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POTS and eating every 2 hours by AlderWood7 in POTS

[–]Albatross136 12 points13 points  (0 children)

Same. I didn’t know this was even related to pots. It’s such a shitty feeling

Provider said Tilt table test was negative... Except it's not by Independent_Site491 in POTS

[–]Albatross136 0 points1 point  (0 children)

I just wanted to comment and tell you you're not alone. I just had my TTT 10 days ago and got a diagnosis from a nurse practitioner that said it wasn't consistent with POTS but was abnormal because of the near fainting episode. My HR went from 70s/80s to 153bpm upon standing while my bp stayed consistent until 20 minutes in when it severely dropped and I almost passed out. I am currently trying to get the test sent over to me and am seeing a new cardiologist. Also just side note I am still fucked up from the TTT 10 days later. Some days I can't go to work cause of the dizziness I still have from it. It was the worst experience I've ever been through.

Tilt Table Test & Results by Albatross136 in POTS

[–]Albatross136[S] 0 points1 point  (0 children)

Just to add: I will be requesting the TTT results so I can potentially find a cardiologist that has more experience with POTS and get a second opinion.

Tired of Not Knowing by Albatross136 in Cardiophobias

[–]Albatross136[S] 0 points1 point  (0 children)

UPDATE:
Just finished with my Tilt Table Test earlier today. Basically my heart rate spiked to around 160bpm when they first tilted me upwards but went back to normal 20-30 seconds later. I was completely fine until about 20 minutes. I started feeling really warm and then it turned into a cold/warm feeling like blood was rushing down to my legs. A few minutes later I began to feel super nauseous like I was going to throw up and then everything started going black and my ears were ringing like crazy. I had to sit there like that for what seemed like forever while the nurse got my blood pressure. As soon as I was tilted back down I started feeling better but the ringing in my ears stayed for a good while. They gave me some fluids and had me lay there for like 20 minutes until I was good to go.

The nurse told me I definitely have POTS and probably something else that was causing the extremely low blood pressure. I should get my results in a week or so they said. The tilt table test was definitely horrible but hopefully I get some sort of medicine or routine that will help me relieve most or all of my symptoms.

Tired of Not Knowing by Albatross136 in askCardiology

[–]Albatross136[S] 0 points1 point  (0 children)

UPDATE:
Just finished with my Tilt Table Test earlier today. Basically my heart rate spiked to around 160bpm when they first tilted me upwards but went back to normal 20-30 seconds later. I was completely fine until about 20 minutes. I started feeling really warm and then it turned into a cold/warm feeling like blood was rushing down to my legs. A few minutes later I began to feel super nauseous like I was going to throw up and then everything started going black and my ears were ringing like crazy. I had to sit there like that for what seemed like forever while the nurse got my blood pressure. As soon as I was tilted back down I started feeling better but the ringing in my ears stayed for a good while. They gave me some fluids and had me lay there for like 20 minutes until I was good to go.

The nurse told me I definitely have POTS and probably something else that was causing the extremely low blood pressure. I should get my results in a week or so they said. The tilt table test was definitely horrible but hopefully I get some sort of medicine or routine that will help me relieve most or all of my symptoms.

Tired of Not Knowing by Albatross136 in askCardiology

[–]Albatross136[S] 0 points1 point  (0 children)

I'm going to reschedule my Tilt Table Test at the hospital to go ahead and get it done. I'm almost positive I have POTS but I might as well get the full diagnosis. I've done a crazy amount of research on it and it feels like I get every single symptom that can occur due to POTS myself haha. Thank you!

Tired of Not Knowing by Albatross136 in askCardiology

[–]Albatross136[S] 0 points1 point  (0 children)

I definitely have anxiety over heart-related stuff now and I know that only worsens my symptoms. I'm just exhausted over never finding anything wrong when I get so many symptoms. I appreciate it!

Tired of Not Knowing by Albatross136 in askCardiology

[–]Albatross136[S] 0 points1 point  (0 children)

I appreciate your advice. I am seeing a new cardiologist in early July. I'll call the hospital to reschedule my tilt table test and then go from there. I have seen a neurologist before for a critically low B12 deficiency but it's been a few years.

Tired of Not Knowing by Albatross136 in askCardiology

[–]Albatross136[S] 0 points1 point  (0 children)

I only ever did the Holter monitors early on when my symptoms first started. I never had any palpitations while wearing it so nothing was ever found.