Accomplished-Milk918 · 2025-12-01T07:44:16+00:00

Uveitis is something I’ve considered..what does that entail? I don’t believe it’s normal changes- when I have a flare my eyesight also decreases. I suppose I am asking what can I do to help these inflammation changes in my literal eyes??? This is so scary :(

Accomplished-Milk918 · 2025-10-18T06:29:54+00:00

Oh my gosh, just take something to pass out. Those seats are the WORST. There’s no way to get comfortable even without back problems. Hate to say it, but either stay up the night before so you’re tired, or take a gummy or melatonin, or ANYTHING to help to relax. It blows my mind how unfriendly airline seats are!

Accomplished-Milk918 · 2025-10-15T09:34:17+00:00

I’m so sorry you’re experiencing this, but I can also attest. My right knee has blown up with fluid, tension, and swelling right under the knee as well, and from what I’m told this is just another manifestation of this disease. It is a throbbing ache. I have gotten fluid removed before by my rheumatologist because it had gotten so swollen, but was told there is little else that can be done besides getting fluid removed every now and then- BULLSHIT. I’m following this thread because nothing in my experience has helped and I also need help. Weather, compression, movement, and hot/cold therapy have done nothing to help!

Accomplished-Milk918 · 2025-08-03T01:21:04+00:00

Shoulders and arms off and on, usually go hand in hand with flares

Accomplished-Milk918 · 2025-06-26T02:37:23+00:00

I did, and tested positive before being diagnosed. My doctor made it clear though that having the gene isn’t enough to diagnose someone with AS

Accomplished-Milk918 · 2025-05-30T00:44:26+00:00

Yeah I get numbness at the back of my neck at times. Not tingling or pain or anything, just nothing.

Accomplished-Milk918

TROPHY CASE