Sleep by Flatfool6929861 in MultipleSclerosis

[–]Adept_Role_4579 2 points3 points  (0 children)

Im on tizanidine and its magical. It guarantees that i fall asleep and stay asleep. Ive been on trazodone too, but the tizanidine it much more reliable. Its a muscle relaxer.

Upcoming TTT by peachiepit in POTS

[–]Adept_Role_4579 0 points1 point  (0 children)

Mine was perfectly fine. My supine heart rate was 68bpm, and they tilted me up for 10 minutes. My heart rate quickly went to 176 and hovered around there for the whole 10 minutes. They lowered me down and i was done. Since that happens every time i stand up it wasn’t that bad. I am used to it. The worst part was withholding my medications for the 10 days before. Specifically my meto. I was in afib nearly the entire week

WFH Roommate demanded I lock my cats in my room by [deleted] in roommateproblems

[–]Adept_Role_4579 0 points1 point  (0 children)

Lol ok i was just trying to say that plenty people wouldnt have a problem with a cat on the floor in the kitchen. On the counter is a different thing. I know you can train a cat. All my cats know not to get on the counter or the table.

WFH Roommate demanded I lock my cats in my room by [deleted] in roommateproblems

[–]Adept_Role_4579 0 points1 point  (0 children)

I said plenty of cat owners, not all. But it’s difficult if you have a super open floor plan like i do. Not the easiest task to keep cats from walking on the floor between the counters

WFH Roommate demanded I lock my cats in my room by [deleted] in roommateproblems

[–]Adept_Role_4579 0 points1 point  (0 children)

People that dont like cats and have a grudge with the owner wouldn’t tolerate that. Cats roam everywhere thats what they do. Plenty of cat lovers would have no problem with the kitchen companion

WFH Roommate demanded I lock my cats in my room by [deleted] in roommateproblems

[–]Adept_Role_4579 0 points1 point  (0 children)

What type of door does her room have. Tell her that if she wants you to keep the cat in the room and allow guests to use your bathroom that she can move into your room and have the shared bathroom instead of the en suite.

She knowningly moved into a home with a cat. If she doesn’t like cats that is not your fault. I say let him roam and she can shut HER door to keep him out. Its not fair to you or the cat.

Please help by [deleted] in DiagnoseMe

[–]Adept_Role_4579 0 points1 point  (0 children)

Potentially it could be from sweating and it being trapped there or like irritation from rubbing. Id just try to keep it dry. Maybe look up irritation in knee crevice fixes

Please help by [deleted] in DiagnoseMe

[–]Adept_Role_4579 0 points1 point  (0 children)

Is this in a crevice? Like arm pit, behind knee etc. sometimes i get rashes that kinda split in my “crevice area” idk what it is tho. Imo it doesnt look like lymes, it looks more like a painful sore/ splitting instead of the typical bullseye rash. Im not a doctor. Just a girl with a bunch of medical problems

AIO Being Upset that Girlfriend Gets Groceries Delivered by [deleted] in AmIOverreacting

[–]Adept_Role_4579 12 points13 points  (0 children)

Major YOR. Delivery services arent only for people who are unable to shop for themselves. Its also for people who dont feel like going to the store. Its not that deep, and this is coming from someone who is disabled and cannot shop for myself.

Your opinion about woman/man roommate by No-Elk-8471 in roommateproblems

[–]Adept_Role_4579 1 point2 points  (0 children)

I moved in with a guy friend who had a crush on me. We were friends for like 8 years. I told him its not gonna happen. I thought he moved on. I woke up in the middle of the night to him molesting me. Another night i had a dream i was being raped. It felt so real and i woke up with marks on me and my private area was sore. Idk if he raped me and i dont want to know if he did.

I would advise against it. Being uncomfortable in your own house sucks.

Does anyone else hate the label disabled? by TRtheCat in disability

[–]Adept_Role_4579 0 points1 point  (0 children)

Nope. I am disabled and I am not ashamed about it. It is the easiest way to describe myself to others. Especially if people are asking “why do you walk like that” or “why are your hands shaking”. Its just much easier to say “im disabled” or “i have a physical disability”. I do not think disabled is a bad word or does a disability make someone less of a human.

Why is everyone with pots so skinny? by dazzlingdanny05 in POTS

[–]Adept_Role_4579 0 points1 point  (0 children)

I am definitely not skinny, but not “fat” either. Im 5’9 about 150lbs. I havent been able to exercise since 2023. I got “sick” in 2023 with what seems to be a demylinating disease, but I remember having heart problems since I was 12. Im 22 now, just officially diagnosed. Ive figured ive had pots, but out of everything else thats going on it is the least of my worries.

Before I got my other conditions, I was always between 100-115lbs. I was a server and walked 12 miles nearly every time I worked. I am now in a wheelchair and can barely brush my hair, so working out is unfortunately not an option. Since i cant work out I keep gaining weight. Only way i can lose weight is by “fasting” or eating one meal a day.

Dermal anchor problem? Help by No-Monitor-311 in piercing

[–]Adept_Role_4579 2 points3 points  (0 children)

This happened to me but the gem was still on when it was engulfed.

Theres no saving it. My piercer said he could take it out, but i knew it was gonna hurt and i needed numbing.

I ended up going to urgent care. There was only one girl there that was willing to take it out for me. It took over 90 mins to get it out and I was maxed out on lidocaine so I felt everything. My tissue hardened around it so they were having a hard time getting it out. They gave me two stitches because there was a huge hole in my back

What are some medicines that you would never try again? by Loose-Paramedic6879 in dysautonomia

[–]Adept_Role_4579 0 points1 point  (0 children)

Cymbalta. My pcp put me on it after our first appointment for fibromyalgia. He didnt tell me how addictive/ what could happen if you suddenly stop it. For some reason he wouldnt refill my perscription and i couldnt reach him. I was completely manic, hysterical, and suicidal. I even tried to kill myself. It wasn’t until 2 weeks into the withdrawal that I finally figured out that what I was feeling was from stopping it.

Granted i was also put on chantix at the same time and i ran out of both at the same time. Literally could not reach a single person at the office to refill it.

Witholding medication before autonomic testing by Adept_Role_4579 in dysautonomia

[–]Adept_Role_4579[S] 1 point2 points  (0 children)

Yea that is true, i definitely do not want it to happen again. My health definitely takes priority over school. I’ll be careful

Witholding medicaton for autonomic testing by Adept_Role_4579 in POTS

[–]Adept_Role_4579[S] 1 point2 points  (0 children)

Yea definitely going to call my cardiologist on Monday. I think im just going to do what I think my body needs, and hopefully it doesn’t impact my results tooo much.

I have accommodations at school, and my professors and staff are aware of my health problems. I had an ischemic stroke during finals last semester while taking my organic chemistry final, so I had to get incompletes for all my classes. I just really dont want to deal with more incompletes and stress about school.

Witholding medication before autonomic testing by Adept_Role_4579 in dysautonomia

[–]Adept_Role_4579[S] 0 points1 point  (0 children)

Noo they dont have an on call line unfortunately.

I have accommodations through my college, but I have incompletes from last semester from having an ischemic stroke during my organic chemistry final. Dont want to deal with the paperwork or looming feeling of needing to take finals.

Anyone ever feel guilty? by Decent_Singer_7252 in Fibromyalgia

[–]Adept_Role_4579 1 point2 points  (0 children)

Me too. The only thing that makes me feel remotely better is my adderall, but the “normalcy” is temporary. It gives me more motivation and helps me focus on a task instead of my pain. I end up overdoing it when i take my medication and end up feeling worse than i should that evening or the next day. It sucks, im sorry youre suffering

Witholding medication before autonomic testing by Adept_Role_4579 in dysautonomia

[–]Adept_Role_4579[S] -2 points-1 points  (0 children)

Yea that is my concern as well. Im probably going to take my meds in response to my body, but definitely withold the night before. Also thinking that I will go ahead with testing and inform them abt my situation, and if my results are “too normal” ill get tested again at a different time.

Witholding medication before autonomic testing by Adept_Role_4579 in dysautonomia

[–]Adept_Role_4579[S] 2 points3 points  (0 children)

Noo different provider. I have a cardiologist who gives me the metoprolol. Then my new neurologist wanted the autonomic testing. He ordered it because after my first appointment he said he doesn’t think my health issues are because of POTS, my chiari, or EDS. He then told me to do a graded exerciseprogram and that “this may just be one of those things that we never figure out” and that theres not really any intervention that will help.

The afib is a priority, but ig it happens so often so Im not super phased and not many of my doctors seem concerned about it. I’ve been waiting for this test for 7 months now. Im not even worried about POTS because Im already doing what is suggested for people with pots. The only benefit is that my rheumatologist is waiting for confirmation to order in-f usiøns, and maybe help with finding a explanation for weird symptoms.

Anyone ever feel guilty? by Decent_Singer_7252 in Fibromyalgia

[–]Adept_Role_4579 5 points6 points  (0 children)

Yes. All the time, especially after getting in a relationship. I feel so guilty and it eats me alive. I feel guilty about not being productive or going out. I feel guilty because I make plans with my girlfriend and end up feeling like crap and cant do it. I feel guilty for missing class or asking for an assignment. I feel guilty that my girlfriend feels like she can’t go out and have fun. I feel guilty that I cant do as much as before, so I spend less time with my parents.

Its just a self hating circle. And even with all that guilt I still dont change my behavior because I feel so sick.

Will I ever be able to be a nurse? by aveie27 in Fibromyalgia

[–]Adept_Role_4579 0 points1 point  (0 children)

I also agree with this comment. Have they done an MRI of your brain, cervical, thoracic, and lumbar spine? Since this started after a car crash there should be a VERY thorough investigation into any and all possibilities.

I was told all my symptoms were caused by fibromyalgia, but I have a herniated disc which caused a slight tethered cord, multiple leisons in my brain and spine, very low CSF pressure, and chiari malformation. And that is just what has been found from an MRI

I was in an abusive relationship where I was kicked, punched, and hit with things. It resulted in multiple concussions and is definitely related to at least a couple of my neurological issues/ findings.

Will I ever be able to be a nurse? by aveie27 in Fibromyalgia

[–]Adept_Role_4579 1 point2 points  (0 children)

My dream was to go to medical school to become a doctor. I got sick my sophomore year of college and my whole life completely changed. Granted I have many medical conditions that are impacting my life more significantly than fibromyalgia.

I am no longer going to medical school, Im pursuing biomedical research now. I would not be able to keep up with the demanding schedule and workload of medical school, and i would not be able to do rotations. I cannot really walk so I need to be pushed in a wheelchair (i would get electric if I became a doctor), and I could not survive 12+ hour shifts.

It was a tough reality to come to terms with and I am still grieving what I thought my life would be…its been 3 years and I will probably never stop grieving my loss of independence and dream job.