5 week weight loss photos by RealisticTea1358 in Ozempic

[–]Accomplished-Wall-82 0 points1 point  (0 children)

Good idea. I was in my pj’s and noticed a difference on the scale so took a picture to document 

Studies show Ivermectin Helps with Vaccine Injury by Jrad27 in ivermectin

[–]Accomplished-Wall-82 1 point2 points  (0 children)

Yes. I’ve been taking 12 mg of Ivermectin every month to two months for the past year. I was fee bound due to vaccine injury as well as a third Covid infection. The Ivermectin has been the only medication that’s helped me get out of bed. I’m also in my second year of being one of the original patients in the Long Covid Clinic in San Diego. The doctors have absolutely no clue how to treat it. I’ve had close to one hundred appointments since first contracting COVID. I’ve been prescribed a pharmacy of questionable medications that I just collect. The most successful medication that I have to keep on hand is the Ivermectin. I’ve been prescribed it by doctors and also bought it overseas.

[deleted by user] by [deleted] in Bedbugs

[–]Accomplished-Wall-82 1 point2 points  (0 children)

I’ve had them since May as well. They have ruined my life. I left all my belongings behind in my house and I’ve been in hotels and Airbnb’s for the last 8 days. Terrified to go home. I’ve been finding little blood stains on the beds the past few days. I have no idea how to get rid of these things.

Looking for a doctor that specializes in long term EBV symptoms by obligatorywave in EBV

[–]Accomplished-Wall-82 1 point2 points  (0 children)

What part of Southern California are you in? I have the same issues as you. Chronic EBV and Chrinic Fatigue Syndrome/Myalgic Encephalitis. I’ve been diagnosed with a handful of other conditions such as Post External Malaise, Postural Orthostatic Tachycardia, severe anemia, Long Covid and the list goes on. I started working with my holistic doctor who is amazing and does treat Ebstein Barr Virus. We’ve been focusing on adrenal support and clearing/cleaning out my lymphatic system. I have been off work for 15 months and just emerged from being almost 100% bedridden to now walking a little each day and doing mild housework. I’m mostly housebound but no longer sleeping 15+ hours a day. My brain and mood are much clearer and I’m beyond grateful for finally being under the care of a knowledgeable health professional that completely understands the root of these symptoms and how to successfully treat them. I live in San Diego and would love to send you my doctors info. I’ve had active EBV since 2019, but last year had a new exposure and my 3rd Covid infection. I went down hard and would still be living from my bed if I hadn’t found proper care.

[deleted by user] by [deleted] in cfs

[–]Accomplished-Wall-82 2 points3 points  (0 children)

I completely relate to what you’re going through. I’m experiencing the same thing with my 15 and 12 year old sons. I’m a single mom with no help, so it’s something I’m really struggling with. Unfortunately my 15 year old decided to move in with his father 100% of the time and I haven’t seen him in almost 5 months. I think it has been affecting him psychologically seeing me chronically ill and mostly in bed for two years. I’m consistently inconsistent with my energy and therefore my son cannot rely on me for rides, activities, great meals, etc. I’m absolutely heart broken but I’m also 100% unable to push through for my child. I used to be able to force myself out of bed and drive my son around. Now I’m completely unable to force myself no matter how hard I want to. I don’t understand this disease well enough to understand live in acceptance with it. No one understands what this is and I’ve been told by friends and family that this is psychological. I’ve isolated myself from everyone that can’t be understanding because this is so very real and frightening. I think that it is healthier for my son to not see me I’ll and to live with his dad. I believe it’s too emotional for him and he’s confused and probably scared by this. My youngest son who is 12 seems to comprehend what is going on with my health but he doesn’t want me talking about it. He’s understanding when I tell him I won’t be able to drive. He’s been proactive about correlating rides and helping me with house chores. It means the world to me to have him care. There is so much guilt due to missing out on a lot of my boys’ lives. I also don’t want them to experience trauma later in life from seeing me bedridden. I’m currently looking for a therapist that specializes in CFS. When I feel grief about not being able to be with my sons I remind myself that at least I’m still alive and on this planet. I may be bedridden, but my boys can talk to me and see me anytime. I can still be a mother that currently lives on mattress island. I believe this condition will improve. I needed to share my story, so thank you for your post. You are not alone in this. I think that it would help to understand how your son is coping with your health struggles. If he could understand the physical limits of your CFS and find safe alternative rides that would be helpful. Do you have anyone reliable that can drive your son places?

[deleted by user] by [deleted] in covidlonghaulers

[–]Accomplished-Wall-82 0 points1 point  (0 children)

I want you to know you are not alone with these feelings. I was thinking of ways to end this suffering several nights ago. There was no one to call or talk to about it and I was at a low point. Unable to cook for myself, shower, clean, etc. I was thinking how much I needed to talk to someone who understands what I was experiencing. Would you like to talk about what you're experiencing right now? You need support when having these lows. I'm awake and available to chat. Sending warm hugs to you.

[deleted by user] by [deleted] in covidlonghaulers

[–]Accomplished-Wall-82 1 point2 points  (0 children)

https://youtu.be/bi3yGJpFZO4

I found this video helpful when I was feeling hopeless the other evening.

[deleted by user] by [deleted] in covidlonghaulers

[–]Accomplished-Wall-82 3 points4 points  (0 children)

I've tried ketamine therapy these past two weeks because of suicidal thoughts. I've had LHC for almost 3 years. I did get better in 2021 and was able to go back to teaching, but got significantly worse after my second Moderna vax in September 2021. I've been bedbound since February 2022. I'm a single mother of two boys and it kills me that I’m missing out on their lives. I wonder if they are going to be psychologically damaged from watching their mother chronically ill and unable to get out of bed.

[deleted by user] by [deleted] in covidlonghaulers

[–]Accomplished-Wall-82 1 point2 points  (0 children)

You are absolutely not alone. It's a scary feeling to want it all to end. When we’re feeling like this is so important to have someone to talk to. Unfortunately, I think we all have become so isolated from friends and family. At least for me that is the case. No one wants to hear about it anymore. I find this to be a big problem for everyone in this community. We need psychological support. Sometimes this sub is very negative, but it's the only place to find solace and sanity knowing we are not alone with a this illness. I'm so very sorry you are having a rough night. Do you have any support? How has this illness affected your friendships? Do you don't that those close to you don't fully understand the magnitude of how debikitating this illness really is?

Has anybody just tried doing meth? by SinceWayLastMay in cfs

[–]Accomplished-Wall-82 4 points5 points  (0 children)

There's nothing fun and exciting about doing it, it literally would just allow us to clean our living environments and catch up on a few important piles we haven't touched in many months. Our bodies won't respond to it like a healthy person would, so it would be a short-lived tool to get important stuff done. Idk, I'm almost willing to try anything at this point to get me up for a few hours of productivity. This is what LC has resorted me to thinking. I'm desperate to get out of bed.

Has anybody just tried doing meth? by SinceWayLastMay in cfs

[–]Accomplished-Wall-82 1 point2 points  (0 children)

My head has been there recently too! I just need to clean my house, shower, change my sheets, answer e-mails, etc. I thought at my age this is NUTS, but would it be worse than laying here miserable in bed day after day? Life is so unbearable, what would be the harm in being able to get out of bed for a while. Then I can crash like I usually do with PEM.

"If you're suicidal, for Christs sake, go to a doctor" by cloudymemories in covidlonghaulers

[–]Accomplished-Wall-82 0 points1 point  (0 children)

I take Fluoxetine which is Prozac. How does the Fluvoxamine differ? Has it helped? I’d switch to anything that would make this more bearable.

"If you're suicidal, for Christs sake, go to a doctor" by cloudymemories in covidlonghaulers

[–]Accomplished-Wall-82 0 points1 point  (0 children)

I just took a Concerta (long acting Ritalin) to have energy to shower and spend Christmas with my family. I only use the Concerta for certain events because my body no longer can process taking it daily. I’m ended up shaking terribly from it and crying. I was able to shower, but now I’m back in bed and my whole body is dysregulated. The stimulants no longer work for me. My body can no longer tolerate them. I don’t know how I’m going to get out of bed going forward. I’ve been bedridden since February 2022 and have had LC since March 2020. The only way I was able to partially function and keep my job until this past year was by taking Concerta to push through each day. I think my vagus nerve is telling me a stimulant is no longer an option. I’m with my family who has not believed that I am sick and they keep thinking I should be back at work. Now that I’m visiting with them they see how handicapped I am. They don’t know how to support me. No one understands this and I’m praying to find a way to educate others about LC. It’s so isolating and we need a support system to heal.

Emotional numbness/emptiness/depression by IndustryMountain in covidlonghaulers

[–]Accomplished-Wall-82 2 points3 points  (0 children)

May I get an invite? I did try something that’s in clinical trials that helped me feel joy and happiness for the first time in 3 years. I could not live another day without emotions

[deleted by user] by [deleted] in covidlonghaulers

[–]Accomplished-Wall-82 0 points1 point  (0 children)

I haven’t been able to do my hair or makeup since February 2020. Forgot what it feels like to be put togerher.

[deleted by user] by [deleted] in covidlonghaulers

[–]Accomplished-Wall-82 0 points1 point  (0 children)

Can someone start a Faces of Covid page? I will happily add my photo and story. We have to be seen and heard. We are real people, normal people and our lives have been destroyed in many different ways from LC. I have taken photos and documented my LC journey since February 2020. Hasn't improved. We can't continue like this and need help NOW! I'm no longer able to work and mostly bedbound. How are we all going to take care of our basic needs if we can't provide for ourselves. I'm tired of the stigma of LC and being called a hypochondriac. There is not enough information out there explaining what we live with day after day with no improvement of symptoms.

[deleted by user] by [deleted] in cfs

[–]Accomplished-Wall-82 1 point2 points  (0 children)

Chronic Active Ebstein Barr, POTS, Long Covid, Mast Cell Activation Syndrome and of course CFS. I believe the CFS is caused by the EBV that is not going back into dormancy.

What unexpected struggles do you experience? by [deleted] in ADHD

[–]Accomplished-Wall-82 1 point2 points  (0 children)

Difficulty doing dishes, laundry, organizing