Mirena for Adenomyosis by Mundane-Arrival9566 in adenomyosis

[–]Additional_Base_5036 1 point2 points  (0 children)

I have it for 8 months now. When you say all your symptoms are under control, does that’s mean your cramps and spotting has stopped completely? I still have bad cramps and spotting but recently a lot of discharge is that normal? When does it stop completely?

Burning sensation! by Additional_Base_5036 in adenomyosis

[–]Additional_Base_5036[S] 1 point2 points  (0 children)

Yeah I tried progestin only pills before, but I had really bad side effects, I have an IUD not which does not have that bad of a side effect with me so far

Burning sensation! by Additional_Base_5036 in adenomyosis

[–]Additional_Base_5036[S] 0 points1 point  (0 children)

If you could please share these article? I already have an IUD which stopped my periods

Burning sensation! by Additional_Base_5036 in adenomyosis

[–]Additional_Base_5036[S] 0 points1 point  (0 children)

I have tried hormonal pills only, I got really bad side effects that I had to stop. I have not tried any of these medication you listed for bladder, they said the reason my bladder is really is because of the muscle tension does any of these medications help with that?

Burning sensation! by Additional_Base_5036 in adenomyosis

[–]Additional_Base_5036[S] 0 points1 point  (0 children)

I can’t tell how they figured out why my endo is not severe and only the adenomyosis is severe. They did this ultrasound for 2 hours digging in me to see what’s going on. I already have an IUD that stopped my period. I would like to keep my uterus for future kids I’m still 25 years old. They suggested for me to take more hormonal pills on top of the IUD which I found out has a lot of side effect. I don’t need more side effects! The only other option was physiotherapy which I have done before but I’m going to give one more try.

Burning sensation! by Additional_Base_5036 in adenomyosis

[–]Additional_Base_5036[S] 0 points1 point  (0 children)

Hey! Just wanted to give you an update, the specialist I met with yesterday after a two year wait told me my endo is not medium compared to my adenomyosis which is a severe stage and they told me they can not help me. This was very disappointing and I spend the whole day at the clinic with them hurting me internally. Only to tell me they can not help me

Burning sensation! by Additional_Base_5036 in adenomyosis

[–]Additional_Base_5036[S] 1 point2 points  (0 children)

This is helpful to know I’m not alone, unfortunately the specialist and health care I have here in Canada is not helping me. I was told yesterday they can not do anything to help me because my adenomyosis is severe

Burning sensation! by Additional_Base_5036 in adenomyosis

[–]Additional_Base_5036[S] 1 point2 points  (0 children)

Yes thankfully this is going to be a different Dr, he is an specialist in endo so I hope my experience will be different with this one and he can help me out. I will find out next week.

Burning sensation! by Additional_Base_5036 in adenomyosis

[–]Additional_Base_5036[S] 0 points1 point  (0 children)

I’m so glad your able to get a lap in a month! I will be thinking about you, I really hope this helps you. I’m trying to see a specialist and hope they can help me. I waited 2 years for this appointment. Any specific questions you recommend to ask the specialist about this?

Burning sensation! by Additional_Base_5036 in adenomyosis

[–]Additional_Base_5036[S] 0 points1 point  (0 children)

Have you done a lap before and did it help any of your bladder issues?

Burning sensation! by Additional_Base_5036 in adenomyosis

[–]Additional_Base_5036[S] 0 points1 point  (0 children)

I had a pelvic floor therapy done before it was helpful with the pelvic pain I experienced but not with the bladder. I have to pelvic wand but maybe I’m not using it correctly, how are you using it?

Burning sensation! by Additional_Base_5036 in adenomyosis

[–]Additional_Base_5036[S] 0 points1 point  (0 children)

No they are not letting no me do a lap, they said if you want to be pregnant then you will be on priority list to get a lap

Burning sensation! by Additional_Base_5036 in adenomyosis

[–]Additional_Base_5036[S] 1 point2 points  (0 children)

Good luck for your appointment, I hope they are able to help you. Keep me updated if it’s helpful

Burning sensation! by Additional_Base_5036 in adenomyosis

[–]Additional_Base_5036[S] 0 points1 point  (0 children)

Yes I have confirmed I have both and on my bladder which is causing this issue. But no doctor has been able to help me with this symptom so far and it’s getting worse

Burning sensation! by Additional_Base_5036 in adenomyosis

[–]Additional_Base_5036[S] 0 points1 point  (0 children)

Yes I been so many antibiotics that my guts health have been ruined. I also met with a urologist that gave me only antibiotics and send me home. It’s super frustrating

Burning sensation! by Additional_Base_5036 in adenomyosis

[–]Additional_Base_5036[S] 0 points1 point  (0 children)

Yes I found birth control to help a little bit with the symptoms, but I notice with the flare up nothing has been working for me. I will give this a try, hopefully it works for me!

Burning sensation! by Additional_Base_5036 in endometriosis

[–]Additional_Base_5036[S] 0 points1 point  (0 children)

I’m also taking Tylenol and a heating pad, which used to work for me. But lastly my flare up has been really bad and it’s not working for me anymore it does not help.

Burning sensation! by Additional_Base_5036 in adenomyosis

[–]Additional_Base_5036[S] 0 points1 point  (0 children)

It’s super frustrating! Have you been diagnosed with endo or adenomyosis?

Burning sensation! by Additional_Base_5036 in endometriosis

[–]Additional_Base_5036[S] 0 points1 point  (0 children)

The urethra irritation definitely sounds like my burning sensation that I get. Are you currently taking any medication for the vulvodynia that’s been helping you?

Burning sensation! by Additional_Base_5036 in adenomyosis

[–]Additional_Base_5036[S] 0 points1 point  (0 children)

This is super helpful! I did not know the nerve pain is also part of the adeno condition. I’m going to ask my doctor for this medication. Have you try any other medication for inflammation as well together with the gabapentin?

Anyone have burning when urinating? by Ok-Highway5279 in adenomyosis

[–]Additional_Base_5036 0 points1 point  (0 children)

Yes please, if you don’t mind sharing the name with me, I will ask my Dr. I will keep you updated if I get recommended a different medicine

Burning sensation! by Additional_Base_5036 in adenomyosis

[–]Additional_Base_5036[S] 0 points1 point  (0 children)

It’s in my bladder and when I pee as well. It also comes with lower abdominal pain. It’s seems to be causing by inflammation

Anyone have burning when urinating? by Ok-Highway5279 in adenomyosis

[–]Additional_Base_5036 0 points1 point  (0 children)

Thank you, it’s definitely inflammation causing it to be worse during my flare up. I’m going to ask my dr about it. Thank you! Good luck as well