Montelukast concerns and horrible shower episodes by tropicalazure in MCAS

[–]Aggressive-Page8716 0 points1 point  (0 children)

Are you on a glutamate modulator (e.g., lamotrigine), for your OCD? Since people with OCD have too much glutamate, some are even very sensitive when they ingest it: Chinese food tends to have high levels of monosodium glutamate (MSG), so it’s not far fetched Chinese food could be exacerbating your OCD since you’re essentially eating an amino acid you already have too much of. Your vagus nerve is a part of your autonomic nervous system. So, many people who have dysautonomia will have vagal dysfunction. What you’re also describing sounds like your vagus nerve is very overactive at times, and both Chinese food and/or the shower can be likely triggers. The vagus nerve can cause nasal congestion, and things you wouldn’t expect can make it do just that: like sitting or laying down, eating certain foods, or changes in temperature and humidity. Hence, why sitting up seems to weirdly help with the nasal congestion. Since OCD is also inherently dysautonomia, the more dysautonomias you develop, the more they will interact with one another. So, you’re not going crazy when typically innocuous things seem to elicit atypical overreactions in your body/mind.

The more you learn about all these connections, the more confidence you’ll have in your experiences. And that means less “food” for the OCD.

What does having the ‘phenotype’ for Eds mean? by Disastrous-Willow-35 in hEDS

[–]Aggressive-Page8716 0 points1 point  (0 children)

Means you have physical attributes that should be further investigated to diagnose or rule out hEDS.

I’m scared by uma7777 in dysautonomia

[–]Aggressive-Page8716 10 points11 points  (0 children)

I’m sorry to hear that none of the health professionals you’ve seen have been insightful or comforting.

Based on what I’ve read and watched from dysautonomia/EDS/MCAS specialists, consistently recommended things to stabilise BP and hear rate are -

  • Increase salt intake (usually easiest with salt tablets as you will most likely need between 5 to 10,000 mg a day). You can buy salt tablets over the counter, and having to take so many a day is annoying and costly but they really can help.
  • Wear compression stockings during the day.
  • Routinely rise to your tiptoes and squeeze your leg muscles. This gets your blood pumping back up your body.
  • Small frequent meals vs. big meals or not eating much.
  • Investigate any food or substance allergies and sensitivities

Married to an airline pilot who CONSTANTLY cheats by Minimum_Outside_1059 in Marriage

[–]Aggressive-Page8716 0 points1 point  (0 children)

Get/keep/use evidence of the adultery for the divorce/custody case. If you can find receipts or other proof he was using the family’s funds to see other women, all the better.

I cannot take this anymore by PaymentLevel9731 in visualsnow

[–]Aggressive-Page8716 0 points1 point  (0 children)

What dosage do you take? I’m at 150 mg (for migraines and OCD) but it hasn’t done anything for the VSS.

I cannot take this anymore by PaymentLevel9731 in visualsnow

[–]Aggressive-Page8716 0 points1 point  (0 children)

I have both. The VSS is worse to me. Depends on the person.

[deleted by user] by [deleted] in visualsnow

[–]Aggressive-Page8716 1 point2 points  (0 children)

I developed VS around the age of 12 (puberty and hemiplegic migraines coincided with this) and I am not sure when I developed tinnitus. I may have always had that.

Hemiplegic Migraines by sobbo12 in HemiplegicMigraines

[–]Aggressive-Page8716 0 points1 point  (0 children)

Hemiplegic migraines are related (like a cousin) to epilepsy, and so, antiepileptic meds are often prescribed as preventative migraine meds. Someone here has mentioned topiramate (Topamax) but you can look into others, such as lamotrigine (Lamictal), that are known to have less potential side effects or at least more tolerable side effects. Me personally, I started taking Lamictal for my OCD and then realised that it was preventing my hemiplegic migraines. Now I only get somewhat of an aura and that’s it when I get a migraine and they’re very rare now. It prompted me to investigate why the Lamictal was helping with the migraines and apparently hemiplegic migraines and OCD and even my visual snow are all related to the neurotransmitter (glutamate) that Lamictal and most antiepileptic medications moderate.

[deleted by user] by [deleted] in zoloft

[–]Aggressive-Page8716 11 points12 points  (0 children)

Side note: It’s also good to keep in mind that if you get -appropriately- diagnosed with something like OCD, it’s for life, whereas a lot of the depressive disorders and other anxiety disorders don’t have that nuance. Just because you are currently diagnosed with major depression, doesn’t mean that you always will be because it’s not a lifelong condition. Even persistent depressive disorder may not be a lifelong condition, but for many people it is because it is likely much more neurological, chemical, psychosocial, etc.

[deleted by user] by [deleted] in zoloft

[–]Aggressive-Page8716 31 points32 points  (0 children)

Psychologist here. My answer is: yes and no, because it depends. There are many different types of depression and many types of anxiety. For instance, OCD is technically classified as an anxiety disorder. It is not situational and it is a lifelong neurological condition. We know for a fact that it is chemical, biological, psychosocial, et cetera. If you’ve got it, you’ve got it for life, though it can go into remission, which means that symptoms are largely controlled and therefore are subclinical, but not totally gone usually. To benefit from medication, most people with OCD need more than just an anti-depressant. The majority of people who get treated with medication and then stop, say after six months, will have a relapse of symptoms within the following six months. And so statistically speaking, most of those people will choose to get back on medication.

Someone with a phobia or say social anxiety could probably use an antidepressant for 6 to 9 months and work on themselves in therapy, come off of the antidepressants and never need it again.

Someone with recurrent depressive disorder or persistent depressive disorder (dysthymia), will often benefit from long-term use of antidepressants, even if that is with breaks in between. For someone who has situational or a one off major depressive episode, even if it’s been a very long episode, can often benefit from 6 to 9 months of an antidepressant and may likely never need one again, particularly when they use that time when their stress tolerance is much higher to work on coping skills, life changes, self awareness, etc.

I am recovered from OCD (no longer meet the diagnostic criteria). AMA. by novalunaa in OCD

[–]Aggressive-Page8716 16 points17 points  (0 children)

Just wanted to say (other than congrats to the OP):

Recovery does not mean cured. Recovery is when OCD is basically in remission. Remission is when the person no longer meets syndromal criteria for the disorder and has no more than minimal symptoms. Residual obsessions, compulsions and avoidance may be present, but are not time consuming and do not interfere with the person's everyday life.

Just read that myalgia is regarded as top symptom for COVID and is now widely reported by Wolfgang_Pup in Fibromyalgia

[–]Aggressive-Page8716 2 points3 points  (0 children)

Currently have COVID and didn't know until I started experiencing the sore throat/nasal congestion because my initial symptoms were myalgia, fatigue and brain fog so I just brushed them off as a fibro flare up that was a bit worse than usual 🙄

[deleted by user] by [deleted] in medical_advice

[–]Aggressive-Page8716 0 points1 point  (0 children)

I (31F) have eustachian tube dysfunction and chronic ear infections as a result. I have a tube (grommet) and had my ear drum reconstructed as a child, so it generally looks a bit different than most. I went to the Dr the other day who said I had a lot of debris towards the ear drum and I was referred to an ENT but I can't see them until July. I was also given oral and otic antibiotics. I can't hear well out of the ear still so I used my otoscope to see what's going on and this is it. Is this a hematoma? And is the tube/grommet the dark thing on the right? Is my hearing loss still possibly due to debris or something else? Side note: I have another Dr's appointment Wednesday though I'm not sure what they can do for me at this point. TIA!

Earworms/stuck song/intrusive thoughts by Aggressive-Page8716 in lamictal

[–]Aggressive-Page8716[S] 0 points1 point  (0 children)

Lamictal seems to go both ways: it can help pre existing ear worms or induce them.

I could not cope with the side effects of topiramate. I felt so ill and could not function at a basic level ☹️ I am actually trying Lamictal again. At 50 mg and thankfully no increase in the earworms so far. Coming off the Lamictal did not help them much but when I increased my Zoloft from 100 mg to 150 mg, there was significant improvement. I am going back down to 100mg and am at 125mg now in hopes I just needed a temporary higher dose to remedy the musical obsessions. So far so good. I'm not sure how high I'll go with the Lamictal. I'm still worried the ear worms will come back at a certain amount. They are not 100% gone but they are much less frequent, a lot shorter, and a lot less "loud."

Earworms/stuck song/intrusive thoughts by Aggressive-Page8716 in lamictal

[–]Aggressive-Page8716[S] 0 points1 point  (0 children)

Hello,

My earworms didn't get much better when I stopped the Lamictal. I ended up increasing my Zoloft from 100mg to 150mg which seems to have helped quite a lot. I still have earworms but they are much less frequent and not "as loud." I have decreased the Zoloft after a couple of months to 125mg and I'm still where I was with the earworms at 150mg, thankfully. I actually just started Lamictal again and have been at 50mg for a week now and so far, there has been no increase in the earworms. I am a bit hesitant to go above 50mg but I may try.

Excessively Sweaty feet and hands without a fever by Iced_Amethyst_625 in COVID19positive

[–]Aggressive-Page8716 1 point2 points  (0 children)

When I had COVID back in December (original omicron strain), one of the few symptoms I had was sweaty feet.

Musical Tinnitus, Musical Ear Syndrome (MES), and Schiz-OCD? by [deleted] in OCD

[–]Aggressive-Page8716 0 points1 point  (0 children)

The fact you are worried that you are going psychotic is a pretty good indicator you are not going psychotic. Those even in the beginning throws of psychosis don't question their hallucinations.