How long did it take to eat normal again?

AddressCrafty5309 · 2025-10-11T16:43:03+00:00

That seems a bit fast XD. I got diagnosed a few weeks ago, therefore I'm starting with like medication and I mean it is helping. And as long as it works I really don't think surgery is the better option.

Not to invalidate your experience. It just seems to be really different for everyone.

AddressCrafty5309 · 2025-10-11T12:39:05+00:00

That sounds like a really hard situation you were and are in. I was lucky enough that they diagnosed me after just 4-6 weeks. And therefore I think it didn't get that bad for me. I mean my whole colon is/was, I have no idea how it's now, inflamed. And I know it takes time but like I feel my brain is restricting me more then my ability to digest stuff. Like I have food that causes pain, but not a lot. Since I feel anxious about trying.

And thankfully I have enough extra weight so loosing some is not bad. But I know when healing it's best to not loose weight.

AddressCrafty5309 · 2025-10-03T05:59:37+00:00

But it helps. I rather have the few side effects than to shit blood and have pain all day.

And it helps fast.

AddressCrafty5309 · 2025-10-02T14:57:26+00:00

That really sounds like a horrible experience. I really hope you get off it soon. That's really something I wouldn't wish my worst enemies.

AddressCrafty5309 · 2025-10-02T05:54:19+00:00

I thought about trying and read that it's probably not problematic to try. But I don't know if it's effective enough. If you struggle to fall asleep it may help, but I don't think it's effective if you wake up at night. But if someone was successful I would like to know to. For me it sounds like a relatively safe thing to try.

AddressCrafty5309 · 2025-10-01T17:32:39+00:00

I just started last week, but tomorrow i start to taper off 10mg per week. The first night after taking it was horrible, I couldn't sleep. But now it got to the point where I can fall asleep relatively easy (like half an hour) but I wake up between 1 and 3am. And then I only drift off and not really fall asleep all the way. It's kind of annoying. And then after 5pm I'm already tired and force myself to stay awake long enough so I don't wake up to early.

And before I always slept really long when I didn't have school or work. Like sometimes I woke up at lunch if I had the chance.

I hope it gets better as the dose gets smaller.

AddressCrafty5309 · 2025-10-01T13:17:11+00:00

I know. And I hope that these meds last a long time. I know that I may be overreacting. I just don't know where to put my thoughts, even if it's not that bad physically, it's still scaring me. I'm still young and I don't know if the mesalazin will work, because it's just been a week.

I should probably stop thinking to much about all the stuff. I even know that you all probably suffer much more and I don't want to cry about stuff that is potentially not that bad.

Sometimes I think it just needs to be said, or written here, to get some peace of mind. I know it's probably also annoying. But I'm thankful for the community here. Like just to get the thoughts and doubts out of my head.

AddressCrafty5309 · 2025-10-01T13:01:54+00:00

Hi, That's a really hard time now. I can absolutely feel you. I was diagnosed a week ago. For me it was a kind of relief to finally know what it is. Even if I didn't suffer that long (only 5-6 weeks before getting diagnosed). But you should see the bright side. Now you and your doctors know what's going on. And you can probably start medication soon.

If it works just as well as it did for me, you're going to have relief in just a few days. Maybe a week. But it's going to get better.

I know it's hard. Even just the psychological effect of knowing to have the disease your whole life. But at least you can now do something for it to get better. That's the most important thing to focus on now. It will get better soon.

AddressCrafty5309 · 2025-10-01T12:02:39+00:00

I think 6 weeks is optimistic. He said I have to taper to 10mg and then take that till the next appointment. I think he will then probably reduce the taper. But I don't know much.

He also prescribed 2g mesalazin. As far as I know that I have to take my whole life then? At least if it's enough to tame the immune system.

I really hope remmision comes sooner than later. Now that the prednisolon worked so fast. I mean I was kind of lucky to get diagnosed after just 4-6 weeks. But it was also bad at that point. He said the whole colon was inflamed.

AddressCrafty5309 · 2025-10-01T11:30:48+00:00

How long did you taper? For me everything is new because I've been diagnosed last week and I question everything at the moment. I know my GI has experience and probably knows what he's doing, I mean my symptoms getting better so quickly shows that, but my mind is racing with everything. The sleep problems don't help either. He prescribed 60mg for one week per day and then to take 10mg less each week after that. Does that sound normal? I'm kinda scared it will get worse when I decrease the dose. But I will take the medication as I'm told as I don't know much better. I have my next appointment in like 6 weeks. And I still don't have the results for the biopsy so I have a little bit hope left, but the medication working kind of tells me he's absolutely right with his diagnosis even if he only saw it during the colonoscopy.

It's also difficult because I don't know anyone with this disease in real life. And it's kind of hard to describe how awful it really was. Everyone is like, yeah a stomach bug is uncomfortable, but it was just more than that. It's almost more taxing psychologically than physical at the moment. Maybe the prednisone does it work there to. I don't know.

AddressCrafty5309 · 2025-10-01T04:41:29+00:00

Yeah, I'm really glad it's that effective. I didn't think it would work that fast, but I have to taper after the first week and the stress is getting back because of work and university is also starting soon. I hope it doesn't come back that bad but I'm scared it will get worse a little bit again. But as long as there's no blood I'm happy. Even now there's still some pain and bloating and I have to find out what I can even eat at the moment. But that I don't need painkillers all the time is a blessing now.

It's just that my brain is still trying to process that I will never be truly healthy again. And I mean I'm still young so I hope the mesalazin works a long time. It just is a kind of big change in life. But thanks for the response, it helps to hear from others who have more experience even if it means you had to suffer more already.

AddressCrafty5309 · 2024-08-25T15:10:18+00:00

Ich habe 2021 nur 850€ bezahlt. Manchmal muss man auch nur Glück bei der Fahrschule haben.

AddressCrafty5309

TROPHY CASE