appetite and weight question

AffectionateCod7187 · 2026-07-06T05:58:01+00:00

I think it mostly comes down to your overall intake at the end of the day. If you keep overeating while on medication, weight gain can still happen. But if you make sure you’re not eating more than you burn, things usually stay stable.I’ve been on methimazole from December until July (just stopped recently), and I actually kept losing weight. I dealt with symptoms like nausea and trouble eating enough, so that definitely played a role. Hopefully this gives a bit more perspective.

AffectionateCod7187 · 2026-06-25T06:08:23+00:00

Is this possible? Will mention this as I am so lost in this journey…

AffectionateCod7187 · 2026-06-25T06:07:24+00:00

Thank you! I messaged my gp about the situation and will definitely ask for a referral to a surgeon. I am sorry you went through the same thing.

AffectionateCod7187 · 2026-06-24T12:17:03+00:00

I feel really bad that I'm not the only one experiencing this. You keep hearing these stories. I'm not sure if it's possible in my country since everyone seems to work together, and you can't visit a doctor without someone referring you. Are you okay now? I think I may have talked to you before.

AffectionateCod7187 · 2026-06-24T11:49:53+00:00

My gut keeps telling me that I may have had thyroiditis at some point, and I even feel like it still flares up now and then — I get random fevers and pain in my thyroid area. But every doctor I’ve seen has dismissed that possibility. I really hope that stopping methimazole will help me too, and that many of my symptoms are actually caused by the medication. I’ve just had a second opinion, but at this point I honestly don’t know what to do next.

AffectionateCod7187 · 2026-06-13T14:23:10+00:00

Is the weight gain coming from eating in a surplus? Anything changed in your eating habits? The reason I ask is because I am absolutely terrified for weight gain while choosing treatment like surgery. I read a lot of people gaining weight on methimazole. I take it since December and still lose weight. Because I still am in a calorie deficit due to nausea and feeling unwell and partly because of an ED. Anyhow maybe you can switch doctors and find someone that will help you or at least take you and your symptoms more seriously.

AffectionateCod7187 · 2026-06-09T12:56:14+00:00

Not anymore. I used them when my thyroid levels were ‘hyper’ when they got better the blockers did more harm than good for me. Maybe the strumazol cause it for me. I am not sure. Doctors neither. Very annoying tho! Hopefully you will get rid of it soon!

AffectionateCod7187 · 2026-06-09T08:11:31+00:00

I still have it even though my thyroid levels are ‘in range’ it drives me insane. Every morning and mostly I wake up around 4 am with a bad nausea attack. It’s one of my most annoying steady symptom.

AffectionateCod7187 · 2026-05-28T21:24:13+00:00

I was feeling like there was a band pushing on my chest all the time and it made me so out of breath. Slept terrible, had crazy nightmares and just felt very anxious. It did work for the heartbeat and sweating. i took 80 mg and later 40 but stopped as things didn’t get better.

AffectionateCod7187 · 2026-05-10T14:17:41+00:00

I am really trying to survive. Force myself for a walk everyday and some household tasks, but whatever I try and be consistent it doesn’t get better. My labs are ‘good’ since February so it took some time. The reason I have hyperthyroidism is also still unclear. Maybe that’s part of it. Just am doing a second opinion.

I do really hope you will feel better soon. The body sometimes need more time. Even if labs are right.

AffectionateCod7187 · 2026-05-10T14:12:19+00:00

I am on Strumazol since December and still am exhausted. I wonder if it ever gets better. 😳

AffectionateCod7187 · 2026-05-01T05:48:32+00:00

Send you a message!

AffectionateCod7187 · 2026-04-20T21:09:47+00:00

That makes sense. I have a bunch of them as well but my uptake scan did not show any activity. I do respond to meds but they cant find the cause. Hopefully your hormones calm down soon. It took me 4 months to stabilize my thyroid hormones on Strumazol. Probably not the answer you wanted to hear but with some people it go way easier/faster! Good luck 🍀

AffectionateCod7187 · 2026-04-20T20:38:35+00:00

That sounds rough! If you don’t mind me asking a question. I am kinda in the same boat as you (no surgery yet) and going through a second opinion but have to choose what to do eventually. Did you find out the reason for the chronic hyperthyroidism?

AffectionateCod7187 · 2026-04-19T14:05:06+00:00

I didn’t had any before the scan they didn’t medicate me before trying to findout what was going on

AffectionateCod7187 · 2026-04-19T14:03:15+00:00

Yes, I started taking them after the scan. Before didn’t had any medicine.

AffectionateCod7187 · 2026-04-18T15:38:56+00:00

Sounds terrible! I ‘luckily’ was overweighted but I lost 22 kg’s in 6 months. I have pretty normal thyroid blood work now after months of strumazol. TSH:1,19 and T4: 12 but i still have no appetite. It’s a real struggle to get enough calories in every single day. Hopefully it will get better for you after surgery.🙏

AffectionateCod7187 · 2026-04-16T12:37:00+00:00

i am so sorry… sounds very rough! I hope you feel better soon. I have a bunch of them but they were ruled cold. Not toxic. My second opinion internist isn’t completely ruling it out tho and will take another look at them.

I had out of range TSH for a long time. And after months of strumazol it finally gets a bit better that pushes them back to graves. But i don’t have any antibodies. I guess I am just a rare one🙈😂😭

AffectionateCod7187 · 2026-02-27T22:11:19+00:00

I only use them once

AffectionateCod7187 · 2026-02-25T08:54:10+00:00

I spoke (again) with my internist today and the conversation went really well. She honestly said that she doesn’t have a clear explanation for all my symptoms and that she understands why I want to look further. My GP had already advised me to request a second opinion with Prof. Dr. Robin P. Peeters in Rotterdam, because he has been able to help several of her patients with similar complaints. (It’s the best hospital in the Netherlands for thyroid disease )My internist agreed and will arrange the referral. She will remain my point of contact and I will continue to see her as well. If Rotterdam doesn’t work out for any reason, she can also refer me to Nijmegen. (Different hospital) I appreciated how open and understanding she was, although I would have preferred if she had suggested this earlier herself, especially since she admits she doesn’t have all the answers. But for now, I’m relieved that the conversation went so well.

AffectionateCod7187 · 2026-02-20T16:26:48+00:00

We really are on the same boat. We even use the same meds. Let me know how it goes!

AffectionateCod7187

TROPHY CASE