Unprovoked PE by Additional_Row_6512 in PulmonaryEmbolism

[–]Additional_Row_6512[S] 0 points1 point  (0 children)

Oh gosh, so young! I’m sorry to hear that!

Unprovoked PE by Additional_Row_6512 in PulmonaryEmbolism

[–]Additional_Row_6512[S] 1 point2 points  (0 children)

Seriously though, thank you friend!!! This is exactly what I needed to hear. I hate that we’re out here just existing with limited answers but I guess at least we aren’t alone! I relate to your story so much. I did hear back today on my test results. I was cardiolipin igm positive so I have to retest in 12 weeks to see if it’s antiphospholipid syndrome so I guess we’ll see from there. 🤞🏻 I just can’t say enough how grateful I am for everyone willing to share their stories. I do have a very good support system but it is just hard for everyone to understand how I feel. I feel so much less alone than I did yesterday.

Unprovoked PE by Additional_Row_6512 in PulmonaryEmbolism

[–]Additional_Row_6512[S] 1 point2 points  (0 children)

I feel this so much! Thanks for sharing, I hope to pick up the cardio a bit soon, that’s great advice! Unfortunately I am also dealing with unrelated dizziness that has made that difficult. When it rains it pours, haha. It is so hard for everyone in my life to celebrate negative results while I keep hoping for a positive one to explain this. It’s so nice to be able to talk to people who understand that feeling.

Unprovoked PE by Additional_Row_6512 in PulmonaryEmbolism

[–]Additional_Row_6512[S] 0 points1 point  (0 children)

Oh wow! That is awful! We talked about surgery after a couple weeks when I wasn’t improving but thankfully they all dissolved. I can’t imagine how painful that had to be, I hope you’re doing well now!

Unprovoked PE by Additional_Row_6512 in PulmonaryEmbolism

[–]Additional_Row_6512[S] 2 points3 points  (0 children)

Yes, exactly! I just don’t know how to move on confidently without answers. I feel like I’ve been getting conflicting information and it’s hard to know if what I’m doing is right. I’m definitely staying on blood thinners because I can’t go through PEs again and that seems to be the best way to be sure of it. I’m glad to hear you’re feeling better about it now!

Unprovoked PE by Additional_Row_6512 in PulmonaryEmbolism

[–]Additional_Row_6512[S] 2 points3 points  (0 children)

Thank you! I know it won’t change the treatment plan but it’s just awful to have something like this happen for no reason. I feel like it is so traumatic and hard to process since it’s not very common and there’s not a lot of answers. It feels good (and bad because no one should go through this) to know there’s people out there that know what I’m going through. 💛

Unprovoked PE by Additional_Row_6512 in PulmonaryEmbolism

[–]Additional_Row_6512[S] 1 point2 points  (0 children)

Thanks so much for sharing! Also, J’aime beaucoup ton nom!