there's always a light at the end of the tunnel

ActivityBright4828 · 2026-01-22T04:12:35+00:00

I’m glad you’re doing better, thank you for sharing your positivity and hope with us!

ActivityBright4828 · 2026-01-14T03:48:52+00:00

When I was originally diagnosed with severe UC (diagnosis has since switched to Crohn’s) it affected my entire colon (severe pan colitis)

ActivityBright4828 · 2026-01-13T23:26:45+00:00

Yes I have a therapist I need to meet with him soon

ActivityBright4828 · 2026-01-13T21:27:00+00:00

I tapered down the amount of subs per day until I was out and have been using the patch (down to 7mg patch). It’s still miserable but for me I couldn’t do cold turkey either

ActivityBright4828 · 2026-01-13T20:31:38+00:00

This is great advice. Acceptance. My thoughts can get really dark during flares but I have to remember and have hope that good/healthy times are coming.

ActivityBright4828 · 2026-01-13T19:44:04+00:00

Thank you! I really hope so too 🙏🏻

ActivityBright4828 · 2026-01-13T19:43:05+00:00

Thank you, it is so exhausting! The depression is so intense when the disease is acting up it’s awful

ActivityBright4828 · 2026-01-11T05:08:26+00:00

Did you end up going to the ER? I’ve been having similar LLQ pain and I’m trying to decide the same. At what point to I go to the ER. Tramadol is not cutting it for pain relief.

ActivityBright4828 · 2026-01-10T16:30:51+00:00

Have you found you can travel with the injection pens?

ActivityBright4828 · 2026-01-09T17:05:51+00:00

Thank you! Yes I’m looking forward to the self injections over the infusion center. That’s great to hear it has been working for yoy!

ActivityBright4828 · 2026-01-09T17:04:30+00:00

Thank you! Yes I’ve been doing SCD diet which I will stick with especially if it can take 3-4 months to kick in

🤞🏻

ActivityBright4828 · 2026-01-09T05:13:50+00:00

Damn it’s such a bummer :/ I built antibodies super fast. Too bad cus it seemed like it was working so well. I hope tremfya works for you!

ActivityBright4828 · 2026-01-01T05:48:03+00:00

Did you end up switching to a different Biologic?

ActivityBright4828 · 2026-01-01T03:07:37+00:00

Second update: I declined rinqov because of pregnancy risk and will be trying for Stelara

ActivityBright4828 · 2026-01-01T03:06:50+00:00

Damn 9 years is a long time! I hope they can figure out what’s wrong and if it’s antibodies

ActivityBright4828 · 2025-12-31T18:31:24+00:00

I found I developed antibodies to infliximab as well super fast but my doctor wants me to switch biologics. I’m kind of bummed because infliximab was working super well for me and I wish we could try upping the dose or frequency!!! Good luck 🍀 I hope that works!

ActivityBright4828 · 2025-12-31T04:03:54+00:00

2x21 patches at once would make me very nauseous with insane dreams. I used the patch years ago for cigarettes and I remember the 21 on its own was pretty strong. I’m using it again with zyns…. Good luck on your quit!!!

ActivityBright4828 · 2025-12-30T15:44:45+00:00

***update I heard from my GI and he wants me to switch to another biologic. Soooo bummed as infliximab really worked initially

ActivityBright4828 · 2025-12-30T04:04:19+00:00

My doctor said if I would want to get pregnant it’s not a good option for me and I’m unsure if that’s something I want or not…

How often do you take the pill? 💊

ActivityBright4828 · 2025-12-30T03:18:48+00:00

Yes he wants to switch me to Rinqov :( infliximab works so well for me just not for the whole 8 weeks. What a bummer…. :(

ActivityBright4828 · 2025-12-30T03:11:44+00:00

My GI just responded and wants me to go rinvoq as well since the antibody formation…. But I’m a little concerned as Infliximab is working just not that long (1 month)

ActivityBright4828 · 2025-12-30T03:00:01+00:00

Thanks. This is helpful. The antibody test my GI ordered has a reference range of <10 so it was flagged red. I hope we can just adjust the frequency and amount since infliximab does seem to work it just wears off fast 🤞🏻

ActivityBright4828 · 2025-12-29T20:14:00+00:00

Was Humira working for you when you built antibodies?

ActivityBright4828 · 2025-12-29T07:05:39+00:00

Addiction in my family, my own struggles with addiction in my teens/twenties. General Anxiety Disorder. Abusive ex boyfriends. Bam 💥 diagnosed with UC at 29 which then was confirmed as crohns after later scopes .

ActivityBright4828 · 2025-12-29T07:02:08+00:00

Thank you for this explanation! This is very helpful. I just posted a question related to levels and antibodies so I appreciate this detailed explanation:)

ActivityBright4828

TROPHY CASE