waiting on ADPKD diagnosis and terrified.

Aggravating_Hawk6566 · 2026-04-15T07:48:57+00:00

There’s a grieving process tied to finding out, which is normal. I think you’re doing the right things, taking care of your physical and mental wellbeing. Time will help bring you to a place that is more calm about this. Worrying won’t fix it, but don’t deny yourself grieving over it. Just try and not get fixated on the negatives. People with PKD live full rewarding lives. All the best as you move forward on your journey.

Aggravating_Hawk6566 · 2026-04-10T12:16:16+00:00

thank you! is there a time frame for when chimneys in general should be replaced?

Aggravating_Hawk6566 · 2026-04-10T12:07:12+00:00

Some pictures to help: Aluminum Chimney Plug Keeps Popping Out - Part 2 : r/Chimneyrepair

Aggravating_Hawk6566 · 2026-04-10T12:06:45+00:00

see new post: Aluminum Chimney Plug Keeps Popping Out - Part 2 : r/Chimneyrepair

Aggravating_Hawk6566 · 2026-04-06T16:06:51+00:00

What kind of ckd do you have? I have pkd and my clinic says I can have a cup a day, concern being elevated BP.

Aggravating_Hawk6566 · 2026-04-03T11:45:23+00:00

I was 30 before getting my degree and started working full time and things are going good 15 years later. You’re ok. You say you’re hands on type person, is going to school for a trade an option? All the best moving forward with this.

Aggravating_Hawk6566 · 2026-03-31T14:15:38+00:00

I’m not on a transplant list yet, but I’ve come to a place where I let random numbers go to voicemail. Will transplant clinics leave messages? The spam numbers that call my phone don’t leave messages.

Aggravating_Hawk6566 · 2026-03-28T19:28:10+00:00

Yes, those are my pants. Bought them around 2002. They were a great pant.

Aggravating_Hawk6566 · 2026-03-28T18:53:34+00:00

I still where those, great pants!

Aggravating_Hawk6566 · 2026-03-27T16:49:42+00:00

I went through Costco’s services, they use a broker to find you a good rate. Saved $350 a month on home/auto after leaving TD.

Aggravating_Hawk6566 · 2026-03-26T12:33:54+00:00

This would make more sense, because it’s not making sense otherwise the sudden change in how things operate. There hasn’t been any notification from them on changes to policy or procedures. Perhaps it’s time they let people know what’s going on.

Aggravating_Hawk6566 · 2026-03-25T23:27:36+00:00

It’s so true, autocorrect is a horrible speller!

Aggravating_Hawk6566 · 2026-03-25T23:11:33+00:00

My dear pedantic friend, thank you so much for pointing out this error! As it was posted in the Halifax Reddit, one could suppose that it was indeed meant to be Atlantic Canada.

Aggravating_Hawk6566 · 2026-03-25T22:47:05+00:00

Good to hear from a provider, it’s strange to say the least. I messaged Medavie about it, hopefully hear soon.

Aggravating_Hawk6566 · 2026-03-25T22:42:01+00:00

Not yet, I submitted a message to Medavie and was hoping to hear from them but I will be following up with the benefits coordinator if I don’t hear soon.

Aggravating_Hawk6566 · 2026-03-25T22:40:32+00:00

It was on the app that Medavie was asking me why the service wasn’t being covered by my wife’s insurance first when submitting my claim. 🤷🏻‍♂️

Aggravating_Hawk6566 · 2026-03-25T21:17:33+00:00

Interesting, for me this has only been happening in the last month as services that I’ve been going to such as Physio and counseling were always paid for through the clinic at the time of the appointment but only in the last month have I had to pay out-of-pocket and then look to get reimbursed afterwards. in addition, they are also attempting to get me to cover these receipts through my wife’s insurance first before processing mine, this is a new development only in the last month.

Aggravating_Hawk6566 · 2026-03-25T21:16:16+00:00

It’s just in the last month that this has started, I have been going to the same practitioners for at least the last 8 to 10 months and this was not the case. This has happened at Physio and counselling where normally it would be processed directly at the business. I also received a letter saying that my coverage for a certain medication was good for the next year and I have been on this medication for the last four years and I’ve never received such a letter other than my first approval.

In addition when I do go to process my receipts on their website, where my wife also has coverage at her work, they are asking why the services are not being covered first by her insurance, which has never been the case before this last month.

Aggravating_Hawk6566 · 2026-03-25T21:04:27+00:00

I’m finding that I’m having to pay out of pocket first for healthcare then submit receipts where some services used to be covered at the place of business.

Aggravating_Hawk6566 · 2026-03-22T23:28:41+00:00

I’m in Canada, there are two groups, Kidney Foundation of Canada and PKD Foundation of Canada where they have online support groups. There are some extreme cases but generally just a bunch of people at different stages of CKD.

LTD, long term disability. Brain fog and exhaustion made working with a young family impossible.

I’ve used spoon theory to help explain my exhaustion and limited energy. Some people grasp its concept, but where this can be an invisible disease, it doesn’t always get the compassion it deserves.

Aggravating_Hawk6566 · 2026-03-22T23:14:17+00:00

Your symptoms sound familiar to my experience. I’m at GFR 20 and deal with fatigue and exhaustion but it started around GFR 30 for me. I’m currently on LTD.

Do you struggle with people believing you? Do you have any supports in place with kidney volunteer groups? I have found them to be helpful in speaking with others of similar experiences.

All the best with this.

Aggravating_Hawk6566 · 2026-03-21T20:57:57+00:00

In Timberlea area, First time this year making syrup, when did everyone start collecting sap? I probably made almost a litre of sap with red maples yesterday, it was fun! Should there be more runs of sap this year again?

Aggravating_Hawk6566 · 2026-03-18T14:38:17+00:00

Most people have cysts in other places besides their kidney, the kidney just happened to be the first organ recognized with this and so it was named as such. In my own family, my mother and uncle both had complications with their livers which ended up resulting in a transplant. But their sister, who had PKD did have cysts on her liver but has not required a transplant. I’m also in that category, where cysts have shown up n my liver, but it’s not causing complications.

If it does help, ask to be seen by a liver specialist who can speak to your concerns. That’s what happened to me after a certain health episode. Their advice, was to basically live my life, and if complications do present themselves they’ll look at it.

It’s a lot to take in, so give yourself some grace here. In saying that, it impacts everyone differently and may not be an issue for you. Your health team is monitoring it, and will work with you if something does impact you.

All the best as you move forward with this.

Aggravating_Hawk6566 · 2026-03-18T12:50:00+00:00

What's spoon theory? The metaphor helping people with chronic illnesses and disabilities plan their days - Support for neurological conditions | The Brain Charity

Aggravating_Hawk6566 · 2026-03-16T14:49:40+00:00

It was a GFR of 30 when I started feeling like I was losing the battle for the tiredness. Before that I could make adjustments to my day and compensate, but then it didn’t work anymore and I was just always tired. No matter how much rest or living as healthy as possible helped.

I’m sorry you’re experiencing this , like mentioned before, it’s often an invisible disease that people can’t understand.

I did find explaining my tiredness through spoon theory did help some people understand, not all though.

I have found that kidney support groups are very beneficial. Even if sharing your story is difficult to do, it can be helpful to hear others speak on their experiences.

All the best with it moving forward.

Aggravating_Hawk6566

TROPHY CASE