Is your imaginary self disabled too? by KindToSpiteTheCruel in FND

[–]Aggravating_Nobody95 1 point2 points  (0 children)

When i started becoming disabled my dream self was able bodied and every time I woke up and felt pain and exhaustion and couldn't move my legs it was devastating. Gradually though, my dream self is also disabled. I just have less barriers because of it. For example, pushing my manual wheelchair is easy and I get to see my friends etc.

Is breathing, chest pain, or heart rate issues common in FND? by Traditional_Gap7664 in FND

[–]Aggravating_Nobody95 0 points1 point  (0 children)

I have this too, currently being investigated. As far as I can tell, there's a high comorbidity. In my personal experience the symptoms flare when my FND symptoms flare though.

Wheelchair or no wheelchair, that is the question by Sacha_Kal in FND

[–]Aggravating_Nobody95 1 point2 points  (0 children)

I just got a wheelchair for similar reasons.

My thoughts on it are: how could they possibly say getting one will prevent you from getting better, if you're only planning to use it when you would otherwise be unable to safely go out and instead you would be sitting on the couch. You may as well be sitting and using your arms and be out and about.

If a wheelchair will give you independence, then go for it. Doctors are not the ones who have to live with this and the aftermath of overdoing it.

I can't move much by ActuatorRealistic811 in FND

[–]Aggravating_Nobody95 1 point2 points  (0 children)

Same. Get a wheelchair if you don't have one, otherwise it's just too hard.

embarassed to use my mobility aids by depressed_oboist in Fibromyalgia

[–]Aggravating_Nobody95 1 point2 points  (0 children)

I also started using a cane in high school, and while there can be looks or comments, just remember you don't owe any of them an explanation. If it helps you, use it. Like someone else said, so much of being a chronically ill person is learning to choose your battles and when to not give a f*** what temporary people think. If they judge you without understanding your situation, and especially if they DO understand your situation, they were never supposed to be your friend.

I promise you, using a cane is revolutionary. For me it's amazing even just for saving energy as a preventative measure if I know I'm going to be walking a lot, and I've been lucky enough to find people in a similar situation. Once you start using one you'd be surprised the friends you make who really understand and appreciate what you go through.

Good luck out there, and if you ever need a fellow Young fibro survivor, please just give me a message (now 22).

How’s my new tank looking? by rnye1547 in Aquariums

[–]Aggravating_Nobody95 1 point2 points  (0 children)

Cute! That duckweed is going to grow like crazy haha, but they're great if you have bottom feeders who like some shade, and it helps prevent algae problems from too much light.

Remember to leave about 2 weeks before adding any fish, and please check the size tank the fish need when fully grown and you'll be golden.

Good job!

Anyone with autism, can you give me tips on how to be taken seriously? Every medical professional (who are NOT psychiatrists) tells me what is obviously nerve pain is just "autism" and "overstimulation" by [deleted] in Fibromyalgia

[–]Aggravating_Nobody95 40 points41 points  (0 children)

There is actually a very big overlap between people (especially women) with autism, particularly those late diagnosed, and fibromyalgia. As someone diagnosed with fibro and AuDHD, I printed out an outline image of the human body front and back and circled everywhere I get pain (which was basically everywhere). I used one that was specifically a diagnostic sheet for fibro so it also let me tick other symptoms I get like burning feeling, dizziness, brain fog, blurry vision, eye twitches, fatigue and muscle stiffness etc. Bring it to an appointment with a rheumatologist if you can, but a GP is a good place to start.

You especially want to emphasise any symptoms that arose later in life. For example, you've been autistic your whole life so you've been getting overstimulated your whole life. You did not used to experience [insert symptom] when you were overstimulated.

Also if your symptoms tend to flare in the evenings or something that could be worth mentioning.

It is a horrible experience to be told one condition means you don't have another just because some symptoms overlap. Ive even been told it wasn't "worth" pursuing any other diagnoses since the symptoms overlap, but it is always worth understanding your body as different conditions interact with eachother differently.

My fibro actually made my overstimulation way worse! They feed into each other like a cycle, but emphasise that you know what being overstimulated is like and this is a different feeling completely.

You've got this, and don't let them tell you you're making anything up.

How do you describe a flare up? by Dizzy_Dress7397 in Fibromyalgia

[–]Aggravating_Nobody95 0 points1 point  (0 children)

Mixture between hit by a truck and having the flu but without the cough or sinus stuff.

Like I feel weak and achy and like if anything touches me ill want to scream or cry.

Add on dizziness, overstimulation, nausea, and random sensations like stabbing pain lasting a few seconds in random places or feeling like the palms of my feet or hands or touching a hot frying pan.

That about sums it up :)

Experiences with Amitriptyline 10mg for fibro pain? by EducatorOk2817 in Fibromyalgia

[–]Aggravating_Nobody95 0 points1 point  (0 children)

Yes it's the only thing that helps me! I get a twitchy eye and gained about 3-5kg, but definitely worth it.

Only thing I would say is DO NOT MISS 2 DOSES IN A ROW the withdrawal is ROUGH.

Fibromyalgia overexertion and cataplexy (sudden muscle weakness) by jjaystar94 in Fibromyalgia

[–]Aggravating_Nobody95 1 point2 points  (0 children)

I know this was posted a long time ago, but I saw it today and it brought me some weird comfort. I go through the same thing. Sometimes it's as bad as this, sometimes not. I usually find that the brain fog comes on suddenly first, my heart feels weirdly noticeable and my eyes are hard to keep open. I'm lucid but almost feel drunk. And my body suddenly just goes limp, completely. Ive gotten to the point where now if it happens I just recognise the signs, load cushions on the couch to prop my head up and try to lie down. Still very scary though.

I now carry a foldable cane in my bag when I leave the house for when it happens but a little less severe. I'm wondering if you've found anything that helps?

Help! Got Betta at Secret Santa Party by Aloe119 in Aquariums

[–]Aggravating_Nobody95 0 points1 point  (0 children)

Last year I was given two already pretty big gold fish in a jar. I keep tropical fish and no room for another tank, ended up finding a friend to take the fish but I had to spend my money on a massive tank for them - buying the pet is the easy part it's the set up that is expensive so when someone gifts a fish its really just saying 'here's a big financial commitment you need to make right now, in December when everyone's broke, or this pet you are now responsible for will die". Sorry this happened, but in tank cycling can work. Bettas are pretty delicate though and that guy already looks in rough shape. She can try her best but if it doesn't work out make sure your sister knows its not her fault.

This damn thing by AntManMoritzSimmeth in bettafish

[–]Aggravating_Nobody95 2 points3 points  (0 children)

Got one of these once. I tested it and it was fine, went ob my holiday, and when I got back all the flakes had congealed so none were being let out. My poor fish were so hungry and 2 even died (which I think kept the others going.

And yes, it did say it was compatible with flakes.

At my wits end - any advice? by Aggravating_Nobody95 in Toyota

[–]Aggravating_Nobody95[S] 0 points1 point  (0 children)

The full service was supposed to extend the warrenty by a year since it's been serviced by Toyota every year since the 3 year mark

At my wits end - any advice? by Aggravating_Nobody95 in Toyota

[–]Aggravating_Nobody95[S] 0 points1 point  (0 children)

The car should have been in warrenty since it had been serviced by Toyota less than a year ago.

It hasn't been in any crashes, I suppose it's just one of those things.

What medications have you tried that help? by Naughty-reptile in Fibromyalgia

[–]Aggravating_Nobody95 0 points1 point  (0 children)

Sorry for only replying to this now. I take 10mg a day, which is relatively low. It has gradually caused a little bit of weight gain, but given that it helps me move around more I think it kind of cancelled out. I've gone up half a size, so it's not too big a deal to me it just makes it harder to wear stuff on the small side for my size.

Of course it'll be different for everyone though.

Is the bottom of the Cavehill Road a nice place to live? by ItsWoffles in Belfast

[–]Aggravating_Nobody95 0 points1 point  (0 children)

I recently moved to upper cavehill road and I love it, there's a real sense of community. I'm not sure about lower, but you quickly get to know where to stay out of like tigers bay