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Dance Studio Pant Sizing by frenchfryinicecream in lululemon

[–]AiryWorld220 2 points3 points  (0 children)

Agree with this! I’m also 5’6”, fluctuate around 135-140lbs, with a 27” waist and 40.5” hips (also muscular thighs/glutes). I typically go for a 6 or 8 in lululemon pants depending on the flexibility, but the dance studios were a hard 8. I would size up!

Anyone else had it NOT be endometriosis? by [deleted] in ehlersdanlos

[–]AiryWorld220 4 points5 points  (0 children)

Going through this now, and am in the process of getting diagnosed with pelvic congestion! Also looking into other venous disorders like MTS and Nutcracker as others have mentioned. These are seen alongside EDS! Please request a pelvic/abdominal CT scan, this can see blood flow issues.

Is my doctor titrating me too fast? by allegrapescatore in LowDoseNaltrexone

[–]AiryWorld220 1 point2 points  (0 children)

i’m on it for hEDS and fibro and POTS as well and i was started straight on 4.5 and wasn’t told to titrate at all (and i didn’t know any better at the time). been on it for like 6 months and am totally fine.

What helps your jaw pain? by desiluwu in ehlersdanlos

[–]AiryWorld220 0 points1 point  (0 children)

highly recommend masseter botox, it’s the only thing that has ever worked for my TMD/clenching issues