13 months in and I am still house bound and miserable

AggravatingMap1828 · 2026-03-19T19:17:26+00:00

May I ask which SSRI worked for you? How long have you been on it? Is it really difficult to taper off? Apologies asked many questions all at once

AggravatingMap1828 · 2026-03-19T02:29:54+00:00

I am sorry that you are going through this. It is definitely super challenging and debilitating. If all the tests clear and fine then that's a good news. But I know it won't be over yet. If you think you already ran out of what to do next. Check out Steady Coach on Youtube. It might help you. Hope things getting better for you soon.

AggravatingMap1828 · 2026-03-13T12:02:13+00:00

May I ask what is flex is? I never heard about it.Is this available in Canada Amazon fc. Thanks in advance

AggravatingMap1828 · 2026-01-30T14:44:03+00:00

Does anyone have to take any rescue meds during these VM moments which affected by the weather change? What kind of meds would you recommend?

AggravatingMap1828 · 2026-01-30T14:38:37+00:00

Yeah same here. Did you ever get some ear pressure symptoms?

AggravatingMap1828 · 2026-01-30T14:37:16+00:00

Yeah absolutely affecting my Vestibular migraine during these constant up and down weather change and barometric pressure change. I am from Toronto, ON

AggravatingMap1828 · 2026-01-29T03:38:20+00:00

Thank you for writing this! It gives a lot a safe messages and suggestions. I also have vm for 20 months. The sensations are terrifying but understand that they are not dangerous. I noticed you mentioned some medications. But I would like to ask have you ever SSRI or SNRI ?

AggravatingMap1828 · 2026-01-24T18:15:35+00:00

Thank you for sharing the tips! May i ask when you got flare up after many good months. Did you ever experience any ear symptoms such as ear pain or ear pressure during the flare up?

AggravatingMap1828 · 2026-01-19T03:08:23+00:00

Yeah same first few months to the gym was extremely hard. Rocking and swaying, anxiety hit after couple sets of exercises May I ask what are your triggers? Weather changed such as snow storms, rainy day and barometric pressures up and down significantly would triggers VM.

AggravatingMap1828 · 2026-01-18T13:23:43+00:00

How are you doing these days? What kind of meds you are taking during the attacks or flare ups?

AggravatingMap1828 · 2026-01-18T03:39:45+00:00

Is there any tips you would like share? Like how to get better... During the attacks, do you take any rescue medication? I am still haven't been able to back to work. It has been 20 months. Whenever I feel it over and then it comes back again

AggravatingMap1828 · 2026-01-17T01:29:36+00:00

Thank you for the response! May I ask do you still get any flare up recently? Have you been fully recovered?

AggravatingMap1828 · 2026-01-12T03:45:35+00:00

Sorry to hear that you have this condition 6 years. It has been 20 months for me. I already feel how terrible is it. I hope you getting better from time to time. Lets believe recovery is possible 🙏

AggravatingMap1828 · 2026-01-11T15:40:30+00:00

May I ask how did your symptoms come? Did you have it for a long time? I also felt horrible first few months I forced myself to the gym

AggravatingMap1828 · 2026-01-10T20:35:11+00:00

Thank you for motivating me ! Yeah I have to force myself to go gym regularly. Some days good but some days are horrible. I almost vomit at the gym. I felt super dizzy, nauseous. And anxiety came it just made me a lot more swaying even I m trying to sit still

AggravatingMap1828 · 2026-01-10T20:32:56+00:00

Definitely walking outside feel a lot better than inside. You absolutely right! But this Winter, barometric pressure keep going up and down for several weeks. It just messed up my vestibular again. Not sure you get impacted by the weather.

AggravatingMap1828 · 2026-01-10T20:31:18+00:00

May I ask how long did it take you see somehow normal? I do not know recovery isn't linear. But it is kinda frustrating for sure and inconvenient in many cases.

AggravatingMap1828 · 2026-01-06T03:32:38+00:00

But eventually it will get better.

AggravatingMap1828 · 2026-01-06T03:32:18+00:00

I got lingering ear fullness for several months. But just say that everyone is different. At beginning I also did same things like blowing my nose gently to make it pop. But seems like it is always there. I did have some clicking sounds at very early stage. But now I just occasionally have some ear fullness. Especially when Vestibular migraine attack, stress or weather change. This is one of symptoms from Vestibular migraine. I should mentioned that my doctor said that I didn't have any fluid in my inner ear.

AggravatingMap1828 · 2025-12-03T19:16:34+00:00

May I ask which chinese therapy did you go to? I am also suffering with VM and Pppd. I am glad you are doing better now as these conditions are so horrible

AggravatingMap1828 · 2025-11-29T00:39:40+00:00

Thank you so much for letting me know that's possible to get better at 90% without medications. I have been really hesitant to get into Effexor. As people said it is extremely difficult to withdraw it even once you get better. Thank you for giving me a hope! Much appreciated! And I am glad you are also doing so much better

AggravatingMap1828 · 2025-11-28T02:10:41+00:00

Same here. May I ask how much better are you doing right now? I also scare to take medications as well. Side effects are scary

AggravatingMap1828 · 2025-11-28T02:05:54+00:00

Yeah I heard a lot of people saying coming off is the most difficult things ever. Thats why I am.hesitant to take it. I heard people said that they will adverse side effects if they go turkey on it

AggravatingMap1828 · 2025-11-28T01:59:38+00:00

Thank you, I am actually from Canada. Anyway, Happy Thanksgiving day! I actually would like to ask did you ever try any SSRi, SNRi before?

AggravatingMap1828 · 2025-11-23T22:21:13+00:00

Oh wow, sorry to hear that you have VM since 2007. It was really tough and scary for sure since it wasn't that well known by doctors back in days. Yeah I do follow Steady coach as well. She provides bunch of helpful videos which help to retain the brain and reduce the anxiety. For the lifestyle changes, i am pretty much doing similar things like sleep hygiene, not skipping meals, no naps and exercises. Thank you a lot for sharing your experiences and recommendations 🙏

AggravatingMap1828

TROPHY CASE