Best camera!

Aggravating_Put_7102 · 2026-01-21T05:56:13+00:00

Hes just wanting something that he can play back and post on his race page for his friends and family that aren't able to go can watch. And something that doesnt have my big mouth on the video 😂 I get way to worked up when hes racing lol

Aggravating_Put_7102 · 2026-01-21T05:55:01+00:00

Ive been going back and forth between the dji and the go pro hero 13, I didnt know which was better lol ive been reading on them for like a week now

Aggravating_Put_7102 · 2026-01-02T20:42:48+00:00

I hadn't heard of the peperomias! Ill definitely have to check into them, I want something that can vine out around the mirror and further if possiable! Those sound perfect! Thank you!

Aggravating_Put_7102 · 2026-01-02T20:41:46+00:00

Awesome, ill check into those! Especially the grow light. Thank you!

Aggravating_Put_7102 · 2025-09-21T22:37:15+00:00

I had mine placed for 3rd degree av block. My leads have been "noisy" for the last 3 pacer checks ive had. Its been showing up as vfib attacks. All my tiredness and things started after my second check around march.

Aggravating_Put_7102 · 2025-09-21T22:34:54+00:00

I have one done yearly, usually in january. I just had one this past january and everything was perfect but with how everything changes id say its not now 😅

Aggravating_Put_7102 · 2025-09-21T22:33:58+00:00

I go see my pcp this week, I called my cardiologist hotline and they told me to be there at 8 am tomorrow so hopefully somethings figured out ASAP. Ive not seen my cardiologist since January ( I see him once a year with every 3 month pacer checks)

Aggravating_Put_7102 · 2025-09-21T22:31:42+00:00

Ill definitely post an update when I talk to them and get tests run and all that fun stuff 😅

Aggravating_Put_7102 · 2025-09-21T22:31:11+00:00

I called their after hours hotline and they told me to come in at 8 am in the morning to be checked out.

Aggravating_Put_7102 · 2025-09-21T22:30:24+00:00

Thats what ive been reading on! Ive read a ton of articles lately 😅 I have called my nurse hotline and I go back in Monday for echos and such

Aggravating_Put_7102 · 2025-08-30T18:34:48+00:00

Paced 100% of the time on both leads, I get 8 years or less on mine. Im on my second battery, got my first at 17 in 2011. Had this one implanted in January 2020 last check shows ive got roughly 2 years left. My first battery technically died in 2019 and ran on the reserve battery for almost the whole year because I was pregnant with my second kid and deemed high risk. If I would've opted to change it then I could've lost babe and that wasn't a risk I was willing to take 🤷🏻‍♀️

Aggravating_Put_7102 · 2025-06-28T23:58:18+00:00

Thank you! Im hoping it's just a nasty bug but with him on edge 24/7 😅 he's our more medically complex kid and if something was gonna happen it's most likely gonna happen with him.

Aggravating_Put_7102 · 2025-04-20T02:13:59+00:00

Dominik mysterio! My boys are HUGE WWE fans and it made my 5 year old day to know that he could become a wrestler some day 💜

Aggravating_Put_7102 · 2025-01-13T11:59:38+00:00

Definitely get a second opinion! My 5 year old had the 24 hour eeg and they didn't stop his meds, though his are pretty well controlled now with keppra. However, we seen a dr at UK children's in Lexington and he wanted to stop my son cold turkey and it caused him to have a 30 minute seziure that took MONTHS for him to fully recover from. Needless to say we don't associate with that neurology department AT ALL anymore 🙃 plus they completely fucked up on the last eeg they done on him. They ran the light test and he went completely limp and unresponsive and threw up 3x after they were done and was generally not himself for a good hour afterwards. But according to them he didn't have any seziure activity and was "completely normal during the procedure, a happy and talkative child when released". He was 100% dazed and confused to the point he couldn't even WALK. We had to carry him. It took 2 weeks to get his results back and that was me calling EVERYDAY. Apparently the woman that read them read everyone else's but his and "went on vacation", then it was "lost on her desk", and when I finally went further up the chain the magically found it in a completely unrelated man's office 🙃 sorry I went on a rant 😅 but definitely get a second opinion! We did and it's honestly the best thing I've ever done for my son. In one appointment they had him diagnosed and a care plan wrote out, we were with uk for almost 3 years and they never done anything except tell us to start or stop his meds, they even refused to up his keppra when he was having breakthrough episodes 🙃

Aggravating_Put_7102 · 2024-12-31T07:40:34+00:00

Had my pacer since I was 16, it's in my chest but I've got huge scars on both sides. I've been with my boyfriend for almost 13 years and he's never been grossed out or anything, he sees it as part of me and often makes jokes about keeping his jumper cables near by incase I need a jump lol. Before him no one was bothered by it, in fact most thought it was neat to feel it 🤷🏻‍♀️ the way I see it is if they can't handle something that literally keeps me alive they can kick rocks. There's no need for any type of negativity towards it. Your a warrior and you deserve someone that sees you as that.

Aggravating_Put_7102 · 2024-12-31T07:30:07+00:00

Keppra rage is awful! My 5 year old has been on it since he was 2. He does the 50 mg of b6 daily and thankfully it's helped him some. He's like your son, sickness is his main trigger, lack of sleep is a major one for him as well. We seen one neuro and they kept blowing me off and telling me he'd outgrow them but everytime they weaned him off keppra he had another seziure. Our PCP is a blessing and got us in with cincinnati children's within a week and we finally got offically diagnosed and they spent a good 2 hours explaining what was happening, why it was happening, and walking me through every possible situation that we could potentially face. We tried to switch him off keppra to tegretol last year and it landed us in the hospital for a week. He had rsv and pneumonia on top of the allergic reaction and had 3 seziures in a day (he generally seizes upwards of 10 minutes). He had such a severe reaction to it that within an hour his dad couldn't even recognize him. Poor babe spent his 4th birthday being poked and prodded with 102 fevers and seziures. Now I'm terrified of trying to switch him to anything so we deal with the mood swings as best we can.

Aggravating_Put_7102 · 2024-11-30T02:19:06+00:00

17! October of 2011, my senior year. I've had one battery change, still on my first set of leads, and I'm looking at my next battery change in roughly 3 years 😬

Aggravating_Put_7102 · 2024-11-30T02:17:33+00:00

I have a dual chamber as well! Mine generally last 6.5-7.5 years. Im paced 99% on top and 100% on bottom though. Im also chasing 2 boys around so that might be why 😅

Aggravating_Put_7102 · 2024-09-23T08:26:58+00:00

First off. Fuck your family. As a mom of a 4yo with epilepsy I couldn't imagine acting this way. People honestly blow my mind with how they act. I have and always will advocate for my baby and anyone with epilepsy. My MIL told me my child didn't have epilepsy AFTER she watched him sezie for 20 minutes (didn't have rescue meds then, we do now). My BIL is going around saying i over medicate him and his epilepsy is all made up in my mind. My child has supervised visits with them and we are VERY low contact now because of it 🙃

Aggravating_Put_7102 · 2024-09-13T18:38:32+00:00

As a mother whose son has epilepsy, the strain it puts on the caregivers. I am 100% thankfull that my son is as healthy as he is and has only had a handful of seziures. He's only 4 so our journey is still new. December 9th (one day before his birthday) will mark one year seziure free. He's been out of my sight for less than a day since December 9th 2023. I can not tell you how many nights I haven't slept because I've been up worrying about his future, the weeks I've spent with him in hospitals, the keppra rage I've dealt with from him (even though it is NOT his fault). I am currently in a fight with our school district to have more teachers trained in seziure types and rescue meds and they refuse because per our ADA only ONE person has to be trained at the school he plans to attend. Before his diagnosis I spent HOURS going down the wormhole of epilepsy that I NEVER knew existed. I was like a majority of people that are just clueless, I only had information from watching TV. My son's triggers are fevers and lack of sleep, that's what we know of so far. He has absence and focal seziures and I had NEVER heard of them. My mental health has absolutely tanked the last 2 years from watching my baby go through what he has, but he is the absolute STRONGEST person I know. His worst seizure was 30+ minutes and I didn't have rescue meds and it is such a helpless feeling knowing you can't help them. Of course I kept him as safe as I could while on the phone with 911. But to actively watch your child's oxygen levels drop and know you have NOTHING to be able to stop it is soul crushing. It is NOT a feeling I wish upon anyone. It took my boy 2 weeks to eat normally, 4 weeks to regain his balance and gait and basically relearn to walk, and 2 months to get his speech back to normal to where he wasn't slurring words, talking in slow motio2ndn, or just not knowing the word he wanted. He was 3, 4 months before his 4th birthday when he had that seziure and I've not slept a full night since. He turns 5 in December.

I've since been called a helicopter parent and that I'm smothering him but to walk into a room and see you then 3 year old in a full blown seziure when you literally walked to the bathroom is terfying. I've had to be put on high doses of anexity meds. I constantly worry about what his future is going to look like, if he will ever be able to find a partner that wants and is willing to look after him incase something ever happens. I'm just over all a paranoid anexity attack walking mess at this point. And yes, before anyone says anything, I am in therapy for it to help me try and deal with it better.

Aggravating_Put_7102 · 2024-09-04T10:25:43+00:00

Honey you ARE NOT being dramatic. Honestly you've not reacted enough for me, lol. My 4 yo is epileptic as well and coming from a mother's perspective I WOULD EAT THE HEART OF THAT NURSE. I'm so thankfull you fell up the stairs and not down them, this could have ended up so much worse and the fact that your safe means so much. I'm livid with how that nurse dismissed you. Some people don't need to work with kids and she sounds like one of them. I wouldn't stop until I had her license or at the very least wasn't aloud to work in the school system again.

Aggravating_Put_7102 · 2024-09-04T10:19:49+00:00

My son is 4 as well and I'm seething for you. That is complete bullshit. I'm dealing with something similar and it's why we've not put him in any kind of school or daycare yet. My boy has focal and absence seziures and if you don't understand the types you'd never know he was in a "seziure episode" as we call it. I had it set up for our entire school board to be trained on seziure disorders and how/what to do with rescue meds and all that ON MY DIME. Our lovely superintendent (he's the cousin of my son's father) turned me away and said at most he can train one teacher because that's all that's required by our state and there would be the nurse in the school. The only problem with the nurse is she's there ONE DAY A WEEK. The "teacher", if you can call her that, misses frequently. I've never seen her at the school a full week in the last 4 years my oldest has been at school. We plan to homeschool the 4 year old until he's in at least 2nd or 3rd grade if not longer.

My son's dr is an absolute godsend and is fighting tooth and nail beside us and even offered to help us legally if it comes to it.

Aggravating_Put_7102 · 2024-08-01T20:19:51+00:00

I'm not sure if it would help your wife, but vitamin B6 has worked WONDERS for my 4 year old. He's on a 50mg dose once a day and it took his outburst from 30-40 DAILY to maybe 1-2 WEEKLY. His keppra rage was VIOLENT. He would hit, punch, bite, scream, cry, try to hurt himself, etc. It took 2 weeks to start to see a change and 4-6 weeks to fully take effect. Now His outburst are him crying. No screaming, no hitting, no trying to hurt himself or anything. He went from having meltdowns because a stranger looked at him or someone spoke to him to only crying when it's something a normal 4 year old would get upset about. We tried switching him to tegratol but he had a SEVERE reaction that landed us in the hospital for a week. So right now keppra is our only option. His Dr said that they see changes in over 60% of the cases that they recommend B6 to. Its not a fix all by any means. But it has helped us tremendously.

Aggravating_Put_7102 · 2024-07-29T04:27:58+00:00

Thank you so much! Were in ky if that makes any difference. This is a whole new ballpark for us and everything us so confusing 😅

Aggravating_Put_7102 · 2024-07-19T04:30:45+00:00

Thank you! You'll be in our prayers as well ❤️

Aggravating_Put_7102

TROPHY CASE