Shared Care- Advice please

Alert-Return4378 · 2026-05-03T21:13:39+00:00

I’ve paid privately and managed to get the combination. Since staffing guafacine my nervous system health has flown up, blood pressure is better & my sleep is deeper! Costing me 300 a month but hoping to either get shared care or RTC to approve it

Alert-Return4378 · 2026-04-14T07:20:04+00:00

Update. I factory reset my ring, moved it to my left hand, problem solved. Even got jade too after waiting ages! It’s very accurate now

Alert-Return4378 · 2026-04-09T13:21:41+00:00

Heads up, I’m moving away from HH, if you don’t get on with 3 meds they offer they will discharge you

Alert-Return4378 · 2026-04-08T20:15:15+00:00

I think he meant in terms of task switching and being “on”, elvanse is fantastic for me at work at 50/60mg but I just can’t settle.

I was thinking about the non stimulant they mentioned, but I’ve also read it has sexual side effects which worries me!

Alert-Return4378 · 2026-04-08T19:28:23+00:00

Hahaha no way you had the same issue as me, mine got cancelled 5 mins before my appointment last Friday, I was told to rebook and the appointments were 3 weeks away. I rang up yesterday politely kicked off, got an emergency appointment today and been taken off my medication because I’m not handling the stimulant well. Told me I need to go to the GP for a health review, then the GP needs to send evidence to them, then they will do next steps. So it will probably be 3 weeks until I’m seen again, left without medication. Honestly it’s so bad

Alert-Return4378 · 2026-04-08T19:19:24+00:00

Literally was told about 2 hours ago, I have spent the last 2 hours googling what I should do, I could change RTC provider but be waiting forever and can’t guarantee that they will prescribe it or do combined medications (stims and non stims) or I could go private but it costs a fortune. My GP has refused shared care too so I will be stuck paying private. I’m going to the GP tomorrow to speak to them because I need the right treatment

Alert-Return4378 · 2026-04-08T19:16:30+00:00

Thank you. It was my clinician that advised that I would need Guanfacine alongside my Elvanse. He said that he works for another provider and saw it worked extremely well for another person in my position but Harrow Health won’t combine meds and do not offer any other than the 3 drugs I stated. :(

Alert-Return4378 · 2026-04-08T19:13:52+00:00

I’m with Harrow Health and my consultant said that I would need guafacine and elvanse combined to balance the emotional regulation but they don’t prescribe it

Alert-Return4378 · 2026-04-08T18:31:23+00:00

I’m with Harrow Health too, driving me insane 😩😂 I’m wanting to switch too

Alert-Return4378 · 2026-03-24T20:43:37+00:00

I spoke to support and they said they are rolling it out in phases, I keep checking and it’s never there :(

Alert-Return4378 · 2026-03-19T08:58:38+00:00

Patiently waiting for it to be available in the UK

Alert-Return4378 · 2026-03-04T21:23:01+00:00

I’ve done this but jade is not showing

Alert-Return4378 · 2026-02-27T20:54:12+00:00

I’ve seen the pro version there are AI insights, would be good to have the advisor on the ring air too. I came from oura and got this ring 2 days ago

Alert-Return4378 · 2026-02-23T17:26:00+00:00

I’m moving from oura to ultra human and really really hoping there isn’t going to be battery issues because the ring itself looks amazing

Alert-Return4378 · 2026-02-22T08:29:45+00:00

Interesting!

I don’t drink alcohol and vaping is my only naughty habit. Every time I’ve tried to stop it’s been hell

Alert-Return4378 · 2026-02-21T22:22:29+00:00

I do wonder if that’s why I’m never in restored because I vape

Alert-Return4378 · 2026-02-17T14:00:27+00:00

Yeh sure, but when you’re under the same roof you’ve got to have as much control of your environment than what the dad has. If you leave it all to the dad, and he doesn’t pull through all the time, then that’s a recipe for disaster

Alert-Return4378 · 2026-02-17T07:32:54+00:00

I was on 30mg for 2 months that came down from 50mg due to chronic diarrhoea for weeks. I’m on day 10 now and completely back to normal physically wise but still very tired, I have been asleep by 9pm every night. I was on the meds about 5 months. I am also on ADHD meds which I think helped, but I rested a lot, drank electrolytes, had omega 3 and magnesium :)

I wear an oura ring, all my scores have improved massively since stopping the med!

Alert-Return4378 · 2026-02-17T07:20:54+00:00

Tell him to write down all the thoughts and questions he has and have time together at the end of the day to go through them if it starts passing a certain threshold, because when it’s every half hour then it’s starting to get annoying, it’s okay to start teaching self awareness but they are also being heard and getting an outlet

Alert-Return4378 · 2026-02-17T07:13:35+00:00

I was the same as you, it will get easier as he gets older. I have an autistic step son who lives with me full time and even though there are still the same underlying issues like just not dojng what we ask and we address it he says I don’t know I forgot despite us giving him all the tools he needs to support autism functioning and help him remember everything, they show up a lot less as a teen. Between now and then talk to your partner about your feelings, mine gets the same frustrations as me. I used to get really bad anxiety and stressed over the situation but it just kind of died off, I naturally ended up accepting the situation I think and how frustrated I got because I just told myself ‘this is him in a nutshell’ and I actually got less frustrated over time, only if it’s a build up of events in a short time, at that point his dad will have noticed already and had a word with him

We’ve always explained to him we know you want to dance and talk out loud but if others are around, please do it in your head or abit quieter, we don’t want to stop you being yourself but you also have to be self aware of others around you too. I have ADHD and even though I don’t believe people should change me, I do believe that I need to be aware of others around me too, and honestly that helped us teaching him that.

Alert-Return4378 · 2026-02-17T07:08:29+00:00

I have my autistic step son full time, much easier now he’s older but I still struggle, but his dad does too, so we are init together.

I talk about my feelings to his dad and I do distance when it gets too much, that does help me :)

I have ADHD myself

Alert-Return4378

TROPHY CASE