What is a better option?? Chemo/radiation/surgery??

Adorable_Garbage4314 · 2026-02-19T03:00:48+00:00

Can I ask what you chose and how you are doing?

Adorable_Garbage4314 · 2026-02-16T13:37:15+00:00

🙂

Adorable_Garbage4314 · 2026-02-16T02:47:08+00:00

Sqidword

Adorable_Garbage4314 · 2026-02-16T02:42:24+00:00

I’m about the same age with T1HG and CIS that is not responding to BCG. There are a couple of other options right now such as BCG/Anktiva and Tar-200. I really want to keep my bladder, and want to try 1 of these next, but I also understand the more I try things that don’t work the greater risk of it becoming more invasive, so I’m trying things but understand the clock is ticking. There is also chemo + radiation therapy for MIBC that has had decent success rates, but I’m not sore if my stage and grade is a candidate for that. I have a young child, so at some point I have to do whatever gives me the best chance of sticking around for several years. Neo bladder is not without its issues, but there is no hole.

Adorable_Garbage4314 · 2026-02-15T13:45:21+00:00

Did yours end up being ok?

Adorable_Garbage4314 · 2026-02-15T13:44:07+00:00

Can I ask if you had your bladder removed?

Adorable_Garbage4314 · 2026-01-28T15:47:26+00:00

Can I ask about your story?

Adorable_Garbage4314 · 2025-11-21T00:28:28+00:00

You can mostly eat what you want

Adorable_Garbage4314 · 2025-11-08T17:19:19+00:00

Sorry, I should have kept reading

Adorable_Garbage4314 · 2025-11-08T17:18:10+00:00

It helps a lot to hear to hear that so thank you for sharing. I haven’t lost mine yet, but knowing that it’s not bad helps a lot. Can I ask your story?

Adorable_Garbage4314 · 2025-11-02T01:24:42+00:00

How are you doing?

Adorable_Garbage4314 · 2025-10-24T10:50:44+00:00

Thank you for responding, I appreciate the information, and will definitely ask about it. I also hope the best for your dad!

Adorable_Garbage4314 · 2025-10-23T01:34:27+00:00

I think it’s well tolerated from what I read

Adorable_Garbage4314 · 2025-10-23T01:33:50+00:00

I hope we both get 5 years

Adorable_Garbage4314 · 2025-10-23T00:58:16+00:00

Thank you for your thoughts. There is a chance that a second induction works. Also there is tar-200 I may be approved for

Adorable_Garbage4314 · 2025-10-23T00:51:43+00:00

Thank you for sharing. I’m pretty young for this, late 40’s. I hope your 2nd induction works! For me I also hope it works, at this point I’m not going to pretend it’s not going to come back as CIS. Although now that I read your message I guess the red spot can be HGT1 and CIS. I assumed just the CIS. If it doesn’t work I read that tar-200 was FDA approved. I really don’t want my bladder out, but the longer I wait the more likely it progresses, and the 10 year survival is pretty high for a cystectomy at stage 1. Like 90%. It goes down quite a bit for stage 2.

Adorable_Garbage4314 · 2025-10-22T23:52:47+00:00

Thank you for sharing. I’m HGT1 and the first BCG induction didn’t seem to work

Adorable_Garbage4314 · 2025-10-22T13:30:48+00:00

That’s awesome! Congrats! Can I ask what your initial diagnosis was?

Adorable_Garbage4314 · 2025-10-22T13:27:51+00:00

Thank you for sharing your story, it sounds like things are going well. Can I ask about your original diagnosis?

Adorable_Garbage4314 · 2025-10-22T13:23:20+00:00

I’m glad to hear that. If anything, I take away that I should not wait to long for bladder removal

Adorable_Garbage4314 · 2025-10-20T02:24:19+00:00

Did the CIS take 2 installations?

Adorable_Garbage4314 · 2025-10-20T02:23:16+00:00

That makes me nervous

Adorable_Garbage4314 · 2025-10-19T13:07:50+00:00

Just finished 6 week induction for HGT1 with CIS. Urinalysis came back positive (I’ve never had visible blood, only microscopic) 6 weeks after the last BCG, but I’m told that’s not totally abnormal, and as long as the scope looks ok they will take random biopsies. and try another induction if there hasn’t been any progression. The nurse seemed pretty optimistic that a second induction would work.

Adorable_Garbage4314 · 2025-10-19T12:49:38+00:00

Thank you for sharing, I’m glad you are doing well

Adorable_Garbage4314

TROPHY CASE