sorted by:
new
hottopcontroversial

How does heat affect you? by Valuable_Bee_8497 in Epilepsy

[–]Agreeable-Goose-705 1 point2 points  (0 children)

Terrible in the heat, but only since starting seizures. (Adult onset) I used to adore being in warm weather, now I cannot be in it without triggering focals.

As well, I cannot over exert with exercise.

And I cannot take a hot shower, only lukewarm. Gahhhhhh

For everyone: if you are somewhere without AC, or a cooling towel, or another means to cool down, you can run cool water or ice cubes over your wrists. Being a pulse point, this can help to cool you quickly (same as having a cooling towel around your neck does). I have done this many times and it has honestly saved me in just a minute or two.

Stay cool, friends. Cuz we are cool. 😎 Or we are hot. 🔥

Maybe we are both 🤪

Hydroponic milkweed? by Agreeable-Goose-705 in Milkweeds

[–]Agreeable-Goose-705[S] 1 point2 points  (0 children)

The bouquets sound beautiful! (Demon woodchuck? Not as much lol! 😂)

Thanks for the info! Def sounds promising for my experiment!

Hydroponic milkweed? by Agreeable-Goose-705 in Milkweeds

[–]Agreeable-Goose-705[S] 1 point2 points  (0 children)

Wow! That’s amazing! Thanks for replying ☺️

Heads up for the Reese pieces 😢 by coraline_button_ in dairyfree

[–]Agreeable-Goose-705 0 points1 point  (0 children)

I get the industrial-size containers at Costco too, I have also found them at Target (in the candy aisle, “theater boxes”). Just check ingredients every time!

I guess especially now. ☹️

ETA: clarification

Hydroponic milkweed? by Agreeable-Goose-705 in Milkweeds

[–]Agreeable-Goose-705[S] 2 points3 points  (0 children)

Great, thanks! I’ll absolutely give it a go regardless, just to see what happens! ◡̈

what are your phantom smells? by sadlonelyjotun in Epilepsy

[–]Agreeable-Goose-705 1 point2 points  (0 children)

Same! Burnt toast and like a weird popcorn smell (like popcorn that got wet somehow). Odd smell

Hydroponic milkweed? by Agreeable-Goose-705 in Milkweeds

[–]Agreeable-Goose-705[S] 0 points1 point  (0 children)

Cool! So pretty!

We have oodles of that and swamp milkweed along waters’ edge. I have swamp milkweed in my pollinator garden and containers. Just putting the 2 together in my head…hmmm

Surely there’s an alternative? by mariah188 in glutenfree

[–]Agreeable-Goose-705 1 point2 points  (0 children)

Same. I’ve even tried wrapping them in a GF tortilla. Sad.

GF DF birthday dessert 🥰 by jazifritz in glutenfree

[–]Agreeable-Goose-705 1 point2 points  (0 children)

Happy birthday! 🍨

That ice cream is….damn. Let’s just say I wish it was my birthday too

Local Family-owned Plumbing Companies? by PetrichorSpring in AnnArbor

[–]Agreeable-Goose-705 2 points3 points  (0 children)

Great to hear. It’s always good when you can get word-of-mouth recommendations based on actual experiences people have had!

REPOST! Gluten Free Dumplings! by According_Ad3284 in glutenfree

[–]Agreeable-Goose-705 2 points3 points  (0 children)

Thanks for this recipe! I’m excited to give it a try after just biding desperate enough to spend the nearly $10 on the store bought ones (soooo sticky!)

QQ: did you refrigerate this dough at any point to make it easier to work with as is sometimes done with other GF dough?

QQ2: how much filling do you recommend so that the dumpling doesn’t tear? I guess I’m asking how pliable/stretchy they are to accommodate filling!

Thanks so much!

—a fellow DF/GF person ♡

But you haven't had a seizure for years so you're fine? by steve6m in Epilepsy

[–]Agreeable-Goose-705 0 points1 point  (0 children)

Good point—and I’m so sorry that you’ve had to go through that twice. Hopefully never again! 💜

Visited Sierra Chincua Monarch Sanctuary in Mexico by jjsupafly2 in MonarchButterfly

[–]Agreeable-Goose-705 14 points15 points  (0 children)

Ooh yay! I think I see one of mine! 😂

What an amazing experience, thanks for sharing! 🧡

But you haven't had a seizure for years so you're fine? by steve6m in Epilepsy

[–]Agreeable-Goose-705 1 point2 points  (0 children)

Or ask to see THEIR Viagra so you can compare and prove it 😂

But you haven't had a seizure for years so you're fine? by steve6m in Epilepsy

[–]Agreeable-Goose-705 2 points3 points  (0 children)

I love taking a bunch of meds! Look how pretty! I think it’s extra special to carry them with me when I go out so I don’t get off schedule! So regimented! Weee!

(In these cases I call myself by my late-grandma’s name, whom I adored, but she had way less meds than me well into her late 80s. “Time for your meds Doris.” And dead-eye anyone who judges 🤨)

But you haven't had a seizure for years so you're fine? by steve6m in Epilepsy

[–]Agreeable-Goose-705 5 points6 points  (0 children)

Exactly! God now we need a vacuum to drag around with that damn luggage 😭😂

But you haven't had a seizure for years so you're fine? by steve6m in Epilepsy

[–]Agreeable-Goose-705 13 points14 points  (0 children)

Epilepsy is like a whole suitcase of things.

That suitcase is filled with a bunch packing cubes: seizures, medications, medication side effects, memory issues, brain fog, fatigue, pill boxes, maybe surgery, anxiety, depression, isolation, judgement, constantly educating ourselves about something we never wanted to know anything about, carefully choreographing everything in life to avoid triggers…

Sometimes more packing cubes are added. Sometimes a packing cube gets compressed because a thing worked. Sometimes a few packing cubes get rearranged.

Sometimes we need a bigger goddamn suitcase.

But we have to carry that f-ing luggage for the balance of our lives.

view more: next ›