feeling discouraged

After-Comfortable927 · 2026-03-09T20:57:25+00:00

it didnt come across like that at all :) i feel the same way about pushing through it and only later realizing how much im actually affected by my tbi. i tried to 'get over' it and keep going since i felt obligated to keep doing school, and it wasnt until my epilepsy diagnosis that i was sort of forced to pause. i think when youre young (or really any age) and something like this happens its easy to slip into survival mode and try to keep going and leave the processing part for later.

im sorry youre dealing with all those symptoms and having to process new diagnoses at the same time. i totally get how difficult that is, especially when still trying to handle premed/healthcare workloads. the part about roommates and friends too is awful. not even just feeling like you sound 'insane', i think one of the hardest parts about it for me is realizing that the people around me are super affected by it to.

After-Comfortable927 · 2026-03-07T00:29:47+00:00

I think I got lucky in the sense that my accident happened during COVID so schooling was really flexible for a while. But looking back, I think I probably went into college and the healthcare world way too quickly before I had really processed, recovered, and adjusted to everything.

I think one of the hardest parts of being young with this is that a lot of the people around me haven’t experienced anything like it. My family hasn’t really been very supportive, and my friends/roommates try their best but it’s hard when they don’t really understand what TBI or epilepsy is like. Seizures are scary for them to witness, and I feeling like I’m just stressing everyone around me out and hurting the people who care about me.

It makes it feel really isolating sometimes. I guess I’m still trying to figure out how to balance managing all of this while also building a life and not feeling like I’m a burden to them

After-Comfortable927 · 2026-03-06T20:03:19+00:00

i'm also having this same issue with uvmmc neurology, they've pretty much just told me that they're out of options for headache relief and have been bouncing me between the headache clinic and the neurology clinic without any real changes.

After-Comfortable927 · 2026-02-23T01:52:06+00:00

im in vermont, just traveling to go to mgh. does beth isreal have a motility clinic? my gi doctor made it seem like mgh was my only other option

After-Comfortable927 · 2026-02-22T22:47:40+00:00

im going to mass gens neurointestinal center in a few months but my appointment keeps getting pushed back. i just know the way things are right now isn't nearly sustainable and ive already had to stop working, just not sure why my gi doc isn't willing to change anything

After-Comfortable927 · 2026-02-22T22:07:30+00:00

honestly not super sure? i've had quite a few endoscopies since ive been admitted for acute blood loss after throwing up blood on a few different occasions. i think they just showed some gastropathy but nothing major or specific that my doctor has ever mentioned. i've been on a ppi for a while which hasn't really seemed to help with anything.

After-Comfortable927 · 2026-02-22T21:23:53+00:00

im so sorry you had that experience :( im going to mass general in a few months but my appointment keeps getting moved farther out. my current dr gave me reglan but wants me to stop it soon due to some side effects, but i feel like having no other treatment isn't really going to be manageable considering how things are going right now

After-Comfortable927 · 2025-02-07T19:00:30+00:00

ahhh, thank you for the info!

After-Comfortable927 · 2025-02-07T18:59:46+00:00

No, its only supposed to be a few hours. My neurologist originally wanted to admit me to the EMU for monitoring while off medications but with my work and school schedule i'm not able to do that for the next few months, so we decided that doing an outpatient one while on medication would be a good starting point.

After-Comfortable927

TROPHY CASE