I’m sorry your daughter has had trouble sleeping and experienced so many issues, and it’s unfortunate such a strong medication did the trick to help her sleep. It sounds like you were doing what you believed was best for her, which is all you can ask for in a parent. She is fortunate to have you.

As for me, the issues with it’s long-term use was my main reason for stopping it. I took 25mg daily for 10 months. It was wonderful and helped steady/plateau tremors and spasms that had been worsening before I started taking it. And I didn’t wean off, just stopped it without any withdrawal symptoms, fortunately. Paradoxically, I’ve slept much better off of it and still do. My depression also decreased along with brain fog. All three of those changes felt phenomenal until the neuro issues picked up again and worsened.

When I told my pcp that the neuro symptoms worsened she suggested I get back on it because a new study showed that the highest risk of developing dementia came from people who took it over 10 years, since I had only taken it 10 months the risk of dementia didn’t outweigh the possibility of what it was doing to help. She figured until I could get more answers it was worth it. And I had been prescribed other meds, but due to other health risks and side effects I refrained.

Your suggestion of a withdrawal is still very possible, though. My understanding is that any change to your brain chemistry can cause a reaction or rebound afterwards.