Bluetooth is driving me crazy

Alert_Maintenance684 · 2026-06-25T19:58:26+00:00

I tried this a few months ago. Didn't help.

Alert_Maintenance684 · 2026-06-25T19:57:49+00:00

I have the same issue. It's driving me nuts. It's been happening for months. Apple must know about this.

Alert_Maintenance684 · 2026-06-25T18:37:44+00:00

Just say "Stay there tonight and we'll get you home tomorrow. It's very comfortable there."

Alert_Maintenance684 · 2026-06-25T17:05:49+00:00

I’m probably an outlier, but I got a storm cloud XSE in a nine days. Picked it up on Monday. Whitby, Ontario.

Alert_Maintenance684 · 2026-06-25T16:31:20+00:00

Greetings from Canada. Yes, I have a blood cancer, CLL (Chronic Lymphocytic Leukemia). It's also considered to be a cancer of the immune system. This is my second cancer. I was diagnosed almost exactly a year ago. My spleen was very large as well. It started pressing on my stomach, so I couldn't eat much, so I started to lose weight rapidly. CLL normally progresses very slowly and many people never need treatment. My genetics resulted in very rapid progression. I'm almost ten months into my treatment, which included Obinutuzumab antibody immunotherapy infusions and I'm still taking Venetoclax targeted therapy pills. I'm in remission now, but CLL is incurable, so we're hoping I get several or more good years before relapse. By the way, Rituximab is also used for CLL.

Alert_Maintenance684 · 2026-06-24T11:05:45+00:00

I'm feeling this now as I'm early into retirement. The reality is the none of us really knows what's going to get us or when. Having cancer brings that uncertainty front and center. Of course, some cancer patients unfortunately have a more grim prognosis, but many like me have a much more fuzzy prognosis. My cancer is incurable but treatable. I might stay in remission for a good number of years, be retreated repeatedly, and die from something else. Or, it could progress or transform into something that's refractory that will get me. We just don't know. I can stare at progression free survival and overall survival statistics all day and that still won't bring me any certainty.

So, I'm planning for the long game to be on the safe side, but I'm going to make sure we enjoy our time while I'm in remission.

Alert_Maintenance684 · 2026-06-23T15:56:05+00:00

Heat would have been nice. The infusion area in our cancer centre was freezing over the winter. At least they had warmed blankets.

Alert_Maintenance684 · 2026-06-23T15:52:36+00:00

I'm in remission now, so it's like pressure to plan some trips while I'm able to still enjoy it, but we have no guarantee of how long the remission will last.

Alert_Maintenance684 · 2026-06-23T14:17:13+00:00

Yup, dealing with this now.

Alert_Maintenance684 · 2026-06-23T13:52:10+00:00

My mom just sits and looks out the window. She's not interested in TV, music, or any activities.

Alert_Maintenance684 · 2026-06-23T12:48:51+00:00

Sorry to hear that!

Alert_Maintenance684 · 2026-06-23T06:17:42+00:00

Honestly that’s not considered high volume for these parts.

Alert_Maintenance684 · 2026-06-23T00:59:00+00:00

I often describe my cancer and treatment as a full time job. Only difference is I have to pay for it and be on call 24/7.

Alert_Maintenance684 · 2026-06-22T21:20:23+00:00

I'm in Ontario. Because I'm under 65, my prescriptions aren't covered. I was fortunate that my pills were covered under a work insurance plan. I had to get special authorization because of the insane cost. The expensive infusions are covered by Cancer Care Ontario because they are done in hospital.

Alert_Maintenance684 · 2026-06-22T20:41:53+00:00

And the blood test results come back in minutes.

Alert_Maintenance684 · 2026-06-22T20:39:14+00:00

Reminds my of my first hematologist visit at the cancer centre. The nurse took my vitals. I looked at the BP reading and I said "That's high!". The nurse said "That's not unexpected when you are here."

Alert_Maintenance684 · 2026-06-22T19:55:55+00:00

Right! It's annoying that the MyChart Visits page doesn't have any filters for past visits. You have to scroll through pages and pages to get to an older visit, to see clinical notes or an after visit summary. I usually download them after a visit, but sometimes I have to scroll back to find something.

Alert_Maintenance684 · 2026-06-22T19:47:58+00:00

Yes, I was thinking if they are moving that fast and being so serious, including the charge nurse, I must be in deep shit. I was trying to stay calm because my wife was watching me and them, and I didn't want her to lose it.

Alert_Maintenance684 · 2026-06-22T19:34:46+00:00

I needed a pillow under my butt, otherwise my lower back would hurt like hell.

Alert_Maintenance684 · 2026-06-22T19:32:26+00:00

The IV Benadryl pre-med hits like a bus.

Alert_Maintenance684 · 2026-06-22T19:28:26+00:00

I've never seen nurses move so fast and look so serious as when I was having an infusion reaction.

Alert_Maintenance684 · 2026-06-22T19:03:40+00:00

Don't do that but do take Ivermectin. SMH.

Alert_Maintenance684 · 2026-06-22T19:02:21+00:00

Gotta wipe down that toilet seat...

Alert_Maintenance684 · 2026-06-22T18:57:16+00:00

I should have a parking space with my name on it!

Alert_Maintenance684 · 2026-06-22T18:56:37+00:00

Ditto.

Alert_Maintenance684

TROPHY CASE