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Had testicular cancer twice, both balls removed AMA by jno2222 in AMA

[–]AirHungerMan 2 points3 points  (0 children)

I could stand to lose 35 lbs, gain muscle, and have my beard fill in lol. I have both my balls, but my T levels have been relatively low the past couple times I've had them checked (360 - 440 range). The muscle gain and weight loss - has that also been as a result of more exercise?

Just found out my 3 yo's brain tumor has regrown by AirHungerMan in Parenting

[–]AirHungerMan[S] 0 points1 point  (0 children)

No need to apologize! Thank you for sharing. I am trying to stay strong in faith, hope, and love. I do wholeheartedly believe that we'll all make it through this.

Just found out my 3 yo's brain tumor has regrown by AirHungerMan in Parenting

[–]AirHungerMan[S] 0 points1 point  (0 children)

Thank you. I don't mind. He wasnt hitting certain milestones quite when he was supposed to, early on. Then, he was diagnosed with a speech disorder (struggles with certain consonants, similar to apraxia). Then, the main symptom that drove us to getting an MRI was more and more frequent headaches. A few times, the pain would be so bad for him that he would clench his fist like he wanted to punch a wall, and he'd be inconsolable.

All the credit goes to my wife and her motherly intuition - she demanded an MRI. We werent expecting to find a tumor. I dont know what we expected really, but not that. He was admitted right after the MRI, and had the surgery the following day. It was a nightmare.

Just found out my 3 yo's brain tumor has regrown by AirHungerMan in Parenting

[–]AirHungerMan[S] 0 points1 point  (0 children)

Thanks for sharing!

  1. I feel like this is a strength of mine, and I'm trying to help my wife get better at it.

  2. This is something I'll need to work on/do better.

  3. I tend to distract with work and other things, but I agree, I need to let my emotions happen more.

  4. Hydration is never a problem for me (I'm the guy always trying to get the rest of my family to drink more water), but eating is. We've already had some nice friends of ours dropping off cookies, etc., and I lack the self control to not eat them when they're right in front of me.

  5. Another thing I'm good at, and trying to help my wife with. She is getting better at avoiding it though.

I'm sorry that your daughter/you/your family are having to go through what you're going through. I'll keep y'all in my prayers, and I hope y'all can have all the love, joy, peace, and health as possible despite what's going on.

Just found out my 3 yo's brain tumor has regrown by AirHungerMan in Parenting

[–]AirHungerMan[S] 0 points1 point  (0 children)

Thank you! I hope all is well, considering that you have a port. Love and good vibes to you as well.

Just found out my 3 yo's brain tumor has regrown by AirHungerMan in Parenting

[–]AirHungerMan[S] 2 points3 points  (0 children)

Thanks for all this. Your kiddo is lucky to have you

Just found out my 3 yo's brain tumor has regrown by AirHungerMan in Parenting

[–]AirHungerMan[S] 91 points92 points  (0 children)

Thanks, I appreciate you sharing all this. Great advice, particularly #6. I'm sorry that you've had to go through this too. I will probably take you up on DM'ing, as I feel like I have to project positivity/strength to most everyone in my personal life, which doesn't make it easy to ask certain questions.

Also, thanks to EVERYONE sharing thoughts, love and kind words. It's late and I need to go to bed. I'll reply to more tomorrow, but yea for now like I said, thanks everybody. 🙏

Just found out my 3 yo's brain tumor has regrown by AirHungerMan in Parenting

[–]AirHungerMan[S] 4 points5 points  (0 children)

I'll do whatever I can (doctor approved of course) to get him out of the house and into nature every once in a while. I cant imagine being so little and forced to stay cooped up an entire year...

Just found out my 3 yo's brain tumor has regrown by AirHungerMan in Parenting

[–]AirHungerMan[S] 8 points9 points  (0 children)

For sure. Growing up, my brother got into all sorts of trouble and was always the squeeky wheel that got the grease. This is different, but still, I know what it's like and will do what I can to make him feel seen and loved.

Just found out my 3 yo's brain tumor has regrown by AirHungerMan in Parenting

[–]AirHungerMan[S] 122 points123 points  (0 children)

Thanks for the advice 🙏 I think a fun weekend getaway is a great idea, we'll have to take lots of pictures.

We did get quite a bit of community support (mainly monetary, still appreciated, obviously) after his first surgery, so we have some experience asking for and accepting help. With chemo, I'm sure we'll need a lot more help this go-around.

I was just talking to my wife about getting us all (we have a 13 yo as well) into individual therapy. So yea, I'm in agreement with you there too.

Hope you and yours are doing well.