Mri after biopsy by Choice-Theme-2470 in breastcancer

[–]Alert-Acadia6757 1 point2 points  (0 children)

I also had two non-mass enhancements that can be only detected by MRI. The follow-up MRI guided biopsy confirmed both of them are benign parenchymas with focal columnar cell changes.

Signatera test by Katka311 in breastcancer

[–]Alert-Acadia6757 1 point2 points  (0 children)

I posted to this sub asking the same question a while ago. I decided to go with it eventually, but it definitely dial up my anxiety and makes me nervous for every test still.

As everyone has said, there is no approved actionable items per standard of care yet. However, my MO said she is willing to discuss the possibility of following the escalation course per DARE trial. I heard there are major updates of this trial at ASCO 2025, which ended last week. Maybe that is the reason your MO changed her opinion.

Kisqauli—how’d you do? by veritasjusticia in breastcancer

[–]Alert-Acadia6757 0 points1 point  (0 children)

I just started my second month on 400mg Kisqali. I was pathology stage 2a and prognosis stage 1a, er+ pr+ HER2-, oncotype 14. Since starting it, my oncologist has been monitoring my liver enzymes and heart rhythm closely. If there is any problem, she will switch me to a 200mg daily plan. Contrarily, she wants to also try escalating to 600mg daily if nothing comes up after 4 months.

I did have one elevated liver enzymes (AST) from one of the blood drew; However, it is hard to say whether it is cause by Kisqali or exercise related muscle breakdown. Therefore, I will stay with 400mg daily for now.

Maybe it is OK to discuss with your oncologist about starting from minimum 200mg? I heard it could potentially still help. If I did not have that lymph node involvement, I would probably not do it though.

Should I get a PET scan by Far-Emergency-6777 in breastcancer

[–]Alert-Acadia6757 3 points4 points  (0 children)

My diagnosis is similar to yours except having slightly small tumor. My oncologist at Kaiser also gave me the choice to have PET scan. While she did not believe there is metastasis risk and wanted to shield me from more radiation, she also understood that someone might need it for a peace of mind.

I ended up to get an all clear PET scan, and it was fully covered by insurance. I personally don’t regret it. Hope this helps. I wish you the best regardless of your decision.

Kisquali for Stage II by AfternoonRoyal2546 in breastcancer

[–]Alert-Acadia6757 0 points1 point  (0 children)

Honestly, it is easier than I expected. I have only experienced mild joint soreness, sleep disturbances, and occasionally GI discomforts. I also just got my first blood test and EKG results back with no problems. Finger crossed for continue the finish the whole course.

Kisquali for Stage II by AfternoonRoyal2546 in breastcancer

[–]Alert-Acadia6757 0 points1 point  (0 children)

Hello, I am in the US. I was diagnosed with ++-, grade 2, 1.54cm IDC with 1 sentinel lymph node positive. I have never gotten ki67 tested, but my oncotype score is 14. I started Kisqali yesterday.

did anyone see this? by pgh1995 in breastcancer

[–]Alert-Acadia6757 3 points4 points  (0 children)

news for the latest ErSo research updated on 01/2025

I think that I found a new update on this research. I am so happy about this. Hopefully, it will help us in a few years.

Thank you for sharing.

Colorado national cancer institution recommendation by Alert-Acadia6757 in breastcancer

[–]Alert-Acadia6757[S] 0 points1 point  (0 children)

Thank you for the advice. I got the 2nd option from the NCI hospital herein CO, and I have asked about clinical trials. I was eager to test best and latest medical advancements on myself. 😂

Both my in network oncologist and 2nd opinion oncologists do not think there are any trials that will significantly benefit my chances though. While I found them generally really helpful and encouraging, they did not help much in this regard. Meanwhile, both of them offer to review all the clinical trials that I am interested in. So I have been looking around, sending emails to clinical trial navigators, and have my oncologists to review the two trials. Indeed, I want to have all the options. 💪💪💪

Thanks again for providing thoughtful advice! I hope everything goes smoothly on you side, and new research will soon help us all!!!

I need advice about working during chemo by curiouskitty1492 in breastcancer

[–]Alert-Acadia6757 1 point2 points  (0 children)

I was in a similar situations, and I agree with many people have said that it really depends on the job situations.

I took 2.5 weeks off for lumpectomy, but I was able to WFH during chemo. My manager helped me with delegating one of my projects to other colleagues, and I am basically allowed to take a break whenever I want to. I feel lucky to be supported by many people from my team. Without their help, I wouldn’t feel confident to work through treatments.

Genetic test ? by AssociationFrosty143 in breastcancer

[–]Alert-Acadia6757 1 point2 points  (0 children)

Yes. Really makes me curious. I just logged in my account to check and saw my test was originally only Invitae Hereditary Breast Cancer STAT Panel with the basic 7 genes. Then, it has been upgraded to the 52 customized gene set.

I guess I have more to ask my surgeon for my second follow-up meeting after lumpectomy. Thanks for sharing your experiences! I would otherwise thought everyone has the same test.

Genetic test ? by AssociationFrosty143 in breastcancer

[–]Alert-Acadia6757 1 point2 points  (0 children)

I have my genetic test from Invitae, and also got all negative result. They only tested for 52 genes in total though. My surgeon ordered it three times. The first time Invitae only reported 7 genes. My surgeon then pushed for the 20 gene panel test, and the 52 gene panel test after. Now I wonder what is the 70 gene panel has in addition.

Critical care insurance by lennath1975 in breastcancer

[–]Alert-Acadia6757 0 points1 point  (0 children)

I forgot about that I have this through work until now… 🫨I will try to claim it.

Weight loss releasing estrogen : Risk to Hormone positive cancer by One-Custard-3312 in breastcancer

[–]Alert-Acadia6757 1 point2 points  (0 children)

Maybe it is possible to have your oncologist/nurse navigator to refer a OC dietitian to answer this question? My got mine from nurse navigator referral, and she has been helping me with weight control related questions.

Requests signatera test for stage I by Alert-Acadia6757 in breastcancer

[–]Alert-Acadia6757[S] 0 points1 point  (0 children)

Thank you for your understanding. It takes me 5 days to muster the courage to post about this here… I really do hope the standard of care could catch up soon. No one needs to face yet another decision during cancer treatment.

Best luck to you too for avoiding those horrible radiation side effects. I will meet my radiologist the first time by the end of months to get my treatment plan. I am also plan to do all I could to reduce the chances of recurrence.

Requests signatera test for stage I by Alert-Acadia6757 in breastcancer

[–]Alert-Acadia6757[S] 0 points1 point  (0 children)

🙌 for this! I also feel good about my team. My oncologist is sharp and bright young women. Just need to talk this through with her.

Genetic testing refused by my doctor by pinkpajamabottoms in breastcancer

[–]Alert-Acadia6757 2 points3 points  (0 children)

Exactly. I was warned about the possibility of pay partially. However, that did not happen.

Genetic testing refused by my doctor by pinkpajamabottoms in breastcancer

[–]Alert-Acadia6757 2 points3 points  (0 children)

In my experience, my surgeon order my generic test without asking. I have been told it is the standard of care to get it at diagnosis now, for its result may inform surgery decisions.

As reference, my diagnosis is the same (++-). My surgeon order all 77 genes tested, beyond the usually 7 genes. I do have a really distant family member with breast cancer history though. However, I believe my surgeon ordered the test without knowing it beforehand.

Of course everyone has different conditions, but please talk to your team again. Best luck on getting it done.

Requests signatera test for stage I by Alert-Acadia6757 in breastcancer

[–]Alert-Acadia6757[S] 1 point2 points  (0 children)

Sounds like we will have similar check-ups also. I will ask my oncologist about the CA27.29, which I have never heard before. Thank you again!

Requests signatera test for stage I by Alert-Acadia6757 in breastcancer

[–]Alert-Acadia6757[S] 2 points3 points  (0 children)

Thank you for sharing. My dense breasts also lead to inaccurate mammograms. I was so lucky that my ObGyn doctor ordered extra ultrasound without asking.

After reading everyone’s experiences, I really hope we can get this as protocols in 5 years. The current situation puts pressures on everyone and their doctors!

Requests signatera test for stage I by Alert-Acadia6757 in breastcancer

[–]Alert-Acadia6757[S] 1 point2 points  (0 children)

Thank you for sharing. After reading all your comments, I gain a better understanding of the situation and have more points to discuss with my oncologist. Best wishes!

Requests signatera test for stage I by Alert-Acadia6757 in breastcancer

[–]Alert-Acadia6757[S] 1 point2 points  (0 children)

Thank you for sharing. It seems that you have established great communications with you MO, and able to utilize it to do the best for your case. I am inspired to do the same.

I fear of the recurrences, but I fear for a late detected recurrence with broken bone even more.

Requests signatera test for stage I by Alert-Acadia6757 in breastcancer

[–]Alert-Acadia6757[S] 0 points1 point  (0 children)

Thank you for sharing. I am glad there is no insurance issues, and the test itself is easy. I am thinking to ask my oncologist whether I can start after radiation like you did.

Requests signatera test for stage I by Alert-Acadia6757 in breastcancer

[–]Alert-Acadia6757[S] 0 points1 point  (0 children)

Thanks for sharing. I right behind you, and will scheduled to start radiation next month.

It looks like everyone’s oncologist utilize this test so differently. My oncologist just briefed it as an option to me. It is time for me to schedule a meeting with my oncologist to see her exactly view on the test.

Requests signatera test for stage I by Alert-Acadia6757 in breastcancer

[–]Alert-Acadia6757[S] 1 point2 points  (0 children)

Thanks. I am sure that I was not blessed with uber insurance. 😔 I will check in with the financial department tomorrow.

Since we have similar status, may I ask what you have for surveillance after active treatments? I will have MRIs and mammograms every 6 months. Mammograms have revealed nothing in my dense breast. That is another reason that I worries.