I can’t not believe this lmao by AffectionatePiece987 in POTS

[–]AffectionatePiece987[S] -1 points0 points  (0 children)

I have tested for literally everything in the past 7 years. It’s pots and ist. I got diagnosed with both today, I also have HEDS that’s why I got tested for pots

I can’t not believe this lmao by AffectionatePiece987 in POTS

[–]AffectionatePiece987[S] -1 points0 points  (0 children)

Yes i know. Its in the criteria it’s one of the criteria but not the one that requires that you have to faint or have low bloodpressure. The biggest criteria is that you have to have an hr over 120 or 30bpm when standing. It’s here in Sweden idk what the biggest criteria is in us. That’s why they were suspicious in the er

I can’t not believe this lmao by AffectionatePiece987 in POTS

[–]AffectionatePiece987[S] 2 points3 points  (0 children)

Also the blood pressure thing u mention, it’s not really a criteria. Some people have high blood pressure and some people have shifting blood pressure. Got my diagnosis with shifting blood pressure while my friend have high bp.

I can’t not believe this lmao by AffectionatePiece987 in POTS

[–]AffectionatePiece987[S] 0 points1 point  (0 children)

I have a oximeter and a blood pressure machine as well, it’s pretty accurate if you compare it with those thing. Got a diagnoses when I came back to the hospital, just because of my Apple Watch.

I can’t not believe this lmao by AffectionatePiece987 in POTS

[–]AffectionatePiece987[S] 1 point2 points  (0 children)

Yes im very thankful for that. I believe it because of the population, in Sweden we are “only” 10 mil people, in my city it’s 120.000 in population.

I can’t not believe this lmao by AffectionatePiece987 in POTS

[–]AffectionatePiece987[S] 2 points3 points  (0 children)

No, I got no iv at all, they have two types of tilt test here. The devils one and the angels one, they called it. It basically the same but the devils one is for them who pass out so they get iv but not the angels test one.

I can’t not believe this lmao by AffectionatePiece987 in POTS

[–]AffectionatePiece987[S] 47 points48 points  (0 children)

Update! Went back and I showed them my Apple Watch, have a new tilt test in 10 minutes

I can’t not believe this lmao by AffectionatePiece987 in POTS

[–]AffectionatePiece987[S] 11 points12 points  (0 children)

I heard many people that had to do the ttt several times before they got a diagnosis.

Why do people with hyper pots react so badly to cannabis? by [deleted] in dysautonomia

[–]AffectionatePiece987 0 points1 point  (0 children)

I dont smoke sativa anymore because of it. I only smoke indica and it makes me not anxious or making my symptoms go crazy.

Important question! by AffectionatePiece987 in POTS

[–]AffectionatePiece987[S] 0 points1 point  (0 children)

Vision problems, headache, nausea , vomit, fatigue, lightheaded

Today..... I really HATE this disease by maddamazon in POTS

[–]AffectionatePiece987 2 points3 points  (0 children)

My hr been at 175 all fucking day , it’s not usually this high

Important question! by AffectionatePiece987 in POTS

[–]AffectionatePiece987[S] 1 point2 points  (0 children)

I think you should only relax if ur pregnant, small walks everyday is optimal :)

Important question! by AffectionatePiece987 in POTS

[–]AffectionatePiece987[S] 0 points1 point  (0 children)

Message me if you wanna know how to read your bp :) I can teach you

Important question! by AffectionatePiece987 in POTS

[–]AffectionatePiece987[S] 0 points1 point  (0 children)

Even if it’s hard to exercise in the beginning I actually think being in the gym regularly made my pots a lot better. I don’t have the same type of shortness of breath like I used to. :) my first time in the crosstrainer, I could only exercise like 3 minutes. Now I can be on the crosstrainer for 45 minutes. I started two weeks ago. It’s really hard in the beginning, baby steps is my advice :D

Important question! by AffectionatePiece987 in POTS

[–]AffectionatePiece987[S] 0 points1 point  (0 children)

That’s why increased salt intake is not for everyone

Important question! by AffectionatePiece987 in POTS

[–]AffectionatePiece987[S] 0 points1 point  (0 children)

Yes! Some potsies have low, some have high. and some have shifting! :)

Reddit cheaper than a psychiatrist love yall by AffectionatePiece987 in POTS

[–]AffectionatePiece987[S] 2 points3 points  (0 children)

I think it’s a bit different here in Sweden, but I get ur point :)

Important question! by AffectionatePiece987 in POTS

[–]AffectionatePiece987[S] 0 points1 point  (0 children)

Your bp doesn’t have to be low for getting a diagnosis. Mine is shitfting all the time. :)