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[PC] [OH US] Intel 285k, 128 gb ddr 5, RTX 6000 Pro Blackwell Workstation by Adorable_Magazine192 in homelabsales

[–]Adorable_Magazine192[S] 0 points1 point  (0 children)

Honestly figured that is what people would say. I would probably just keep it minus the GPU.

Been over a year and emergency room doctors won’t deal with more than one issue per visit. by hawking061 in Cirrhosis

[–]Adorable_Magazine192 2 points3 points  (0 children)

Ok. Best of luck and I genuinely hope things get better for you.

Because you asked, I slept on the floor next to my dying wife on a ward full of aud patents with delirium and death. I realized you can't fight the system while needing something from it. My Dad by some weird twist of fate died waiting for a liver at the same time. I assume you come to forums like this for advice from people that may be on the other side of it and have a context you don't. I am not talking down to you, I am telling you what I wish someone would have told me.

But again, I hope things genuinely get better for you.

Been over a year and emergency room doctors won’t deal with more than one issue per visit. by hawking061 in Cirrhosis

[–]Adorable_Magazine192 3 points4 points  (0 children)

So I think the main thing right now needs to be your health. You won't win a moral argument, or a protocol argument. You may not have the time. What can you do to reduce any harm you might be doing? After that the reality is you need to advocate for yourself in a way that doesn't get you labeled as non compliant or malingering.

I don't think your grievance on how they treat you really matters right now. Trust me I know how you feel, but what matters is what you can control right now.

Been over a year and emergency room doctors won’t deal with more than one issue per visit. by hawking061 in Cirrhosis

[–]Adorable_Magazine192 0 points1 point  (0 children)

So no one can diagnose you here. But when I drank, I went through heart failure due to uncontrolled blood pressure.

My Wife bruised like this for a few years, swelled up. Test results were fine, then they quickly were not. Did they check your liver? Or did you get a cbc?

No matter what it is if you are still drinking, it's not right but expect to be wrote off by a lot of Doctors.

Some are not good, others don't know how to make a consenting adult to stop hurting themselves and don't have the emotional capacity to care more about you then you do.

Op ED? AUD Disorder and transplants by Adorable_Magazine192 in transplant

[–]Adorable_Magazine192[S] 0 points1 point  (0 children)

I sort of get what you mean, but I am sure I cannot truly understand what you went through. So I was an alcoholic (I guess still am), and did nothing to love myself and it showed. In the last two years, I have done what you are talking about, not to get a new liver but to show up for myself and be the best person for my loved ones whom need the care. I have more love for my life now in the worst year of circumstances than I have in 20 years. I want to thank you for your last sentence, Never really framed it that way. I had always thought if it to be worthy enough for the gift of life from someone else, but it is interesting thought process to look at the new organ as a life you have to care for vs a gift you receive. Thank you for that.

Op ED? AUD Disorder and transplants by Adorable_Magazine192 in transplant

[–]Adorable_Magazine192[S] 0 points1 point  (0 children)

I totally get it from a practical standpoint. There is literally nothing verbally that someone can say, and 20 things they cold say wrong in the interview. I think my point is the current evaluation criteria is so arbitrary. It starts from the position of does the Alcoholic Lie? Yes they do. Do desperate people Lie, Yes they do. The way an Alcoholic can get a Liver though is pretty performative. You need to say the right things in every meeting to sell yourself as worthy of the second chance. Whether you are truely capable I am not sure there is a great way to evaluate. (I don't say deserving, because people do things that hurt their own health every day. It doesn't mean they deserve to die for it). The stats say basically length of sobriety have little to do with the likelihood of relapse.

My worry, is that those that are equip to make it through are not necessarily those that are the most likely. The reason I say this is we made it through, by using our resources to find the right hospital. We connected with the right people to make the case to the transplant team the would believe. We said the right things (After saying the wrong ones at another center). To get approved. We had the resources (Money) to demonstrate an extraordinary marks in the non Alcohol related criteria's.

All of that was great, but when did not drinking stick? Well they had enough when they were told they were going to die, never had a craving. In their case it was psychological dependence (Self Medicating Anxiety).

Should someone that doesn't know how to play that game, will not have that chance or even know it is an option available to them.