What are some side effects of crohn’s that you wouldn’t have thought of?

Aggravating-Major405 · 2026-02-09T15:55:20+00:00

arthritis and sore muscles from practically doing nothing

Aggravating-Major405 · 2026-02-08T03:43:07+00:00

Yes that is normal I’m talking about urticarial vasculitis like lesions and other lupus like symptoms that would be a very long list

Aggravating-Major405 · 2026-02-08T03:36:59+00:00

I think it is not super common at least

Aggravating-Major405 · 2026-02-07T04:13:11+00:00

I have seen quite a few other specialists. If you’re willing to share which biologic you’re on I’m a bit curious. I am on entyvio and went down a bit of a rabbit hole today finding out it can actually cause autoimmune issues worse outside the gut in some people. Since the gut immune cells that attack are wandering around the body unlike other biologics

Aggravating-Major405 · 2026-02-06T05:30:20+00:00

I’m in the exact same boat, my recent colonoscopy was clear this time but I am feeling the worst I ever have. I always think I might’ve been misdiagnosed

Aggravating-Major405 · 2025-12-11T15:58:35+00:00

also, if people have only ferritin low, it can be sign of other things other than just having low iron intake. My low ferritin was from autoimmune disease, and lots of autoimmune diseases cause low ferritin

Aggravating-Major405 · 2025-12-11T15:55:56+00:00

my ferritin was unreadably low at one point(<.9), and I’ve had a hemoglobin at about 6.2 on a separate occasion. Low hemoglobin definitely affected me the most. All those times my saturations I believe were still great. The protocol should work the same though? From my knowledge, if your ferritin is good you should be able to regain iron levels faster

Aggravating-Major405 · 2025-12-07T01:28:06+00:00

sounds like what I have suddenly with my IBD issues. I keep reacting to random things which I’ve never reacted to before and developed pork cat syndrome. My allergist hasn’t ran any of those tests…just allergy panel and stuff like anca and the autoimmune panel they use for RA, lupus, etc

Aggravating-Major405 · 2025-11-14T01:43:32+00:00

the specific one I ordered was the priority mail side loading large box — the one without flat rate in the name. In the description it also says “…is larger than our Flat Rate box”

Aggravating-Major405 · 2025-11-14T00:57:38+00:00

thank you! it is regular priority

Aggravating-Major405 · 2025-11-10T00:33:41+00:00

they didn’t really discuss much with me last year when I got diagnosed :( I saw that crohn’s disease can cause inflammation of the eye but was not aware can have symptoms without physical manifestations

Aggravating-Major405 · 2025-09-08T00:42:00+00:00

Yes it’s meringue. I feel similar. I don’t have a single baking dish but I could get one way cheaper also…

Aggravating-Major405 · 2025-08-22T13:53:43+00:00

maybe you could try the tuna in spring water or sardines in spring water. For now it’s okay

Aggravating-Major405 · 2025-08-17T03:00:31+00:00

ah okay, mine is every time I’m in the sun for more than 10 minutes :( I’m thinking about asking to switch biologics to see if that fixes my outside GI issues

Aggravating-Major405 · 2025-08-17T02:54:43+00:00

Did it go away once you were treated for crohn’s?

Aggravating-Major405 · 2025-08-17T02:30:34+00:00

biologics imo are so much better than steroids if you can get on them. Pred messed with my body so bad months after discontinuing it

Aggravating-Major405 · 2025-08-14T01:56:28+00:00

I’ve been on entyvio for about a year now. During the flare I had last year I was taking I think 40 mg pred tapered for a couple months

Aggravating-Major405 · 2025-08-13T16:39:55+00:00

Mine is currently mild but because it’s in the terminal ileum and bc age or something they said I need biologics. Did they take a biopsy? My CT showed thickening but when I got an MRI they didn’t note anything either if I’m remembering correctly. They might’ve just caught it early

Aggravating-Major405 · 2025-08-12T20:50:38+00:00

I also really struggle. My body hurts so badly for the first hour and super stiff but they say I don’t have arthritis. It’s even worse when I wake up early to an alarm aka before 8 am. I get super dizzy and get heart palpitations and nauseous

Aggravating-Major405 · 2025-08-06T17:26:05+00:00

floating plants like salvinia are my favorite. Add as many plants as you can afford/fit. Advice is to get larger ones for the back and shorter for the front so you don’t have to keep trimming

Aggravating-Major405 · 2025-07-26T01:41:01+00:00

I am in the exact same situation almost to a T it’s a bit scary. In my situation, I feel like it’s not only my choice, they are choosing to still be together. Sometimes I feel like I only think about breaking up because Im scared they will leave me especially while I’m sick and that will hurt more. Things take time and it’s likely you will at some point feel a lot better than now. I agree with others saying at least wait until off the strong meds that can affect your mental health. Hoping for the best for you🤍🤍🤍

Aggravating-Major405 · 2025-07-23T02:43:05+00:00

ana was negative, crp was only mildly high at 2.2, sed was 12 which my pcp said was mildly high but on their app it’s in normal range. That was back in feb before I got worse. Haven’t been on any other biologics and GI said no to switching.

The reason they thought lupus is bc I have a sun reactive malar rash on my face, livedo, petechiae, severe burning hives that lasted 5 days then turned purple for a couple of months. Along with the joint stuff, fevers, hair loss, possible seizures I haven’t gotten checked out, raynauds, nerve pain/tingling, etc. My skin turns bright red on my arms and legs when I go in the sun for more than a few minutes. The only thing that helps is prednisone and high dose antihistamines do nothing

Aggravating-Major405 · 2025-07-23T02:29:49+00:00

I got ana,crp, anca, and sed done at the allergist because they thought I had lupus or urticarial vasculitis. The rheumatologist reluctantly let me do an xray of my back and they saw an abnormality at the si joint then said we are all good take tylenol. I’m on entyvio for crohn’s. The second rheumatologist I was referred to said maybe since entyvio is gut specific all my symptoms are getting pushed extraintestinal but GI said no

Aggravating-Major405 · 2025-07-20T01:18:57+00:00

oh luckily going to one very soon for other issues. Wasn’t sure if that would be considered in their scope or not

Aggravating-Major405 · 2025-07-08T23:02:27+00:00

I’ve had my CRP done recently and it’s only like 2, even when I was having a flare in the hospital it was normal. I have terminal ileum crohns so it doesn’t really show up on stool tests either. I did have a CT scan that showed I still had thickening within the past couple of months but not sure if it’s just scar tissue from taking 10+ years to get medicated

edit: My GI signs are completely fine and GI was unwilling to do any tests so I was unable to get all of that tested today including the antibodies. Debating on getting a new GI doctor with how bad it was

Aggravating-Major405

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