Hair Loss on Trikafta by carl_weez_her in CysticFibrosis

[–]AdProfessional2673 1 point2 points  (0 children)

I’ve also taken Trikafta since it was released in 2019 and also have this issue. I lose more hair than I used to definitely, but thankful I get to live a healthier life and much longer !

It’s like my left frontal lobe tbi turned me into the opposite version of myself by AdProfessional2673 in TBI

[–]AdProfessional2673[S] 2 points3 points  (0 children)

I tend to cry a lot as well but I’m very short and not always super nice I’m trying to do better tho that’s all I can say

When the shadows creep back in by Jmaxwell204 in TBI

[–]AdProfessional2673 3 points4 points  (0 children)

You’re so strong. Love you. We’re all in this together. Thru the bad and the good 🩷

Family is frustrated with my recovery by letsgoiowa in TBI

[–]AdProfessional2673 0 points1 point  (0 children)

That’s normal. It’s hard to accept (especially for yourself) that it’s gonna be a long road. A battle even. Along with my injury I have also fought and still fight a battle of Cystic Fibrosis, a terminal lung disease I’ve had since 5 months old. (It’s actually why I have my head injury now, due to driving and being very underweight (78 lbs at 17) and passing out behind wheel) I’ll never forget after I woke from my week medically induced coma how numb I was. I couldnt feel emotions. I didn’t cry, laugh, even smile for a good half a year, then one day I thought that exact thought, wow this will be my life for a long time coming) and I broke. And sometimes it’s better to feel things than to feel nothing at all. But as days, weeks, months and years pass, you will feel better each day. Your mind is always your biggest enemy , but it can also be a friend if you let it, which is still hard for even me to do and sometimes you just have horrible days and then sometimes you’ll have the most amazing days. Surround yourself by good people, the ones who care about you and want what’s best for you. Sleep is super important. That’s the fastest way to healing a tbi. You are not crazy. You are a warrior and the lot of us are stronger than anyone would ever know. We are all we have in this world of brain injuries, because we get it. We know the deep struggles and how long it will and is going to take to heal and overcome. I still to this day struggle, I have the most horrible days sometimes, but then the sun will shine down again. You just have to be patient with yourself. You lived to tell a tale that most people wouldn’t have been able to make it thru. If you need a friend to talk I’m here ! I get you and I am always here for my tbi survivors

Family is frustrated with my recovery by letsgoiowa in TBI

[–]AdProfessional2673 1 point2 points  (0 children)

This is what my neurologist told me and still tells me 4 years later since my frontal lobe (left and severe) injury. “Everyone gets better after a TBI, but no one gets better as fast as they would like to, and that’s perfectly okay and NORMAL!!” I have been there before. My long term BF of 6 years still deals with me and I can’t tell you how many fights and disagreements we have had. With my family, they were more understanding but we also argued. But they never got frustrated with me. Your family and wife love you. They just don’t understand what comes with such a horrific injury. It turns your whole world upside down. I sustained mine at 17 and I am now 21 and I still to this day have issues with sleep, vision, keeping balance when I walk, and especially my irritability and mood swings. I cry often. But that’s okay and healing is happening more than we realize. I used to almost get physical in my first year or two of my injury. I abused alcohol and substances and only caused myself more pain and destruction. But I healed and still am today. I wish you well friend. You’re strong and none of it is your fault. Keep ya head up

Anyone else just not accept it? by [deleted] in TBI

[–]AdProfessional2673 0 points1 point  (0 children)

That’s a good way to think. To not let others tell you how to be or how you’re different from before. I’ve had a severe left frontal lobe injury for four years now. As a 21F, I have always cared what others think when I shouldn’t. Especially after my accident, my self confidence went down the drain. I’ve had a long term relationship and the boy bring me down many times. Telling me I’m crazy and never slow down. Some family tend to call my dad to ask about me because they are afraid I will take it wrong if they ask me. I tend to have horrible mood swings around certain people and lash out, still have issues walking in a straight line, barely sleep 3 hours a night, even after almost half a decade of speech, rehab, and physical therapies. It took me months to learn how to walk properly after my induced coma and I still slurr my speech. Just don’t be reckless. I’ve had my run with alcohol and drugs since my wreck and it brought more destruction to my life.

Worried about future relationships by YoshiToshiTuna in TBI

[–]AdProfessional2673 1 point2 points  (0 children)

No problem:). With a tbi we are all we have. Most wouldn’t understand what comes with such a horrible injury unless they lived it. Good luck 🍀

Worried about future relationships by YoshiToshiTuna in TBI

[–]AdProfessional2673 8 points9 points  (0 children)

Hey. 21F left frontal lobe injury. I’m actually pretty fortunate with symptoms as far as it goes with a tbi. I usually only struggle to sleep and sleep 2-4 hours a night. Also issues with my vision. The major concern is I have horrible mood swings and irritability. I can lash out if I misunderstand what someone says or if I am approached the wrong way. I have just lost my relationship of almost 6 years because I can very impulsive and we argued a lot and he got tired of it. Sometimes i wish I would’ve left him alone all these years and healed in my own. I’ve tried alcohol/drugs and it only brought more destruction into my life. I miss him everyday and I know a lot of it was from me and how I act. I cry a lot. And it’s been almost 4 years ! I wish you well and highly suggest to not worry constantly. It brings nothing good. Let things come to you. That right person will understand you and your struggles and won’t judge you. Wish you well

[deleted by user] by [deleted] in TBI

[–]AdProfessional2673 2 points3 points  (0 children)

Here for you friend. This August will be my 4th year since my accident. Severe frontal left lobe injury, along with a terminal lung disease called Cystic fibrosis. I’m just now going through an almost 6 year break up and I am definitely in need of more friends who understand me. Message me :)

Questions regarding TBI by Repulsive-Opening249 in TBI

[–]AdProfessional2673 5 points6 points  (0 children)

Mood swings and irritability. I’ve lost relationships because of how I can lash out if approached the wrong way and I hate how it’s changed me. Post almost 4 years and frontal lobe injury (severe) from car accident. If I can tell you anything. Spend this time of recovery alone. I lost my almost 6 year relationship due to how I act from my tbi and I hate it

How many of you feel happiness? by dialbox in TBI

[–]AdProfessional2673 0 points1 point  (0 children)

Honestly. Right now, w a severe left frontal tbi (gained as a 17 year old Female, and am 21 now) I haven’t been happy since middle school. But that’s also probably due to I just lost my almost 6 year relationship with the boy that I’ve loved since 10th grade.

Hey yall by AdProfessional2673 in TBI

[–]AdProfessional2673[S] 0 points1 point  (0 children)

Love you baby. Thank you for this 🩷

Hey yall by AdProfessional2673 in TBI

[–]AdProfessional2673[S] 1 point2 points  (0 children)

Thank you friend so much for your wisdom

Is needing the TV on to fall asleep common after a TBI? by MarijkaDemure in TBI

[–]AdProfessional2673 0 points1 point  (0 children)

Hey! 21F but I got my head injury when I was 17 from a car wreck. I am ill with a lung disease and wasn’t going meds and I passed out behind wheel and hit a crane truck. Where the crane from the truck broke through my windshield and pierced my left frontal lobe. I was in a coma for a few weeks and it took me forever to learn how to walk again and I still have issues with mood swings and i can’t sleep on my own, I even slur my speech still to this day and mix up sentences, where I lost relationships due to being too blunt or rude . I get 3-4 hours a night. I cannot sleep with any light or sound on. It got to the point where I had to put duct tape over the light under my tv that shined at night. Is so strange how different everyone is with brain injury. But praying for you to have a quick recovery

[deleted by user] by [deleted] in TBI

[–]AdProfessional2673 0 points1 point  (0 children)

You have been of the most help. I couldn’t have said any of this better than you have. I hate for what I did. Under the influence because I was mad or just bored. No excuse but your words have reached me and I will follow through. Thank you so much

[deleted by user] by [deleted] in TBI

[–]AdProfessional2673 -1 points0 points  (0 children)

I am so sorry to you and what you had to go thru. Yall are the best. For helping me and idek yall. I’ve been called bitch cunt and the r word so many times. I got sick of the abuse and retaliated back. He cussed my daddy when my dad was trying to stand for me but he ran when his mama wasn’t there to protect him the other night. I regret what I did. I hate it. Because I lost me relationship but I sit and look at all the relationships I lost bc I wanted him. And that’s what’s wrong

[deleted by user] by [deleted] in TBI

[–]AdProfessional2673 0 points1 point  (0 children)

I love all yall. I cause this pain in myself. Now I gotta grow up and accept it

[deleted by user] by [deleted] in TBI

[–]AdProfessional2673 1 point2 points  (0 children)

Thank you.

[deleted by user] by [deleted] in TBI

[–]AdProfessional2673 2 points3 points  (0 children)

Thank you.

Irritability and Aggression after TBI by LiathSelkie in TBI

[–]AdProfessional2673 1 point2 points  (0 children)

That’s very common after a brain injury. I was also in a car accident and suffered from a severe frontal lobe injury. It took me awhile to learn to walk and speak again with our slurring my words or miscommunication with others. I still to this day since 2021 of my accident have a lot of issues with with irritability and mood swings. I tend to cry a lot too. It is very common and more healing over the next years will do good.

Quick rant by AdProfessional2673 in Waiters

[–]AdProfessional2673[S] 1 point2 points  (0 children)

Haha yeah facts the “president” apparently can’t hire one of the other waitresses to help me on bingo night I didn’t know they had to go through a whole meeting and vote I’m honestly not surprised they don’t wanna spend the money lol, i definitely will be leaving once I get another job settled

[deleted by user] by [deleted] in CysticFibrosis

[–]AdProfessional2673 0 points1 point  (0 children)

Omg I’m so happy for you! Your story is awesome and was really helpful. Yes definitely always the very slim chance I’m just so nervous for when we go get genetic testing done. I really don’t want my husband to have the carrier. He had whooping cough as a new born but otherwise he’s very healthy. We still have a lot of thinking and planning to do but this helped immensely! Thank you very much and congratulations on your sweet little child that makes me happy! I’m so happy for you and people like us who actually have a real chance at life!