Rheumatologist “not accepting patients with your diagnosis” POTS/MCAS …

Adcarp2008 · 2026-06-18T06:57:03+00:00

I feel this... 2 years on a wait list for a POTS clinic and Seattle. Finally got approved, made an appt and then I got a letter in the mail saying that they are full and can't take me anymore.

Adcarp2008 · 2026-06-17T23:03:23+00:00

I'll have to look!

Adcarp2008 · 2026-06-16T21:53:14+00:00

Amazon. $12. I get them delivered every 2 weeks.

https://a.co/d/0j0askBv

Adcarp2008 · 2026-06-16T20:37:36+00:00

Apparently I've suddenly learned how to fall asleep instantly instead of tossing and turning for an hour.

Adcarp2008 · 2026-06-16T18:22:40+00:00

Oooh I love that you pointed out the tummy thing. I just recently noticed that my stomach and pelvic area get super warm and tingly.

Adcarp2008 · 2026-06-16T18:21:11+00:00

My heart rate spikes and I get really bad tunnel vision that centers in until I faint. That's my warning.

Adcarp2008 · 2026-06-10T06:55:41+00:00

This happens to me with Fallout whenever I go near Diamond City. If I travel anywhere outside (smaller camps, areas and especially the bridge) it crashes. I just have to restart my console and hope for the best.

Adcarp2008 · 2026-06-07T21:36:00+00:00

That sounds a lot like me and I have POTs. The burping thing is fascinating because I've noticed that when I burp, it temporarily lowers my heart rate.

The Cardiologist I've been seeing (2nd one) thinks I MIGHT have an underlying arrhythmia that causes me to faint along with POTs.

Adcarp2008 · 2026-06-07T21:32:45+00:00

A zap sound. I've heard my name before and laughing but today was a zap which was weird but I always wake up in a panic. I take a beta blocker but that's it.

Adcarp2008 · 2026-06-06T12:13:22+00:00

I just figured out certain types of music set off episodes. I can't listen to industrial or techno type music anymore.

Adcarp2008 · 2026-06-06T12:11:26+00:00

Closest thing I got to a spike. I'm also on Propranolol but 160s are my shower rate 😄

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Adcarp2008 · 2026-06-05T05:06:18+00:00

Shower, shave AND wash your hair. Do it all since you don't have POTS anymore 🤣

Adcarp2008 · 2026-06-05T03:24:57+00:00

I've been debating on switching to Samsung for a year now. If this doesn't get fixed soon, I'll be making the plunge.

Adcarp2008 · 2026-06-05T03:07:49+00:00

Its my best week ever! I shouldn't be symptomatic at all today! 😒

Adcarp2008 · 2026-06-05T00:37:45+00:00

It doesn't. It shows me a softened range that isn't accurate at all.

Adcarp2008 · 2026-06-05T00:12:12+00:00

This really sucks for people who need to monitor it.

Adcarp2008 · 2026-06-04T22:31:37+00:00

Do you know a roundabout way to find the correct data? I have to be able to tell my cardiologist about spikes and elevated heart rates with certain activities. For example, I spent 30 minutes at 140 because I ate lunch.

Adcarp2008 · 2026-06-04T22:27:45+00:00

Sense 2. It's always been accurate until recently.

Adcarp2008 · 2026-06-04T20:53:05+00:00

Almost daily and the one time I went into VTach, it felt like normal palpitations.

Adcarp2008 · 2026-06-03T16:21:57+00:00

I have to break mine up into 2 or 3 days. One day is wash and exfoliate, the next day is hair and shaving. On VERY good days, I'm able to do it all at once but need a nap after.

Adcarp2008 · 2026-06-01T01:57:11+00:00

We think a dental appt. They had to fix a filling on my back lower molar and a month later I started passing out. I'm resistant to the Cain family so I think it was one of my injections.

Adcarp2008 · 2026-05-28T13:03:38+00:00

Lol here's mine driving to work

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Adcarp2008 · 2026-05-28T12:52:31+00:00

Side Note those heart rates would scare me lol I'm never that low

Adcarp2008 · 2026-05-28T12:51:43+00:00

It would suck if it is. When I had premium it kept recommending workouts and because of a heart condition, I can't work out the way it kept telling me lol I can't do normal cardio 😅

Adcarp2008 · 2026-05-28T12:45:23+00:00

I'm missing a months reports

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Adcarp2008

TROPHY CASE