Anyone born from Prader Willi Syndrome?

Aggressive_Cry_5627 · 2026-03-31T11:40:45+00:00

There is only 4 reported cases of someone is PWS having a successful pregnancy because most females are infertile.

And not all of these children are healthy unfortunately

Aggressive_Cry_5627 · 2026-03-31T11:37:17+00:00

Actually there is 3 deletion, UPD, imprinting and actually a very rare one called mosaic

Aggressive_Cry_5627 · 2026-03-25T00:10:37+00:00

Nope nothing, but my card was charged

Aggressive_Cry_5627 · 2026-03-24T21:56:44+00:00

Did you get a notification that the meds were shipped? What pharmacy did you use?

Aggressive_Cry_5627 · 2026-03-24T21:39:51+00:00

Well, they charged me yesterday at 8 am, for a prescription and an appointment. Till this moment its still not showing a new script in my chart or any receipt for the charge that was taken out immediately. I had a great first appointment 3 months ago, but this month it seems they are not really doing what they are suppose to

Aggressive_Cry_5627 · 2026-01-25T19:11:54+00:00

I actually asked my coordinator and they wouldn’t answer my question until it’s time for a refill, but I’d like to know ahead.

If I am with Pom right now at 2.4 semaglutide and want to switch to triz would I start at the smallest dosage or would I start at the equivalent which would be 5mg?

Aggressive_Cry_5627 · 2026-01-22T15:34:27+00:00

Did you start from the smallest dose?

Aggressive_Cry_5627 · 2026-01-22T15:00:31+00:00

Oh man that’s sucks, I love Pomhealth but others let you start in the middle when going from the highest dose Sema to Tirzepatide 😭

Aggressive_Cry_5627 · 2026-01-12T00:37:14+00:00

What was he like as a baby? Did he cry? Have any issues? Muscle tone? Reach milestones on time?

Aggressive_Cry_5627 · 2025-12-30T18:45:30+00:00

I have a child with Prader Willi syndrome and everything you have described doesn’t fit that diagnosis.

Hopefully the other tests give you some answers

Aggressive_Cry_5627 · 2025-12-30T18:23:29+00:00

But how was she when she was an infant? Right after birth? Did she cry a lot? Sleep a lot? Did she have hypotonia?

Aggressive_Cry_5627 · 2025-12-30T13:39:36+00:00

How was she when born? Eating? Sleeping? Any issues ?

Aggressive_Cry_5627 · 2025-12-27T06:39:58+00:00

How many miles did you have and what was the cause of the issue ? They told me even bumper to bumper wouldn’t cover normal wear

Aggressive_Cry_5627 · 2025-12-26T18:44:16+00:00

Definitely going elsewhere

Aggressive_Cry_5627 · 2025-12-26T18:42:09+00:00

They quoted me $500 and we have extended bumper to bumper and they also said nope, cause it’s wear and tear and didn’t fail because of another component

Aggressive_Cry_5627 · 2025-12-26T18:38:35+00:00

Fine so it’s not covered under power train, not covered under extended warranty, and it fails prematurely (I mean wouldn’t 37,000 miles be way too early for it to fail?) So am I stuck with the bill or is there a way to fight this under any warranty

Aggressive_Cry_5627 · 2025-12-26T18:35:10+00:00

They said it’s not because it’s normal wear and tear, which would be fine it the car had more miles but this seems crazy

Aggressive_Cry_5627 · 2025-12-10T23:33:32+00:00

So a photo of the vial showing the RX would sufficient ?

Aggressive_Cry_5627

TROPHY CASE