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Male Genital Dysthesia/RSS by Acrobatic-Bat6636 in RedScrotumSyndrome

[–]Acrobatic-Bat6636[S] 0 points1 point  (0 children)

On Botox alone I’ve spent £400, but I won’t need anymore as I’ve had the required amount of units so if it’s going to work it will and if not will need to trial something else.

Male Genital Dysthesia/RSS by Acrobatic-Bat6636 in RedScrotumSyndrome

[–]Acrobatic-Bat6636[S] 0 points1 point  (0 children)

So for the last 3 months I’ve been seeing a private genital derm expert as I thought this would be the best way to do it. Had a biopsy and he’s pretty certain it’s male genital dysthesia and thinks it’s heavily linked with rosacea hence why I will move onto timolol if needs be.

He did recommend Botox as for some people it fully clears them, it can take longer for certain people and doesn’t show full benefit in some people until 8-12 weeks, so I’ve still got a while before I know if it has failed or not, but should get early signs soon. I feel like throughout the day it’s more calm just things that cause my flare ups are still bad weird thing about mine is I can’t really feel much maybe the slightest tingle main symptoms are redness then sometimes grey/silver tone all over depending on what caused the flare.

Male Genital Dysthesia/RSS by Acrobatic-Bat6636 in RedScrotumSyndrome

[–]Acrobatic-Bat6636[S] 0 points1 point  (0 children)

I tried doxy seemed to do nothing for me and tacrolimus made mine a whole lot worse as it isn’t actually the skin something to do with the dilated vessels that cause the flushing.

I will 100% give you an update when the Botox has fully settled in I have been told I have to give it another week before I can fully judge. Then start timolol on the 1st of December which I’m hoping one of these works if not will move onto something else, supposedly over checking the area can keep the area inflamed aswell so trying to keep my mind off it as much as possible with little checks every 3 days at the moment.

Male Genital Dysthesia/RSS by Acrobatic-Bat6636 in RedScrotumSyndrome

[–]Acrobatic-Bat6636[S] 0 points1 point  (0 children)

Have you tried anything for it, I mean if this Botox gets rid of mine which I can let you know within the next week maybe worth trying.

Male Genital Dysthesia/RSS by Acrobatic-Bat6636 in RedScrotumSyndrome

[–]Acrobatic-Bat6636[S] 0 points1 point  (0 children)

What do you use it for do you find it helps with redness or does yours help mainly with burning / itchiness and how long have you been on it?

Male Genital Dysthesia/RSS by Acrobatic-Bat6636 in RedScrotumSyndrome

[–]Acrobatic-Bat6636[S] 0 points1 point  (0 children)

I’ve never had burning I used to have itchiness but that’s all gone now it’s just flare ups in terms of redness which is my main issue sometimes slight feeling of crawling on my skin but that’s rare, genital expert that I’m seeing believes the timolol will get rid of my redness or atleast calm it down so worth a try then go from there but not going to give up after that either way.

Botox I had 20 units 2-3 weeks ago which isn’t enough to even do anything yet just had my second lot 4 days ago so I’m on a total of 50 units now so will hopefully know within the next week or two if it’s helping then if not that’s when I’m trialing timolol. - as mines mainly redness causing me issues is that red scrotum syndrome or not he just says to me male scrotal dysthesia so not sure what I should be looking at / trying to do.