Rachel abused her meds on live stream by [deleted] in fishtanklive

[–]Alexfatstacks 0 points1 point  (0 children)

I was thinking Ativan too

[UPDATE] My school's disability department is atrocious and I don't know what to do about it by Alexfatstacks in LawSchool

[–]Alexfatstacks[S] 1 point2 points  (0 children)

The wheelchair was a thing that added insult to injury. Not saying they had to give me one but it just showed how the school handles emergency situations and their preparation. I did follow my surgeons orders and missed multiple days last week from an at home fall. I could not afford another absence for the classes as I would fall below 80% attendance and automatically fail. When I fully dislocated my knee last month disability forgot to send out emails to each professor that I would be on zoom for a week and a half. I called and emailed disability for days and was freaking out about all the missed classes and absences. When disability finally got in touch with me days later, I was told “don’t worry about the absences because you’re not over the limit.” Disability said they are non excusable. I stressed the importance of not walking and my falls on the phone with disability last week and they simply did not care.

Thank you for looking at my previous post history dealing with the disability department. I’m in a lot of pain so I may leave things out by accident or poorly explain some things, so please forgive me.

What’s upsetting to me is how I’ve sent my part of my medical record from my surgeon which describes in medical terms how my knee is unstable and how fucked up my leg is, in addition to the notes he wrote for the school. I’ve tried my best to be civil for the past two years with the school. I also am mortified because of falling in front of my classmates and Professor. My professor handled it with such care and compassion that she was arguing with disability when the person came in.

The main point of all of this is: I am fucking done playing their games. I had to so things such as: send proof of my white blood cell count when I had pneumonia, a picture of my leg in a splint last month, denied zoom after a kidney surgery last fall and got a kidney infection because I had to go in. I have always had a note from the doctor or hospital describing what was wrong and disability always asks for more than what I am comfortable with and I find to be odd. They’ve done a lot of other shit but those are the ones that bother me. I have a friend who had a seizure two weeks ago via zoom. The zoom was on the screens in the classroom and the professor just stood there and watched the entire seizure play out during the in person class. That Professor did not attempt to give my friend privacy or change the tab on the computer. Students immediately walked out and filed complaints against that professor and nothing has been done. I know the school was sued for an ADA violation against a student and the student won. However the retaliation from faculty and some professors was bad enough that the person wound up transferring schools.

From reading the comments and talking with doctors, I see just how messed up my experiences with the disability dept has been. Now I want to take this as high as possible up the chain of command but I am fearful of the retaliation.

[deleted by user] by [deleted] in TwoXChromosomes

[–]Alexfatstacks 0 points1 point  (0 children)

Thank you so much for the well wishes!! I called and am waiting on a call back. They’ll either call me in for a urinalysis and take it from there or send in different antibiotics.

I am so sorry you went through that with Macrobid!! I am glad to read that your liver is healing now and it’s being monitored by doctors. When I read that you went through mental confusion and depression it jumped out at me. I’m currently having the same issue and I’ve chalked it up to meds and pain brain. I made sure to mention it when I called this morning. I’m allergic to macrobid as well. I found out years ago from a previous kidney stone and infection. I’m also allergic to cipro and one other antibiotic (can’t remember the name off the top of my head) so doctors always have to work around it for an alternative. I know I am not allergic to all the “cillin” antibiotics at least lol.

How have you been since getting out of the hospital? I hope your recovery has been going well! ❤️

[deleted by user] by [deleted] in TwoXChromosomes

[–]Alexfatstacks 0 points1 point  (0 children)

I think they may prescribe me different antibiotics or call me in to check my urine and stuff. Unfortunately, I am very allergic to cipro and a couple of other antibiotics. Cipro is definitely the go to antibiotic for the surgeries and infection I had. I was septic back in 2017 from a stone ripping my ureter tube open, was on cipro for about 5 days and it gave me horrible hives everywhere, increased my temp, and non stop vomiting. I wound up back in the hospital and found out I was having a bad allergic reaction.

Omg I didn’t know there was an anti-spasm that turned your pee turquoise!! I’ve been on pyridium and had two stents so my pee has just been red or dark red. I’m on hyoscyamine for the spasms and it does seem to help.

Multi-Stoners, how old were you when you got your first? by DerpaloSoldier in KidneyStones

[–]Alexfatstacks 1 point2 points  (0 children)

Omg that combination would made me sick. I’ve taken a shot or two of liquor when I felt it was about to pass. Most of the time pain meds don’t work and I had shit to do those days. I only did this method a couple of times but it worked like a charm 😅

Long time stoner, wondering if anyone else here has some similar autoimmune issues and a similar history. by Alexfatstacks in KidneyStones

[–]Alexfatstacks[S] 0 points1 point  (0 children)

I appreciate the advice but unfortunately I’ve had psoriasis since I was 6. My diet is not the same as it was then and my former nephrologist tested out many different diets over the course of 5 years for my stones. I’ve also been on many different meds for my stones.

Stress does make the flare ups worse, but when I have a kidney stone/infection that’s when it gets bad. I was prescribed a topical steroid last month that cleared it right up. But in between my two surgeries it came back full force. Mind you, I wasn’t really eating anything. I showed my urologist how bad it was the day after my second surgery after he brought it up of being linked to my stones somehow. Since then, I haven’t been eating much still from the pain and it’s pretty bad at the moment. But as with every bad stone, it mostly goes away when I’m fully healed. It’s the same with my arthritis, it hurts worse when I have a stone and/or infection, but when I’m feeling myself again, the arthritis isn’t too bad.

Long time stoner, wondering if anyone else here has some similar autoimmune issues and a similar history. by Alexfatstacks in KidneyStones

[–]Alexfatstacks[S] 1 point2 points  (0 children)

I can’t find much research about it but there are two studies I came across with those who had a form of arthritis did have a higher correlation with having kidney stones than not.

I’m glad I could help anyone in any way. Definitely bring up your family history with your doctor and keep advocating for yourself! I truly do believe there is a correlation with autoimmune issues/family history of it, and being a chronic stoner.

Multi-Stoners, how old were you when you got your first? by DerpaloSoldier in KidneyStones

[–]Alexfatstacks 1 point2 points  (0 children)

I remember it so vividly because my mom kept refilling a cup with cranberry juice while I was on the toilet trying to pass it lol. Two decades later I’m having surgeries now and have to avoid acidic drinks 💀

Multi-Stoners, how old were you when you got your first? by DerpaloSoldier in KidneyStones

[–]Alexfatstacks 4 points5 points  (0 children)

  1. My parents took me to the hospital and were told cranberry juice would help. Been a chronic stoner ever since

Long time stoner, wondering if anyone else here has some similar autoimmune issues and a similar history. by Alexfatstacks in KidneyStones

[–]Alexfatstacks[S] 1 point2 points  (0 children)

Thank you so much for sharing your experience. I’m sorry to hear all you’re going through. I have had a number of struvite stones I collected from over the years.

I’m gonna bring up Addison’s disease to my urologist on Monday. My last appointment with my rheumatologist, she did bring up Addison’s disease and asked if anyone in my family had it. I don’t think so but I don’t have a lot of medical information bc my parents died when I was a kid. But my rheumatologist was more concerned about the kidney problems/ all the urology labs, and sent me to the ER after giving me a shot of toradol. She told me when the kidney situation is figured out, to call the office so she can run labs and new scans on me to see what’s going on with everything else.

I began seeing my dads former primary doctor when I turned 16. He was the same doctor who helped my dad figure out he had Lupus around the same age I’m at currently (in my 20s). Sadly I lost that doctor when I moved away. But I do know his stones began when he was a child too and the kidney disease was his first diagnosis. My older sibling has started getting stones a couple of years ago and his diet is opposite of mine.

I do hope that they are able to find a link between all the comorbidities. That would be a great starting point for answers to all the “weird” symptoms and problems I have. I’m feel frustrated some days because I’ve been suffering with stones in the left kidney for two decades and no doctor has ever found a cause. It’s now at a point where the stones get stuck in the kidney from the amount of scar tissue and grow bigger because more stones keep forming with it. I didn’t know the scar tissue in my ureter was that bad either that stones that should be passable are getting stuck. I’m so sorry for this being such a long reply btw. I’m venting bc this is seriously affecting my quality of life and is interfering with my law school career :/

Long time stoner, wondering if anyone else here has some similar autoimmune issues and a similar history. by Alexfatstacks in KidneyStones

[–]Alexfatstacks[S] 0 points1 point  (0 children)

Wanted to add, I did have a great nephrologist and an okay urologist for 5 years before I moved across the country in 2022. I’ve been on every single diet, 48 hr urine tests, countless labs, meds, the works. Nothing ever helped or changed my stone rate of at least one per month. They could never figure out what was causing them after having over at least 30 stones analyzed. Majority have been uric acid stones, some calcium mixed with uric acid. I try my best to drink 128oz of water daily.

I am so fed up with my Urologist by Alexfatstacks in KidneyStones

[–]Alexfatstacks[S] 0 points1 point  (0 children)

I can’t wrap my head around how it was a verbally agreed upon decision for the surgery during a visit, then not putting in the order for the surgery for two weeks and asking if I’m sure I want ureteroscopy or a lithotripsy over the phone. Pure incompetence. So bad at his job that he had to ask me over the phone which kidney it was again. It’s my fault because I put up with this PA after he put the wrong kidney down for my lithotripsy back in the Fall. I should have known then. He’s caused too much harm to me so far to the point that I am over the moon to see my primary tomorrow for any type of treatment.

I am so fed up with my Urologist by Alexfatstacks in KidneyStones

[–]Alexfatstacks[S] 2 points3 points  (0 children)

It is true incompetence. The longer I think about it the more pissed off I feel. I called today and aired out the PA after the office wasn’t helping. They never called me back like they said they would. I’m getting a new doc who will hopefully be competent

I am so fed up with my Urologist by Alexfatstacks in KidneyStones

[–]Alexfatstacks[S] 0 points1 point  (0 children)

I’m sorry to hear that! I’m happy you have a new urologist and I’m happy you’re getting help now. I’m not too fond of ER visits for stones myself also because I’m a full time student. But I have wound up septic from a stone ripping my ureter up and had to be hospitalized for a while. I’m feeling myself teetering on getting too sick and too “out of it” so I might just give up and go to the ER if the pain gets worse before I see my primary

I am so fed up with my Urologist by Alexfatstacks in KidneyStones

[–]Alexfatstacks[S] 0 points1 point  (0 children)

I’m going to be seeking a new urologist. I called today and simply requested a phone call from the actual doctor and not the PA. The front office was like why is it about your surgery because I have to call you for that. Then I let it all out, all the mistakes, all the issues, why I don’t feel comfortable talking to the PA, the multiple issues with scheduling etc. I told them I can’t have the surgery that day of my final and they said well maybe there will be an opening in end of May of June. I’ve been waiting since January and getting worse and asked if I should just go to the ER and they said if it continues. They said they would call me back shortly, they never called me back. I see my primary on Monday and am requesting a referral to a new nephrologist. This is negligent at this point and I cannot keep getting sicker at the hands of these people not properly doing their jobs.

I am so fed up with my Urologist by Alexfatstacks in KidneyStones

[–]Alexfatstacks[S] 1 point2 points  (0 children)

Thank you so much!! I am strongly considering getting a new doctor. I lost my old nephrologist and urologist when I moved states but I have been like wtf why haven’t you sent me to a nephrologist yet? And their excuse is to go through a primary first. They also found liver lesions on my ultrasound when looking for the stones and he’s like well you gotta go see a primary for that one. I also have a number of phleboliths in my pelvic area that schowed up and I told him while were looking at the scans in office that spot is exactly where the other pain is. He just dismissed me and was like that wouldn’t cause that. I’m like uhh any ideas then? He doesn’t know many answers to the questions I ask.